lyme diagnosis but can't get antibiotics wtf

[krazieamc]

so i have been dealing health issues for the beeter part of 4yrs now. severe fatigue heart palps tachycardia but all ekgs come back fine, as of the last 4-6 months been forgetting where i am or why i went to wherever i might be tons of muscle ticks(yes pun intended), severely stiff neck that comes and goes, muscle fatigue/weakness, bad headaches, dizzyness. i'm sure there is more but i don't have all the symptoms all the time so.. anyway i finally found a dr (a naturopath) who mentioned lyme about 1 year ago so i slowly started getting tests done as i have no medical and must pay out of pocket. he convinced me to get the igennix lyme test got the results on mon the 12th of nov. he says i have lyme though doesnt meet the cdc criteria. now i find out he doesnt like to prescribe antibiotics and wants me to do soome 2 month detox program, get checked for heavy metal toxins and treat that if needed, also remove/replace any metal fillings then and only then would begin to actually kill of the da&n spirochetes. wtf! i have lost my job my house missed out on the first year of my daughters life and now can't get antibiotics? here are the results of the igenex test:

IGM                                    IGG
18kda = ++++                     18kda = -
23-25kda = IND                    23-25kda = -
28kda = -                            28kda = -
30kda = +                           30kda = -
31kda = +                           31kda = IND
34kda = ++                         34kda = -
39kda = IND                        39kda = IND
41kda = ++                         41kda = ++
45kda = -                            45kda = -
58kda = +++                       58kda = ++
66kda = -                            66kda = -
83-93kda = ++                    83-93kda = -
any and thoughts much appreciated thanx

[Ricobord]

I am so glad you're seeing a LLMD! That's great news!  I started out with azithromycin, too, but wasn't on it for very long. I think it's a good starter drug to avoid heavy herxing, but it's not a cure.  As soon as you plateau for a while on any drug, then it's time to switch up to a different one.  

Good call by your doc on the Bart. I tested positive for it and started on Rifampin a week after the Zith. I didn't have much herxing on it although my anxiety began to get better.  I really improved when I switched to Levaquin. It finished off the Bart for me. I think my case of Bart wasn't that bad.  

My Babesia, however, has been rather nasty.  I have definitely experienced chest wall pain as part of my herxing.  Right this moment, I feel uncomfortable "pressure" on my sternum. I've had some sharp pain, too.  When I had a nasty symptom flare of Babesia, my tachycardia bounced back up higher than it had in at least 8-10 months or so.  I looked it up and Babesia can indeed cause heart irregularities.  I was down to one of my beta blockers every day and a half, but now I am back up to one a day.  I also notice my heart rate is irregular when I don't feel good. It isn't arrythmia, it's just inconsistent beating, such as a few strong beats, followed by a 'normal' beat or two, followed by a few weak ones, and then big strong ones again.  The vertical bar on my finger pulse oximeter shows how variable it can be.

Are you taking a beta blocker. It definitely helps me. That and magnesium help soothe my irritated heart.

[cave76]

I had two separate trials of Rifampin and each one was horrific! I refused to take any more. (That's just me----some people can stand it.)

About colloidal silver:

This is from the National Center for Complementary and Alternative Medicine (NCCAM) about the use of colloidal silver:

http://nccam.nih.gov/health/silver

Another article by Tom Grier ("Tom Grier, M.S. Mr. Grier, a microbiologist who is a Lyme patient, writes about the complexities of Lyme disease in a simple, down-to-earth manner easily understood by all.")

http://www.lymeneteurope.org/info/real-concerns-about-colloidal-silver

The concern about argyria (where the skin turns blue) is real but to be truthful, I've not heard of that happening to the people who have used it. But it CAN happen and can't be reversed.

I know that people use it and claim it's beneficial. I won't use it though and not because of a fear of turning blue. :)

[krazieamc]

Well thank you for the responses. And its nice to hear when anyone successfully treats any of these darn things. If I'm being completely honest the last few days I have been being a wuss with the rifampin because the reaction is so bad but after some self induced motivation have my mind back on track to keep going with it. Haha. Also wanted to mention ashwagandha it has helped tons with my energy levels.

[mojogal]

My friend successfully is cured from Bart's.  I am cured from Babesia (I hope) but I would give anything to be done with Bart's since it affects me neurologically.

I take rifampin, and my first round was terrible herxing. I started at 150 MG and I am up to 300 MG twice a day.

Glad you found a good LLMD.

[JackieCalifornia]

I'm glad your doc is in the loop!  Sometimes people start freelancing in how they reduce or change their meds, and that way lies (more) misery.  Hang in there -- it's definitely a battle worth fighting against the bugs.

[krazieamc]

@jackie, yeah my dr said for now take one pill every other day is fine. when i initially told her about the reaction i was getting she thought it was just a reaction to the med. but since the majority of my symptoms have been cardiac related and chest pains and dizzyness i told her i believed it was herx and so she agreed to continue but to monitor reactions very closely.