I have so many questions that I am now thinking of, a couple days after being diagnosed.
First of all some general information:
I am 19, I first developed UTI/Kidney Stone symptoms about a year ago and had some very painful episodes about once a month at least, for 6 months straight. I finally got a CT scan done and then I was diagnosed with sponge kidney. He didn't tell me if it was just one or both kidneys, I wasn't even thinking to ask that question. Can it be just one, or is it always both? My urologist also said that my back and flank pain probably isn't related to MSK but other people on here complain about the same issue. I'm pretty sure I also have IBS but I haven't been professionally diagnosed though, it is a pretty self explanatory disease and I know what causes flare ups in my IBS. Have any of you found a change in diet that really helps prevent kidney stones or flare ups? Will this get worse as I get older? Is there any chance that I will develop other small cysts in other areas now? Is it still OK to take fiber, probiotics, vitamins, and birth control? Is it OK to drink alcohol? I'm sure I will keep thinking of more questions as the days grow but these are all at the top of my head right now.
THANK YOU to ANYONE that can help answer these questions to the best of your ability. I guess I'm freaking out a little bit, just because I have flank and back pain almost every day (not excruciating but dull and achy), and I'm worried that it could get worse and lead to something else.