Aa
lyme, dental work and kinoki pads
Hey everybody, looks like its lyme disease or a blood infection just like it caused by mosquitos or flys. My one question is, is it a good idea or safe to have dental work done when you have lyme disease? Such as a root canal?
I also wanted to let everyone know that kinoki detox foot pads have helped me alittle :)
I also wanted to let everyone know that kinoki detox foot pads have helped me alittle :)
and PS, the treatment may also be quite different. I had Lyme and babesiosis, and each was treated with two drugs with no overlap, so a total of 4 drugs. I have another infection currently (from another tick) that will be treated with doxy. I was never given doxy for Lyme, but some docs do. There's wide variation in what is prescribed.
It's my understanding that the tests are all different for the different diseases -- the lab has to know what they're looking for. An LLMD would know from symptoms what to test for.
I wonder how different the treatment might be for the other tick born diseases.... maybe if its the same that might be why he hasn't tested me for all the others.... I have to pay cash for all my tests.
No I haven't been tested for the other tick infections... he mentioned me seeing a nearologists for what reason I don't know he didn't really say.... to rule of ms? I think a month of prednisone that basically had it so bad I was bedridden on it outruled a lupus flare and ms all together so not really sure why he would want me to..... other then that he said he was pretty sure especially after the t2 lesions on the mri that its either lyme or the other blood infection I told you about that only has some code to be currently known. He said it was just like lyme or a lot like lyme but given by mosquitos...... that flagyl sounds really important though.... otherwise sounds like the antibiotics might be pointless with all the research I have done on lyme.... like you said they do like to hide behind a shield.
Hi, I just want to clarify something from JackieC's last post. A Herx is not when symptoms get worse for no apparent reason. The reason for a Herx is the reaction of the body to the die-off of bacteria. This is why many people with Lyme feel much worse on antibiotics, at least initially (or in cycles).
I react strongly to antibiotics, experiencing worsening of symptoms and overall feeling worse. But on the other side of that negative reaction (which can lasts weeks or more) I'll feel much better. This type of response to lyme treatment factors in to my LLMD's assessment of how improved I am: overtime, I Herx less severely and bounceback/improve more quickly.
I confess I only skimmed all the above posts, but I wanted to reiterate that steroid treatment is contradicted by Lyme disease. Steroids are a terrible idea if there is an infectious process in the body. I went through this while undiagnosed; a short few weeks of prednisone, while initiaally felt great, caused my condition to worsen. Of course if you have lupus you may need steroids to stop harmful autoimmune damage. But if there is a possibity you also have Lyme, my advice would be to avoid steroids if possible.
Steroid use will also make it more difficult to test for Lyme, as Lyme tests look for antibodies produced to fight Lyme and not for Lyme bacteria directly. So since steroids weaken the immune system, you make less antibodies and therefore might slip through Lyme diagnostic cracks.
I react strongly to antibiotics, experiencing worsening of symptoms and overall feeling worse. But on the other side of that negative reaction (which can lasts weeks or more) I'll feel much better. This type of response to lyme treatment factors in to my LLMD's assessment of how improved I am: overtime, I Herx less severely and bounceback/improve more quickly.
I confess I only skimmed all the above posts, but I wanted to reiterate that steroid treatment is contradicted by Lyme disease. Steroids are a terrible idea if there is an infectious process in the body. I went through this while undiagnosed; a short few weeks of prednisone, while initiaally felt great, caused my condition to worsen. Of course if you have lupus you may need steroids to stop harmful autoimmune damage. But if there is a possibity you also have Lyme, my advice would be to avoid steroids if possible.
Steroid use will also make it more difficult to test for Lyme, as Lyme tests look for antibodies produced to fight Lyme and not for Lyme bacteria directly. So since steroids weaken the immune system, you make less antibodies and therefore might slip through Lyme diagnostic cracks.
Maybe 'azithromycin'? Yeah, I took that.
When the symptoms get worse for seemingly no reason, it's called a "herx" reaction. What's happening is that the meds are killing the bacteria, and all the garbage and toxins that the bugs leave behind make you feel worse for a couple of days. Some herxes are so strong as to be dangerous, so too much of the meds can be a problem. My herxes never got that bad, but some days I didn't want to get out of bed. Others here have had similar experiences. It sounds like your doc understands, which is why he reduced the dose a bit.
Were you tested for diseases other than Lyme? The ticks often carry more than one thing, and the tests are different from the Lyme tests and the meds can be different too.
Are you taking anything else besides the azithromycin? I had to take Flagyl (metronidazole) with mine ... it's supposed to break open the cyst-like biofilms the Lyme bacteria create for themselves to hide from your immune system and the antibiotics.
Every doc is a bit different in what they prescribe when and for how long, so there's no absolute right or wrong. Depends on the doc and on your particular infections.
