I will be seeing a top hormone doctor next week in the states regarding my on going struggles. I will update everyone on the progress.
Can you explain what you mean by getting "thinner" and the pain? Where does the pain come from and what is it like? I do get testicular pain now and again due to the varicocele and sometimes tingling in the penis head/glans which can be painful at times.
I'm still suffering with this condition.
I belive it started when my girlfriend penetrated me with a vibrating anal sex toy.
I believe I have done some damage either physical damage to my bowl or prostrate or altered my testosterone production causing my penis to shrink.
I also have noticed I am losing my hair also. Could this be down to low testosterone levels?
I also has a swollen stomahe and IBS. All caused from some harmless sex play.
Doctors have been so far no help but I am going back shortly. I beleve it's getting worse.
Megazoid, the best I can explain it is that it's like a slowly-deflating balloon, or that my penis is wasting away.
The circumference is around 2cm less than it was about 10 years ago and lately it's seemed like the length is shrinking too, which really freaks me out.
I experience short, sharp shooting pains in the penis most day as well as a dull ache from time to time. I also have a painful itching sensation from within the penis itself.
To the guy who questioned whether or not this could happen - you aint alone in being skeptical man. The original topic saw several people report they've suffered similar problems but that every doctor they've spoken to have dismissed thier concerns and said this simply couldn't happen.
That's certainly been my experience as three Urologists have told me they can think of no reason why this would be happening.
Are you referring to Dr. Crisler? If so, I plan to see him pending the results from the MRI I am having tomorrow. 7 months ago there was a pituitary micro adenoma found measuring 5.0 X 8.0 CM. This is a follow up to see if it has grown.
Since last I talked to you, I severely crashed after trying my liquid-nolvadex run for a week, which resulted in a rock bottom depression and suicide attempt. I don't want to elict responses of how bad it is to do that...I know, but it's hard for people to understand how it feels and what you go through. Thank God, my wife found me soon after I had injested the pills. I was put in a behavioral health hospital for 2 weeks and have since been discharged with a mood barely above that rock bottom. My life is a living Hell as well and it is damn hard to deal with as you know. I'm not sure why the Nolva run crashed me as it did...but can only speculate that using 50mg/day for a week and suddenly quitting revved up LH production and then dropped bottom wrecking havoc to my HPTA. Not sure, but it definitely did me in. It is only now (1 month) that I'm beginning to return slowly back to normal (the old less than adequate normal)
Firstly I am glad this discussion is still open, we all need to get to the bottom of this horrible disorder, I still don't know what can actually make the penis shrink SO BAD that it feels like it is wasting away, we are all young men and deserve to know exactly what it is. it just isn't right to live like this
I empathise because this doesn't get much better by the day and I am finding myself on the verge of complete ED, the best I can hope for is a day were it is moderate and I get a little labido 1/2 erections etc - it is beyond a joke.
I get a lot of suicide ideation vaiisking, I know how you feel and am glad you are still with us. We need to remember no matter what caused it this is a hormonal problem and we need to see the best doctors to deal with it. If you do a search on the symptoms of conditions such as adrenal fatigue, low testosterone and hypothyroidism it is ridiculous, I would say just as bad as any other terrible illness. The thing is all these hormones work together i.e. adrenal fatigue will mess up your thyroid functon so any benefits through stimulants etc may be short lived because our endocrine systems are basically not tuned up like they should be or were.
There is a pupil test you can do on yourself by flashing a penlight or something from the side (not the front) towards your pupils in a darkened room. With healthy adrenals, your pupils will constrict, and will stay small the entire time you shine the light from the side. In adrenal fatigue, the pupil will get small, but it will soon enlarge again or obviously flutter in it
i have the same conditon.when i sit down especially lying down i sometimes feel ok.
i had all kinds of blood test done.
i had all hormone tests done including testosterone and thyroid
i also had urine tests and ultrasound
the results all came normal.
i think my hernia can cause this.
after i go to toilet to do my **** (i am sorry i dont how to say it in a kind way),i feel so good down there.
