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What do I do??

I tested positive for lymes last year after suffering horrific headaches, chills, sweats, severe brain fog, visual distubances, extreme fatigue, muscle weakness, twitching in the arms and legs, etc...  I was put on 4 wks of doxy and they say i'm cured! Everything is still the same except the extreme fatigue and the hot/cold flashes. I know I still have it but know one will listen. I have lost 5 jobs this year(unable to think clear). I contacted a LLMD in my area but he doesn't take ins. and I can't afford to pay out of pocket, SO what do I do?? MY reg. Dr. Thinks I'm crazy,My lymes retest came back neg.I can't go on like this it's affecting my walking, I have vertigo ETC. Any suggestions??
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Avatar universal
Very sorry to hear about your situation -- too many of us can relate.

If you pay the LLMD out of pocket, then you might be able to get reimbursed partially by your insurance company--?

If that doesn't work, then borrow from family/friends.  Sell your grandmother's jewelry:  she would understand.

If that doesn't work, call the LLMD's office and ask for compassionate care.  Tell them your financial situation and make a payment plan with them.

Try another LLMD till you find someone who can see you.

You are finding the same brick wall many of us have, for what little comfort that is to you.  

Above all:  don't give up!  I had the same symptoms you do and I understand how much you are suffering.  Were you tested for disease other than Lyme?  Babesiosis can cause some of the symptoms you are having, and it needs different tests from Lyme, and also different antibiotics.  An LLMD is a necessity, since the nonLLMDs refuse to see what is right in front of them.

I took magnesium supplements (magnesium malate, orotate, anything ending in -ate) that helped with the muscle cramps.  The Lyme bacteria are said to use up magnesium in your body, and it can cause at least some of the symptoms you are experiencing.

Above all:  Don't give up.  Let us know how you do, okay?  You are not alone.
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1436461 tn?1294553261
Oh please don't give up!! Do what ever you have to do! I had symptoms for years but they didn't get so bad that they totally interrupted my life until almost 2 years ago. That was when I started doing extensive testing and came up with a postitive lyme test. Well, my family Dr. was so Lyme ILLiterate that she had to research it to know how to treat me. When they did follow up blood work 2 weeks later it came back negative so they said, oh well that is taken care of, lets move on! Well, I didn't get better, ever.
I didnt get care for my Lyme until I moved to Oregon to help my sister and I had to find a Dr. here so I went to her Dr. Any way, she is amazing. I guess she isn't a MD but she is an internist, and naturalpath. I haven't seen a huge shift in my symptoms but she is trying so hard to get me better.
I just saw a web site last night that maybe you could try. It is Envita.com.
I know how frustrating it is to try to find care. I haven't ever had ins. so all my $00,000's have come out of my families pockets.
I hope that you can get it figured out!  
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