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What are your experiences on these meds
I'm starting my 2nd phase of treatment getting off some of my current medicines and adding some new ones. My LLMD started treating me first for Babs, and Lyme but we are starting treatment for Bart. I'm little neverous reading the side effects some of the medicine..
Levofloxacian the waring that scares me is the increase risk of tendon problems that included pain, swelling, inflamation and possible breakage..Did many of you experience any of these side effects???
He also put me on 500 mg Magnesium twice a day so I know that should help with this side effect...
Also starting Metronidazol and Cefuroxine ...what are yall's experience with these???
Still on my Thyroid medicine and B12 weekly and all my night time of meds...
Thanks again for your time,
Kelly
Levofloxacian the waring that scares me is the increase risk of tendon problems that included pain, swelling, inflamation and possible breakage..Did many of you experience any of these side effects???
He also put me on 500 mg Magnesium twice a day so I know that should help with this side effect...
Also starting Metronidazol and Cefuroxine ...what are yall's experience with these???
Still on my Thyroid medicine and B12 weekly and all my night time of meds...
Thanks again for your time,
Kelly
I can't answer your question about diflucan----- I never took it.
But I'm surprised that your doctor put you on prednisone if you have Lyme. Unless you have other medical issues we don't know about.
Prednisone is contraindication for Lyme patients the Guidelines tell us.
But I'm surprised that your doctor put you on prednisone if you have Lyme. Unless you have other medical issues we don't know about.
Prednisone is contraindication for Lyme patients the Guidelines tell us.
Im currently on diflucan! Just got off of prednisone and levoflaxin! With the diflucan, how long until hair grew back? Or stopped falling out? Running out of hair...
I lost more hair than usual with Lyme, before starting treatment. I didn't notice any hair loss with Diflucan, but then I only had two rounds of 10 days each, separated by about 4 days.
Good question! My hair loss came on so quickly after going on the Diflucan that it was the obvious reason. And I mean handfuls. I was too sick to care, tho. All better now!
I have to use a cane and I hate it but with the neuro Lyme, I never know how my balance will be. I hate using it but after falling om my butt one time I have learned to be humble.
B12 is an excellent suggestion. That was the first thing prescribed for me and I felt better right away. It helps with the fatigue, too. I take methyl-B12 shots 4 x a week.
Sorry if I haven't read the posts properly, but...
Are you taking vitamin B12? That easily gets low with lyme, and deficiency can give you terrible balancing problems. I used to keep falling down the stairs, tripping over the floor (as my sister put it) adn walking into door frames before having a course of B12 injections.
Also I've been told some yeast/fungal infections can cause horrible balance problems, it may be worth asking the doc about that?
Are you taking vitamin B12? That easily gets low with lyme, and deficiency can give you terrible balancing problems. I used to keep falling down the stairs, tripping over the floor (as my sister put it) adn walking into door frames before having a course of B12 injections.
Also I've been told some yeast/fungal infections can cause horrible balance problems, it may be worth asking the doc about that?
I dread cutting out all carbs. Ugh! I love fruit, esp. In the summer. But my stomach sure felt better at the end of each round of Diflucan I took (2 x 10 days). The Nystatin seems to help only somewhat. Your description of the two meds explains a lot. I suspect I have a deeper yeast issue than Nystatin can handle. The downside of taking Diflucan, is I can't take Biaxin at the same time. My doc put me on Biaxin for intracellular Bart and Lyme when he took me off the Levaquin. I fear the Bart coming back!
I go in a week from tomorrow. I will add this to my list of stuff to talk about.
I go in a week from tomorrow. I will add this to my list of stuff to talk about.
Oh, excellent. I'm glad you're finding some relief. Keep after it, because it made a HUGE difference in how I felt when I kicked the yeast. I was on high doses of Diflucan pills for quite a while (months), and it is hard on the body in its own way ... but it was def. worth it. My LLMD said he had never seen anyone with such high levels of fungal/yeast infection on a blood test, so he was (in his calm way) kinda flipped out too, I think.
