hi, how old is your son because u said something difficult to understand;
"When he was first diagnosed at 3 months of age, I was told that if the spots did not go away during adolesence he could get them on his organs, and I believe that is what causes his reaction to the son - that spots on his organs become inflamed and itchy and painful. "
so is this right, he is now older and has the spots show up on his genitals? (teen or older yet )
. . what meds has he been on
. . what did dr say ever about vitamin D or being in sunlight
. . have steroids been used
GOOD LUCK
Sorry for my misspelling "his reaction to the son" when I meant "his reaction to the sun". As I said, my son is an adult now; he was diagnosed at 3 months of age. He has never been on any meds or steroids, and the doctor never mentioned vitamin d or sunlight.