Tonya, I would be glad to call and talk to you. I am sorry to hear all your daugher is going through. I wish I could give you name but the truth is that no one is doing the research that we have together here. I personally have spent countless hours and intense time researching MSK and chronic pain, and treatment options.
I have research articles etc. that can help you but these are pdf articles that I can not post here, since we do have permission to do so. I do have permission to share them with patients for their own treatment.
below is one article I posted here on MEDHELP about treatment protocol we have found helpful. if you would like to talk by phone I can explain so much better and quicker. I have personally spoken with patients around the world like your daughter and do have info that can help her get the treatment she needs. Sadly we do have to be our own advocate. I am glad your daughter has you..., few doctors are trained in this area. You can send me message with your number and e-mail address and I would be glad to help you all I can.
Sorry we don't have many doctors claiming to specialize in this, but any doctor willing to learn and really look at the info. is a great doctor to have. Thankfully more and more patients are finding them though.....
Hopefully we can talk soon!