I think I've mentioned before that at the same time, I stripped all carbs out of my diet and stuck to greens and proteins. No fruit, no starchy veg, no grains except quinoa, which is actually a seed. I lost a lot of my hair while on Diflucan (mainly on top) so my scalp was visible somewhat ... After I was off the Diflucan, my hair grew back in like curly/wavy baby hair, very fine. I thought okay, I can live with that, at least my head's not shiny! But after a few months, regular hair started growing back in and now there's no difference. All is back to pre-Diflucan status on the scalp.
If you don't feel you're making progress on the approach you're taking, think about talking to the doc about treating more aggressively. My gut had been very bloated, my brain fog was intense, my teeth were loose, my eyes were red, and all that was due to the fungus. It was not SO diff. from Lyme symptoms that I didn't recognize it was something different.
Docs don't tend to have serious yeast infections on their radar, and I suspect there is something about yeast and the pH it induces that makes one susceptible to fungal infection. Dang bugs.
NOTE: I just had a flash of a memory on this topic .... if I am remembering correctly, these two meds work very differently in the body: Nystatin works ONLY on the surface of mucous membranes (like the inside of the digestive tract) and does not enter the bloodstream, while Diflucan (generic: fluconazole) does enter the bloodstream. Thus if the fungus has invaded beyond the surface membranes of your digestive tract, Nystatin will not work bec. it does not penetrate beyond that level.
Yeast works iirc by sending out little rootlets into tissue, and at a certain point a surface treatment just doesn't work because the yeast has invaded too deeply.
Docs who deal with AIDS patients are more clued in to this aspect, bec. fungal invasion happens in AIDS. Other docs tend to write off fungal infections as pesky little v*ginal or throat things, which are surface mucous membranes.
I'd suggest you get to your doc and talk about a more aggressive approach to this ... a blood test may be in order to establish that the fungus has gone beyond the mucous membranes. Dunno. We're at the outer limits of my knowledge, but think big thoughts on this. The symptoms I had from yeast were not that different from Lyme symptoms, so I didn't realize what was going on.
I think I've mentioned before that at the same time, I stripped all carbs out of my diet and stuck to greens and proteins. No fruit, no starchy veg, no grains except quinoa, which is actually a seed. I lost a lot of my hair while on Diflucan (mainly on top) so my scalp was visible somewhat ... After I was off the Diflucan, my hair grew back in like curly/wavy baby hair, very fine. I thought okay, I can live with that, at least my head's not shiny! But after a few months, regular hair started growing back in and now there's no difference. All is back to pre-Diflucan status on the scalp.
If you don't feel you're making progress on the approach you're taking, think about talking to the doc about treating more aggressively. My gut had been very bloated, my brain fog was intense, my teeth were loose, my eyes were red, and all that was due to the fungus. It was not SO diff. from Lyme symptoms that I didn't recognize it was something different.
Docs don't tend to have serious yeast infections on their radar, and I suspect there is something about yeast and the pH it induces that makes one susceptible to fungal infection. Dang bugs.
NOTE: I just had a flash of a memory on this topic .... if I am remembering correctly, these two meds work very differently in the body: Nystatin works ONLY on the surface of mucous membranes (like the inside of the digestive tract) and does not enter the bloodstream, while Diflucan (generic: fluconazole) does enter the bloodstream. Thus if the fungus has invaded beyond the surface membranes of your digestive tract, Nystatin will not work bec. it does not penetrate beyond that level.
Yeast works iirc by sending out little rootlets into tissue, and at a certain point a surface treatment just doesn't work because the yeast has invaded too deeply.
Docs who deal with AIDS patients are more clued in to this aspect, bec. fungal invasion happens in AIDS. Other docs tend to write off fungal infections as pesky little v*ginal or throat things, which are surface mucous membranes.