When the symptoms get worse for seemingly no reason, it's called a "herx" reaction. What's happening is that the meds are killing the bacteria, and all the garbage and toxins that the bugs leave behind make you feel worse for a couple of days. Some herxes are so strong as to be dangerous, so too much of the meds can be a problem. My herxes never got that bad, but some days I didn't want to get out of bed. Others here have had similar experiences. It sounds like your doc understands, which is why he reduced the dose a bit.
Were you tested for diseases other than Lyme? The ticks often carry more than one thing, and the tests are different from the Lyme tests and the meds can be different too.
Are you taking anything else besides the azithromycin? I had to take Flagyl (metronidazole) with mine ... it's supposed to break open the cyst-like biofilms the Lyme bacteria create for themselves to hide from your immune system and the antibiotics.
Every doc is a bit different in what they prescribe when and for how long, so there's no absolute right or wrong. Depends on the doc and on your particular infections.
Its hard with having the lupus too cuse antibiotic make me flare. They aren't saying that I don't have lupus they are just saying that what is going on right now is not my lupus. Sorry, sometimes I can be alittle confusing. Yeah, he had me on a low dose of doxcycline of 50mg for the last 2 months and then he bumped me up to 100mg and my symptoms got to intense with swelling I had to back off again and I wasn't feeling better after 2 months of them. So now he wants to try um...... achomyacin?? Something like that. 250mg twice a day.
Hmm, that's interesting! Must be cutting edge stuff. That's encouraging.
I am guessing you were treated with steroids for the lupus. Then you say that when you were recently treated for lupus, your symptoms got much worse. The steroids work by suppressing your immune system, to stop your immune system from attacking your body, which is what I understand lupus does: an autoimmune disease.
Problem is: when you have a bacterial infection (Lyme is bacterial), turning down your immune system with steroid stops your body from killing the bacteria, and you get worse.
I am vaguely aware that lupus can be a tough diagnosis to arrive at, so it's interesting that 2 rheumies said you don't have it, but your other doc says you do.
Then on top of it to have a bacterial infection (or two or three), that complicates treatment, but it's not impossible. It's a matter of getting all your docs on the same page about what the game plan is. That can be hard to do when they don't all recognize that you may have a persistent bacterial infection.
Has the doc who told you about the mystery test result given you advice about treatment?
I am guessing you were treated with steroids for the lupus. Then you say that when you were recently treated for lupus, your symptoms got much worse. The steroids work by suppressing your immune system, to stop your immune system from attacking your body, which is what I understand lupus does: an autoimmune disease.
Problem is: when you have a bacterial infection (Lyme is bacterial), turning down your immune system with steroid stops your body from killing the bacteria, and you get worse.
I am vaguely aware that lupus can be a tough diagnosis to arrive at, so it's interesting that 2 rheumies said you don't have it, but your other doc says you do.
Then on top of it to have a bacterial infection (or two or three), that complicates treatment, but it's not impossible. It's a matter of getting all your docs on the same page about what the game plan is. That can be hard to do when they don't all recognize that you may have a persistent bacterial infection.
Has the doc who told you about the mystery test result given you advice about treatment?
What did he say.....? Its just known as a a numbered label, I can't think of the right wording he used.just known as some code yet cuse they haven't named it. No blood test of course just symtoms..... numerous. And my lupus was outruled by 2 reaumatologists. Even though I do have and have been treated very succesfully for 10 years for lupus flares but when they treated this for lupus it mulitiplied times 100. This has been been going on for 4 1/2 months now.
Then I wonder how the lab techs know how to report it to the doc ... y'know?
"New unnamed disease carried by mosquitoes and flies: POSITIVE"
Seems odd. Do you have a copy of the test results? If so, what do they say?
"New unnamed disease carried by mosquitoes and flies: POSITIVE"
Seems odd. Do you have a copy of the test results? If so, what do they say?
Hi --
Out of curiosity, what would that other disease be that's like Lyme but comes from mosquitoes? Always interested in new data.
The only things I've read about Lyme and dentistry is that Lyme can cause dental pain due to inflammation and irritation of the nerves running to the teeth. I also know that I don't tolerate stress (like from dental work) like I used to, so that could be a side effect ... but dental work that needs to be done needs to be done.
Best wishes! Let us know how it goes --
Out of curiosity, what would that other disease be that's like Lyme but comes from mosquitoes? Always interested in new data.
The only things I've read about Lyme and dentistry is that Lyme can cause dental pain due to inflammation and irritation of the nerves running to the teeth. I also know that I don't tolerate stress (like from dental work) like I used to, so that could be a side effect ... but dental work that needs to be done needs to be done.
Best wishes! Let us know how it goes --
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