I was diagnosed with MSK about nine months ago. I've spent the past months trying to learn more about it, and also learn how to manage it better. I have chronic pain in my right flank which can range from simply annoying to reducing me to a sobbing puddle, although it usually doesn't get that bad too often. I would love to hear what you guys have come up with. Specifically:
Traditional pain meds that have helped (I've been on a slew already; right now I'm alternating between Vicoden and Tramadol, but I can't take either of them while I'm at work, or driving so I just have to suck it up all day)
Herbal or homeopathic meds/treatments you have found helpful. Is there anything I should be taking that would help support my kidneys?
Has anyone tried acupuncture for this?
I'm reading about Dr. Wolf's procedure, but I'm not sure what it is. Can anyone point me in the right direction for this?
Would doing some kind of "cleanse" be helpful? Has anyone done one that they would recommend? I'm borderline hypoglycemic, so I don't think I could tolerate a strict juice fast.
I just saw my nephrologist for my six-month check up (which I was three months late for, oops) and he says my kidneys are functioning quite well, and there's nothing he needs to treat. He says just manage the symptoms and try not to let it stress me out too much... which I understand, but it's hard not to get stressed about something that causes LOTS of pain EVERY DAY, and for which there is no cure.
I do not have any stones that I know of, and have not had any ever (again, that I know of).
I've had three yeast infections in the past year, one of which turned into thrush too. Has anyone else had this problem also? Nephro didn't think there was any connection. I wonder if my body is just distracted by dealing with the MSK and isn't paying enough attention to the flora and fauna.
I started taking Moxxor, a very expensive brand of omega oils at the beginning of the year. It made a BIG difference in my level of daily pain. I still have lots of pain, but at least now I can think that I may be able to live the rest of my life with it, where I had serious doubts about it before. There have been several times when I ran out, switched to another, cheaper, brand, or otherwise stopped taking it for a few days and every single time my pain level went back up. The doctors seem pretty skeptical about it, but they admit it won't hurt me at least. I now take another brand of cheap omega oils in addition, and this seems to help a tiny bit more. Any idea why this would work?
Sometimes just the thought of meat makes me feel sick to my stomach, and I am in no ways a vegetarian. Cheeseburgers are mother's milk to me :) Has anyone tried going totally vegetarian, and has it helped? I love meat, but I'm willing to try almost anything if it will help.
I see a pain specialist once a month, and he's tried me on a number of different pain meds. Some of them have been more helpful than others, but it seems like I often have to take so much that it makes me really sick to my stomach; sometimes laying by the toilet for hours in a cold sweat... and sometimes the pain is still there even then. Not to mention the fact that I can't get in a car at all on them. My entire life revolves around when I can get home, and stay there, so I can take some meds and finally get some relief. I feel like I'm missing out on so much of my life, and I don't want to have to live this way forever. I'm 27... I should be out partying and having fun :) Well, ok, I'm not a partyer, but I do miss out on a lot of family stuff, dinner with friends, etc, because I just can't leave the house. I feel like people get really sick of hearing about my kidney again, and I often get a cold shoulder from people at work who seem to think I'm using it as an excuse.
Speaking of which, has anyone found a good answer for why it hurts all the time when I don't have any evidence of stones, and never have? And why some people get pain with it and some don't?
Ok... I think this is enough for now. Thanks for letting me ask all my questions and letting me vent a bit. It's really good to find other people who have it too; it makes me feel less alone. And maybe we can all help each other too :) Thanks!