I'd suggest you get to your doc and talk about a more aggressive approach to this ... a blood test may be in order to establish that the fungus has gone beyond the mucous membranes. Dunno. We're at the outer limits of my knowledge, but think big thoughts on this. The symptoms I had from yeast were not that different from Lyme symptoms, so I didn't realize what was going on.
My Mom bought me a walker with a seat early in the spring. I only used it once, but I couldn't have done the outing without it. People were kind and got out of my way, and I could stop and sit down whenever I felt tired or off balance. Too bad I didn't have it months earlier. I could have used it longer.
Jackie - I have recently figured out that I really do have a yeast problem in my gut. It explains some of the bloating and discomfort. The swish and swallow Nystatin hasn't helped much. The 2 rounds of Diflucan helped a lot. That's how I figured out how uncomfortable the yeast was making me.
My old pharmacy goofed in transferring my Nystatin Rx to my new pharmacy (one of many errors). My hubby picked it up for me and it was a big bottle of pills instead of a liquid. I figured I would just take them and see how it went. I think it is actually working better, as I take them 3 times a day, once after each meal. I have less bloating, and the dark spots on my tongue even shrunk.
Sprinkling the probiotics on my tongue does help, but it is short lived. I have about 5 days left on the Tindamax before I cycle off again, so I expect to get a break next week.
Jackie - I have recently figured out that I really do have a yeast problem in my gut. It explains some of the bloating and discomfort. The swish and swallow Nystatin hasn't helped much. The 2 rounds of Diflucan helped a lot. That's how I figured out how uncomfortable the yeast was making me.
My old pharmacy goofed in transferring my Nystatin Rx to my new pharmacy (one of many errors). My hubby picked it up for me and it was a big bottle of pills instead of a liquid. I figured I would just take them and see how it went. I think it is actually working better, as I take them 3 times a day, once after each meal. I have less bloating, and the dark spots on my tongue even shrunk.
Sprinkling the probiotics on my tongue does help, but it is short lived. I have about 5 days left on the Tindamax before I cycle off again, so I expect to get a break next week.
Idea: get a cane to carry with you. It might help stabilize your balance, it might cause people to STOP staring, and if all else fails, you can whack the rude people with it. Well, maybe that last one is a fantasy ... but still.
Does your doc have any recommendations about the balance issues? Dramamine? Something else?
Does your doc have any recommendations about the balance issues? Dramamine? Something else?
Ugh my neurological problems are in full swing...no balance can walk a straight line to save my life.. Can not even stand still without losing my balance.. I hate this I did this before for 3 months straight only to get IV steriods which I understand only grew my Lyme..
Wish me luck especially to have patience not to slap those who will not stop looking..lol
Wish me luck especially to have patience not to slap those who will not stop looking..lol
about the yeast flares you're getting .... I don't remember if you've tried doing swish-and-swallow with liquid Nystatin and/or sprinkling the contents of a probiotic capsule on your tongue or some other methods of direct contact .... I didn't have oral yeast, so not sure what the common methods are, but maybe some are worth trying.
I took Levofloxacin and it worked really well against my Bart, better than the Rifampin. I had to stop it, though because I had some pain and vibration in my left achilles heel. I had surgery on my heels as a teenager, and so I have some scar tissue. We weren't sure if the tendon pain was a symptom of Lyme (it likes scar tissue) or if it was a potential problem with the levofloxacin. We stopped it just to be safe.
But they say the tendon problems are fairly rare. And I have also heard that getting magnesium levels up to normal help prevent any tendon problems. I have been on mag since about 3 months before I was diagnosed. I really felt better with it, and the magnesium deficiency is one of those quirky symptoms that helped me figure out I had Lyme.
I am now on Biaxin & Plaquenil for intracellular Bart and Lyme.
I am also on Tindamax, which is supposedly a bit easier on the body than Flagyl. It is my least favorite drug, as it gives me dark spots on my tongue (yeast + bad bacteria overgrowth) and a terrible metallic/bitter taste in my mouth. Thank goodness I am cycling it 3 weeks on, 3 weeks off. At least I know I'll get a break.
