Menopause Community
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Perimenopause and MS like symptoms

I have been in what I believe is perimenopause for at least 2 years now. Many symptoms I am having strongly mimic MS. I have been to a Neuro., a Rheum., Obgyn. All tests have come back normal, even my hormone levels. I have numbness, tingling, intermittent pain (all predominantly on one side), extreme fatigue. The list could go on and on. My symptoms have progressively gotten worse since they began. At the time all of this began, I started to notice changes in my period, which made me believe it was all related to PM. Well, I have been to more docs in the past 2yrs than I probably have seen my entire life, and so far I am the healthiest/lousiest feeling person on the planet. All of my tests come back normal. Don't get me wrong, I am thankful my tests are normal, but wondering - can all of this be my crazy hormones??
20 Responses
983008 tn?1329929430
I'm newly diagnosed with MS and my first attack was last April, this coincided with me entering early menopause (last year I was just beginning, my recent blood tests show I'm now well into it) - I've often wondered if the MS brought on the early menopause - my neurologist says it's coincidence but I do wonder....and yes I agree hormones have an awful lot to answer for!!

Avatar universal
You and I are going thru the same thing.  Ms symptoms and menopause are very much alike and it is scary.  My doctor wants me to see a neurologist also for more testing.  My symptoms have become more and more prominent too.  I feel as though you do.  I am the healthiest/lousy feeling person with everything to be thankful for but can't get my body feeling right.  Scary isn't it and doctors say that hormones do not react that strongly but I have learned to disagree and talked to a nurse friend of mine that went through it and it was the worst time of her life.  She now coaches others and basically says your body can have any symptom it wants when your hormone levels are off.
Hang in there and keep in touch.
Avatar universal
Thats me..the healthiest  person on this earth acccording to all tests..but i feel totally off..always weak, wobbly, clammy. Just wish some test would come back abnormal so i could know what was going on.
Avatar universal
Make me #  4!!! Lots of normal tests, and yet  feel terrible for past 3 years!!! Never had any major health issues prior to "perimenopause". Now I feel like  a total hypochondriac..... can not wait to get thru all this!
I thank God for  a truly wonderful husband.. no one else seems to understand- epsecially NOT my drs. He remembers what I used to be like... and gives me hope I will feel good again.
Good luck and god bless all of you ladies!
Avatar universal
Thank you for all of your responses. I'm so sorry so many are experiencing the same symptoms. I also have been pretty healthy all of my life. I never get sick, and until now, hardly ever went to the doctor.
The thing that frustrates me so much is that I can't find one doc. that will admit any of my symptoms could possibly be hormonal. This of course elevates my anxiety level as I wonder what on earth it could possibly be.
I will be going back to the neuro. next month d/t increase in and new symptoms. I'm really scared, because my gut feeling tells me this could be MS even though the tests do not show it yet. I keep my gut feeling to myself pretty much because I'm afraid it makes me look even more like a hypochondriac. Thankfully, my neuro. takes my symptoms very seriously to the point that he has even referred me to other specialists to rule out all of the mimics. My former primary doc. treated me like I was a total nut job - lol.
My husband has also been very supportive, which I am so very thankful for. Without his support, I don't know what I would do. He has been great about taking me to dr. apts., running errands, etc... when I don't feel up to driving.
I just keep praying and hope to find an answer soon.
i got on this convo because I have been trying to figure out what my symptoms are related to. I had my last period in March of 2016 and just started HRT 2 weeks ago because i was thinking it might help my wierd symptoms. I've been slightly dizzy off and on for a few month like alittle off balance...not really spinny dizzy. and my legs feel jittery often and i have a bit of a headache off and on all day.  My sinuses due to allergies are the worse they've ever been.  I keep running into articles that say it might be MS but also see many that it might be menopause related.  The only difference is that many are mentioning perimenopause and not post menopause.  Any thoughts from any of you?
Avatar universal
Good luck to you!! I will praying you find an answer soon! keep us posted on your news!
1624411 tn?1299210547
I do have MS, at least thats what the docs told me, and I've had Hypothroidism for over 10 years, and it seems to be well controlled with Synthroid. With my MS I just started being numb in my legs and eventually not being able to walk. While in the hospital they gave me all kinds of awful tests, the worse was a spinal tap (recovering from that was worse than anything). Lately I've been dealing with hotflashes from the dark side and nausea, combined with fatigue. Personally, I'm sick of doctors and all their tests. If they can't fix the problem then why do they keep giving me tests and medicines that hurt and make me sick. I will say that my favorite medicine is steroids, they seem to help my MS better than any other medicine, but they can't be taken long term. There was a breakthrough on one kind of medicine, know as "The Walking Pill" but it was $1,056.00 for 30 - not kidding. So with that, I guess my fate would be a choice of either starving or walking good.

fig65, I'm praying for you and all your symptoms to be settled to your benefit.
Change your diet. I've been reading a lot on MS and the one thing they say is a plant based diet is very effective in treating MS.
Avatar universal
I have MS (only diagnosed last year) and am 48yo going through menopause or perimenopause for the last 4+ years. Feeling worse and worse with each year, yet ALWAYS the worst monepausal-type symptoms around period time.

Even my MS nurse tells me your MS can flare during a period or courtesy of hormones, well YIPPEEE.

Frankly my instinct is telling my that once menopause has completed its cycle of horror, I will feel relatively 'normal'. I am hoping that is sooner rather than later.

Currently I will ahve two regular 28 day cycles, which culminate in a massive nasty migraine on day 1 of a period, with token MS-type symptoms of dizziness, numbness and parethesia, wobbling around like a drunk etc. It eases off over a period of days (pardon the pun) as my period comes to an end.

Then I'll have a 60+ day cycle. Am on day 62 right now - longest since I was pregnant 15 years ago. Is this the end?? By the period cramps and threatenting migraine/MS for the last week I'd say no.

I want to ask my dr about those bio-identical hormone treatment creams. I cannot take HRT due to the nasty migraines and increased stroke risk....
Avatar universal
These posts made me smile. We are all in this boat together. Don't be too afraid if they tell you it's MS. I have it and for ME, it's managable. I think all of us should write a book about this curse.
Avatar universal
I have also been going through a list of over twenty symptoms, had all kinds of blood work, holter monitor, MRI and the doc is looking at menopause....???  Really?  Do any of you have heart rates that exceed 100 beats per minute for over 5 weeks, non-stop?  OR blood pressure that ranges from 50/26 to 180/100? and drastically changes in a "heart beat?" Or had such extreme pressure on the head, not head ache but feeling like your head is in a vice?  EXTREME hot to freezing cold?  the hot part fits menopause, but I've never heard my mom or friends say that they got ice cold to the touch (and turned whitish/grey)  So I'd be interested in knowing if any of you have also had these symptoms?  
Avatar universal
something I am checking into, maybe you should google for yourself, and is very under diagnosed & unrecognized by the medical community is Adrenal Fatigue, has many/most of the same symptoms, easily treated...check it out.  I'm frustrated with the doctors & lack of answers or relief, so I am going to try the adrenal support supplements to see if there's improvement.  I wish you luck.
Avatar universal
How long do the menopause symptoms last that mimic MS? I've been dealing with them for about 18 months. No period for about 7 months. I've had loads of tests but have not yet taken the plunge to test for MS. I'm still walking although right side constantly weak from neck to toes. It is very scary & you do feel like you are crazy. We really need a national database that tracks symptoms so we can normalize some of this. It is ridiculous that medical professionals do not understand or acknowledge something that 50% of the population experiences. Statistically it is probably the most common medical condition on the planet...yet it is ignored!
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