Hello, I am new on here and was diagnosed with MSK in Feb. 2009. I have other serious medical conditions, but they are taken second seat to my kidney problems at the moment. I have had approx. 15 diagnosed and treated kidney infections in the past 21 months, most treated with oral and IV Cypro. I had bilateral stents placed for 6 weeks in Feb. 2009, at which time they removed many stones from both kidneys, found a lot of calcification in both kidneys, and a lot of scarring and narrowing in both tubes, more so in the right. I am suffering many complications due to this condition alone and it only seems to be getting worse. I have been on low-dose preventative antibiotics, to no avail and I suffer a lot of pain and tremendous bloating, and edema, high blood-pressure, tachycardia, and this is effecting the other health issues. One big problem is the edema in both legs, I also suffer from neuropathy and atrophy in both legs and hips, (now beginning in arms) and use a metal crutch to walk and a wheel chair. This is made worse by the fluid retention. I would like to be able to talk with people who are going thru similar things, or know people who have MSK. I would like to participate in research programs, and I am concerned about the hereditary factors, as well as the real possibility of dialysis and kidney transplants. I welcome any suggestions, comments, or directions and thank you all in advance.
From a concerned MSK Gramma.
Again< I apologize since the posts on this forum do not come to my inbox I have neglected you all! Please pm me with an e-mail address and I can send you some info and articles that can help you! I would be glad to help you all that I can. I do hope you made it over to our larger forum since we have so many great post and articles there
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