And definitely no alcohol. Alcohol with Flagyl or Tindamax will make you very sick to your stomach. Not worth it.
But they say the tendon problems are fairly rare. And I have also heard that getting magnesium levels up to normal help prevent any tendon problems. I have been on mag since about 3 months before I was diagnosed. I really felt better with it, and the magnesium deficiency is one of those quirky symptoms that helped me figure out I had Lyme.
I am now on Biaxin & Plaquenil for intracellular Bart and Lyme.
I am also on Tindamax, which is supposedly a bit easier on the body than Flagyl. It is my least favorite drug, as it gives me dark spots on my tongue (yeast + bad bacteria overgrowth) and a terrible metallic/bitter taste in my mouth. Thank goodness I am cycling it 3 weeks on, 3 weeks off. At least I know I'll get a break.
And definitely no alcohol. Alcohol with Flagyl or Tindamax will make you very sick to your stomach. Not worth it.
Don't be afraid -- just be watchful. It's better to know what could go wrong, so you can call the doc if those adverse symptoms start to appear. That doesn't mean they WILL appear, only that they could.
The names of these meds may not be familiar, but they are pretty common meds:
Levofloxacin is or is in the same family at Cipro. I've taken it in the past, tho not for long periods of time, with no problems. It's a fairly common med.
Metronidazole is the same as Flagyl, which I was on for a long time to fight Lyme. No problems for me.
Cefuroxine is generic for Ceftin, which is also fairly commonly used.
These are strong meds, but not awful. Don't be afraid of them -- just keep a watch for developing side effects, so you can alert the doc and s/he can switch things up.
One or two of these don't mix well with alcohol, so just give up all alcohol for the duration of treatment. Small price to pay. And that include no wine, no beer, no champagne, nothing with alcohol. *Nothing.* I have read where some people say 'Oh I didn't think just a glass of WINE would make any difference!' I don't understand that way of thinking. What's more important, having some Chardonnay or getting well?
Easy answer! So just put your mind toward getting and being well, and saying no to alcohol should be a piece of cake.
The inserts that come with meds are really hard to read, so I often go to wikipedia and look up the name of the drug. It's much easier to read, and makes more sense to me. Try it -- the write ups are pretty short, and always there to refresh your memory.
You go, girl. Your doc sounds like s/he's on the ball, but don't be a hero if things aren't going well on the meds: Call The Doc, don't wait and see if the side effects go away. They will probably only get worse. Call The Doc.
Now get out there and get your life back!! YAY!!
The names of these meds may not be familiar, but they are pretty common meds:
Levofloxacin is or is in the same family at Cipro. I've taken it in the past, tho not for long periods of time, with no problems. It's a fairly common med.
Metronidazole is the same as Flagyl, which I was on for a long time to fight Lyme. No problems for me.
Cefuroxine is generic for Ceftin, which is also fairly commonly used.
These are strong meds, but not awful. Don't be afraid of them -- just keep a watch for developing side effects, so you can alert the doc and s/he can switch things up.
One or two of these don't mix well with alcohol, so just give up all alcohol for the duration of treatment. Small price to pay. And that include no wine, no beer, no champagne, nothing with alcohol. *Nothing.* I have read where some people say 'Oh I didn't think just a glass of WINE would make any difference!' I don't understand that way of thinking. What's more important, having some Chardonnay or getting well?
Easy answer! So just put your mind toward getting and being well, and saying no to alcohol should be a piece of cake.
The inserts that come with meds are really hard to read, so I often go to wikipedia and look up the name of the drug. It's much easier to read, and makes more sense to me. Try it -- the write ups are pretty short, and always there to refresh your memory.
You go, girl. Your doc sounds like s/he's on the ball, but don't be a hero if things aren't going well on the meds: Call The Doc, don't wait and see if the side effects go away. They will probably only get worse. Call The Doc.
Now get out there and get your life back!! YAY!!
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