painful muscles

[gorbybelle]

Hi, 'all'

I have 'over-done it' - at the weekend - I got a bit carried away in the garden - cutting hedges/grass etc; - I thought I had escaped the punishment!! - I am in agony today- neck/shoulders/ear pain - wandering/random stabbing pains - rib pain - thigh pain - I should have an 'epsom salts' bath or something but haven't the energy !!

I am seeing LLMD again on Monday  - I almost cancelled where I had been feeling so much better - especially mood wise - I should know better by now.

I have been doing 'deep breathing and relaxation' for the past few weeks - I highly recommend it for those of you who have bad anxiety and/or depression - I do it when I go to bed - it helps me drift of to sleep a lot easier - not saying it's a 'cure' but it is worth a try - it is free & healthy too !

having been reading [reminding myself] about the effects of 'stress' - I realise how the stress of having lyme disease can worsen or cause some of the symptoms - stress symptoms include - muscle pain/fatigue/acid reflux/insomnia/itchy skin/IBS /headaches/eye pain - etc, etc ;

I guess the flight or fight response is activated quite a bit with this 'wierd' illness - not knowing whats going to happen with your body from one hour to the next - not being able to get an absolute positive dx. - wondering how treatment will affect the body - it goes on - the uncertainties can sometimes become over-whelming - it has been that way for me at times anyway.

I guess for some folks here getting-up and going to do a days work must take a hell of a lot of effort - esp. on really bad days - I am lucky in that I only do a couple of hours work each day - even that takes a lot of effort just to get out the door - sometimes.

Ouch - the sides of my neck feels rock hard - its cracking and creaking at the slightest movement = I was pulling my ears and kind of making a circular movement earlier - even they were creaking and crunching!!

I hope all you 'lymies' out there are doing your best to look after yourselves - I try to picture 'us' all sometimes - getting on with are own different lives the best we can - coping with this horrible stuff - all down to that 'ugly little insect'
I guess 'we' more than most know never to underestimate the power of the small almost invisible creatures that share this planet.


take care everyone - don't forget to breath ! - the 'out' breath is more important than the 'in' ! - gorbs x

[Chatterbox58]

I didn't think that was enough... now what, can I go back on it?
Thanks again Gorbybelle, you take care also.

[gorbybelle]

just read your other post - no - one month of doxy is not enough - even 3 to 6 months isn't enough for a lot of folks with lyme.

it seems to be the case that the longer someone has had lyme the longer it takes to treat - I guess the bacteria multiply faster than they die-off.    

take care

[gorbybelle]

hi, yes - if you post a question - you should get more opinions/advice.

most 'lymies' recommend a lab. called 'Igenex' - you can google it or ask about it here - this is the most informative/best test for lyme - though it still doesn't always give a definitive answer.

take care

gorbs x

[Chatterbox58]

Gorbs, thank you so much for the advice, I appreciate it. When you say a new post do you mean post a question.  Maybe this is why I am not getting answers...lol I am commenting on others..ok thanks again and take care of yourself. Yes, my Dr, I think feels I am ok and I am not. Are there more testing that can be done.  I only had the one.  Thanks again...chatter

[gorbybelle]

hello, welcome to the lyme forum - it is my understanding that a month of antibiotic isn't long enough to eradicate all the lyme bacteria - especially if you were not  treated immediately after being bitten

as you had the rash come back - and also neck stiffness - I would say [I am not medically qualified] - you need more testing and  treatment for lyme

my blood counts are o.k. but everyone can have different symptoms/problems

it is likely that your 'eosinophils' could be elevated because of lyme bacteria

the best advice I can give you [if you haven't already done so] is to find a Lyme Literate Medical Doctor - known as LLMD. - these docs. know the whole picture of lyme ie;symptoms & treatments

I would urge you to seek treatment as quickly as possible - as the longer lyme is left untreated - the harder it is to eradicate all the bacteria - it is very good at hiding in the body.

Many mainstream docs. have the attitude that once you have had the initial course of antibiotics then you are 'cured' - which is not usually the case - and so will not do further tests or treatment - of course you may have a 'good doc.' - so I would perhaps talk to
him/her first about more tests - the tests for lyme are not always reliable - sometimes they can be 'negative' - when in fact the bacteria are still present.

you would be best to write a 'new post' so that you will get more response here - there are some very knowledgeable / helpful people on this forum - if you do need to locate an LLMD - there are folks here who can help you - I am in the U.K. .

there is no limits on how many times you 'post' here so if you have questions or want to share experiences, etc; feel free

gorbs x

[Chatterbox58]

Hello, I am fairly new at this.  I was diagnosed with Lyme a couple of years ago, was on doxy for a month, however I truly believe it hasn't helped.  Does your other blood counts go out of whack.  The latest with me is my eosinophils are elevated and am wondering if this has anything to do with lyme. I had a very stiff neck which affected my skull, it was terrible went to a rheumi, they sent me to rehab, that is much better.  Does the rash come and go once you have lyme?  I had  the rash a couple of years ago when I was diagnosed and then had another rash six months later with the neck issues.  I would appreciate any help?
Thanks
Chatterbox

[patsy10]

I overdid it recently too and am paying for it now.