Aa
So upset my life has been turned upside down....
Just to vent to all who understand. Another word for Lyme should be hell. I hate having no energy every single day. I do realize I am finally on the right track with a LLMD. I have been on two antibiotics for 8 days now. It's just hard not to be able to do what I used to do......I want my life back.
Just want to pass this on...
I had one of the worst 8 year long cases of neuro Lyme and confections that many doctors, including LLMDs had ever seen...couldn't leave the house for 5 years and was considered an "antibiotic failure" . Long story short...I nearly died, but now have my life back from hyperbaric oxygen. I have my own chamber and continue to use it daily. II'm well and drug free..back to work, running, travelling...etc.etc. and VERY grateful I found this treatment. Read Dr. Harch's book " The Oxygen Revolution", based on 20 years of research, and includes SPECT scans. For Lyme, the protocol will be longer due to the nature of the disease and its ability to go into defensive forms...but this WORKS...
I had one of the worst 8 year long cases of neuro Lyme and confections that many doctors, including LLMDs had ever seen...couldn't leave the house for 5 years and was considered an "antibiotic failure" . Long story short...I nearly died, but now have my life back from hyperbaric oxygen. I have my own chamber and continue to use it daily. II'm well and drug free..back to work, running, travelling...etc.etc. and VERY grateful I found this treatment. Read Dr. Harch's book " The Oxygen Revolution", based on 20 years of research, and includes SPECT scans. For Lyme, the protocol will be longer due to the nature of the disease and its ability to go into defensive forms...but this WORKS...
Robyn - It sounds like Lyme has not affected your eloquence or ability to write! :) Well said!
LavenderLover - Hang in there! I think if you've only had it two months, your recovery will only be a matter of months, not years. I just passed my one year mark of treatment and I am guessing I have at least six months to go. I am way past the expectation of feeling better in a few days or a week. At this point, a few months of treatment sounds terrific to me. It's all relative!
I do think this process is especially hard on people who have always been healthy and have no concept of chronic illness. This is a humbling process, and I know I have a whole new compassion for those facing serious or long term health issues.
LavenderLover - Hang in there! I think if you've only had it two months, your recovery will only be a matter of months, not years. I just passed my one year mark of treatment and I am guessing I have at least six months to go. I am way past the expectation of feeling better in a few days or a week. At this point, a few months of treatment sounds terrific to me. It's all relative!
I do think this process is especially hard on people who have always been healthy and have no concept of chronic illness. This is a humbling process, and I know I have a whole new compassion for those facing serious or long term health issues.
Birds of a Feather Flock together........at least you know you are in good company. I have been on Plaquenil for only 2 days and gone completely off food, just feel like I'll throw it up if I do. Two nights of insomnia to add to that and I am a very happy camper. Hope it settles down before I get to the Minocycline in 2 weeks.
So wish that this was a "take this tablet for a week and come back and see me if you don't feel any better" scenario.
Still, along the way we developed other skills and character traits that I'm sure I wouldn't have if it were not for Lyme. Compassion, understanding, the ability to walk a mile in someone else's shoes, the ability to accept help when it is offered, the ability to listen to what my body is telling me, the ability to fight for something greater than my own temporal needs, the ability to not be offended by others bad attitudes, the ability to read between the lines of what other are really saying.
Add to the mix the ability to walk from one room to the other to completely forget why I went there, to forget the names of my own children, the ability to praise my daughter for being a "good boy", the ability to sit back and have a good laugh over the silly things my lyme brain has me do and say. Then of course there is always the fact that I have connected with the most amazing bunch of people scattered across the world who accept me for who I am, cheer me on, encourage me forwards and tell me what I can do to get there ;-) .
Yes, I want my life back and I would not wish this on my worst enemy, but I really hope and pray I can suck all of the goodness along the journey while getting to my destination.
On that note, thanks to all of you who add so much to my day, keep me hopeful and moving forward. Onwards and upwards......I'm going to make it over the mountain! \\ö// (hugs for you all)
So wish that this was a "take this tablet for a week and come back and see me if you don't feel any better" scenario.
Still, along the way we developed other skills and character traits that I'm sure I wouldn't have if it were not for Lyme. Compassion, understanding, the ability to walk a mile in someone else's shoes, the ability to accept help when it is offered, the ability to listen to what my body is telling me, the ability to fight for something greater than my own temporal needs, the ability to not be offended by others bad attitudes, the ability to read between the lines of what other are really saying.
Add to the mix the ability to walk from one room to the other to completely forget why I went there, to forget the names of my own children, the ability to praise my daughter for being a "good boy", the ability to sit back and have a good laugh over the silly things my lyme brain has me do and say. Then of course there is always the fact that I have connected with the most amazing bunch of people scattered across the world who accept me for who I am, cheer me on, encourage me forwards and tell me what I can do to get there ;-) .
Yes, I want my life back and I would not wish this on my worst enemy, but I really hope and pray I can suck all of the goodness along the journey while getting to my destination.
On that note, thanks to all of you who add so much to my day, keep me hopeful and moving forward. Onwards and upwards......I'm going to make it over the mountain! \\ö// (hugs for you all)
Patience, determination and the support of friends like those on this board is what is needed.
This is indeed hard. I too thought this would be a quick fix. Since my bite was 2 months ago, I thought for sure I would be back to my life at this point. I learn from all of you that patience is a true requirement with this. Sometimes that is not easy. The fact is when I got sick previously, I was always better in a few days. So this is a whole new event for me. You are right I have to remind myself I have an infectious disease now. That is totally different than a cold or flu. I will continue to take meds, supplements, yogurt, probiotics, and good foods to boost my immune system. Thanks for your kind words and support. We all need each other............I appreciate all of you.
I understand completely! Just remind yourself that you are on the right track and that it will get better. There are definitely ups and downs in treatment. I think my expectations were too high. I thought that I would steadily get better, and I got upset when an old symptom returned or a new one showed up. I finally learned to look at the bigger picture and to compare myself to last month, not yesterday, to realize I was indeed improving.
I thought I would be recovered by now at the one year mark, but I am looking at at least another six months. But friends and family remind me of how much better I am and that full recovery will come.
Hang in there! It's a long haul, but better than the alternative.
I thought I would be recovered by now at the one year mark, but I am looking at at least another six months. But friends and family remind me of how much better I am and that full recovery will come.
Hang in there! It's a long haul, but better than the alternative.
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