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1029507 tn?1287714315

burning

one more question, do any of you have burning when you urinate? when this all started with me 3 years ago i had every test they could do down their and could not find out what was wrong.  lyme doc says it is the little lyme bugs but nothing has ever been found in my urine. had a nurse tell me its from drinking dark soda she said the lyme bugs like that i even drink diet coke caf free. i guess i need to stick with water and see what happens. this is why i think it can be passed with sex. it burns when i ejaculate dont know what other test to do?
9 Responses
Avatar universal
Someone I know who has lyme had the same symptom.  She had severe burning and urine testing came back negative. The diagnosis ended up being interstitial cystitis from lyme.
666921 tn?1254990618
I often have burning when I urinate - it was very bad following  lyme treatment with 'Amoxicillin' - I was given more antibiotics to treat 'cystitis' - it hasn't cleared-up completely though.  I notice my urine has a stong smell too - or maybe that is down to 'smell sensitivity'.  My llmd. has found 'blood' in my urine on two occasions - so I am getting test from my regular doc.

1029507 tn?1287714315
what test do they do for interstitial cystitis? i also have a strong smell to my urine.  
666921 tn?1254990618
I don't have any info. as yet about the possible causes of blood in urine /strong urine odour - I will let you know when/if I find out more.

Yeast is a poss. - as I understand it - the 'pus' which is present when we have cystitis is actually 'white blood cells' which can be in the bladder to fight a yeast infection.

Yeast infections are very common for people taking antibiotics - esp. high dose/long term.
Avatar universal
The person I know had to have a cystoscopy and biopsy of the bladder lining.
237053 tn?1258828426
Yes... I had burning as one of my first symptoms.  I kept thinking I had a UTI but always NEG testing.  Is better now, but just decided it must be from lyme.
Avatar universal
My mom has Interstitial Cystitis, she was diagnosed about 5 or 6 years ago and has been treated ever since.  IC *****, it's where the lining of your bladder has sores, similar to stomach ulcers.  Urine is uber acidic and your bladder lining protects your bladder wall from the urine.  If there are sores in the lining, you lose that protection.  The symptoms definitely mimic a UTI or bladder infection.  The super unfortunate part is that antibiotics, anti-inflammatory drugs (ibuprofen, etc.), and acidic foods are not good for IC.  This includes soda, coffee, caffeine, tomato based products, etc.  To diagnose IC for sure, the only method is to have a cystoscopy.  Basically, the put you under anesthesia, manually fill your bladder with fluid, and put a camera up there and look around.  They have to extend your bladder in order to see the sores.  My mom always had good relief after she had one done because the fluid they extend your bladder with is medicated.  Usually your are catheterized for 24 hours after the procedure.  There are some good drugs on the market to treat it.  Elmiron is a well known one.  Also, my mom took Zyrtec to block histamines which apparently has something to do with IC in the bladder.  And, there is one drug OTC called "Preleif", which is kind of like Beano.  You're supposed to take it before a meal and it removes acidity from the foods.   When she was first diagnosed, her diet was really strict, water only to drink, no soda, alcohol, fruit juice, coffee, etc.  Also no ketchup, mustard, tomato sauce, spicy foods, or anything else that seemed to aggravate it and cause a flare.  Eventually, she figured out what bothered her and what didn't.  There is a really good website called www.ic-network.com that has a TON of info on the condition.  I've heard it can be triggered or caused by Lyme.  We still don't know if my mom has Lyme or not, but it's possibly that her IC was caused by that.  No one is sure though.  If I were you, I'd see a urologist.  It's more common for women to have it, but men can have it too.  Hope this info helps!
Avatar universal
Oh, I should probably mention that she's completely off all meds for her IC now and is pretty much able to lead a normal life with it.  She's just aware of what she consumes, but she can have coffee, soda, and even alcohol sometimes now.  She just avoids the few foods that really trigger a flare (like really spicy things and sometimes soy sauce).  Other than that, she just tends to pee more often than the average person, but the severe urgency for the most part is gone along with the pain unless she's having a little "mini-flare".
1029507 tn?1287714315
than you for the info
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