it also hurts when i masturbate or after my masturbation finishes. it usually starts from bottom right side and goes to left side.
sometimes after i masturbate i get very very strong pain from all my testicles that i cant even stand, sit or touch it.it hurts so much and can stay for two three hours.
so, my only question is all my tests came out as normal. so can my hernia cause this problem?
and can this be because of adrenal fatigue as i havent done any tests for it?
thanks a lot!!!
hi caniken, what you need to remember is that you know your body better than anyone else, especially all things below the belt! If you feel ok flaccid when you are relaxed sitting/lying down in your frontroom or whatever and then when you walk around feel your penis atrophy to the size of your thumb there has to be something not right with this. When I didn't have these symptoms I used to feel like I was walking around with a semi-erection almost, maybe as is expected in your late teens, early 20s. My GP didn't understand lacking sensation/feeling libido and said this was all in my head and would only do basic tests because I insisted. Taking viagra although this may help in the short-term is just papering over the cracks of what is really going on here.
All blood tests I had came back "normal" but that doesn't mean it is normal for "you" For instance my TSH was 2.5 and falls within normal range but to a good doctor anything over 2 could be considered hypothyroid and they would start to treat the patient based on their symptoms and not just a lab result that falls within a range. For thyroid the TSH range is 0.3 - 3.0 to look for hyper or hypo symptoms. It is also important to get the results of your actual active thyroid hormones Free T3 and T4 levels and see where these are sitting along with thyroid antibodies (anti-TPO and TgAb) and Ferritin plus adrenals. Basically the full thyroid panel bloodwork and also try and get a saliva test kit for your adrenals to check cortisol over 24 hours. You may also want to check things like Progesterone, Dhea, Estradiol, SHBG and DHT. The next time I get bloodwork it won't be through my GP so I will have more than my TSH to speak of. This is released by your pituitary gland to stimulate your thyroid to produce more hormones. This can be a good indicator of hypothyroidism/ pituitary problems but also misleading depending on your doctors ability at reading labs especially when tested alone and not taking things like Free T3 into consideration
This isn't all about sex hormones, you can have good testosterone levels but still have no libido. Thyroid hormone is partly responsible for increasing your mood, sperm production, energy levels and even increases testosterone production in the testes - where there are thyroid hormone receptor cells. When you are at optimal levels this is very important for maintaining libido. The testes also release Thyroid Releasing Hormone (TRH)
Adrenal Fatigue/Deficiency can kill libido and you need to get this sorted out first. If you find your labs are sitting low/normal for cortisol, progesterone and DHEA then this is a red flag for sluggish adrenals. Along with the many symptoms like anxiety, lack of enthusiasm, libido etc that can't be ignored. Cortisol helps cell receptors receive thyroid hormones from the blood to the cells so this can cause all kinds of problems if you are deficient in this
The hernia may have started this by knocking your hormone harmony ratio out of balance so to speak. If you post up your lab results with the reference ranges I am sure someone like megazoid will give you greater insight on how your hormones are working together. Estradiol being to low or high can stop libido also but I think it is very possible your adrenals and possibly thyroid function has been messed up, possibly due to the hernia. It is like having a car without an engine and once this is fixed everything else may fall into place. It is also essential to get a good doctor
I would also again like to send my best regards to vaiisking and pray everyone gets the answers they are looking for
I finally managed to get some time to reply to this thread. It's difficult for me both to deal and listen to other's coping with this disease, simply because i am a very emotional person and it hurt's me to see good people like vaiisking being driven to suicide due to this terrible, terrible condition.
Please let me reply:
vaiisking - I am very glad you are still with us, you are a good man and one of the few people that contacted me personally on another forum. No word's can describe how i felt when i read your post, i am just glad you are here to post again. You need to stay strong and beat this with the rest of us, i have felt strongly suicidal myself so i know what it's like. We all deserve to beat this.
Dr John is an outstanding Dr and i feel confident that he will fix you up. I am going to see Dr Marianco myself, i have had allot of personal contact with him over the past year or so and he know's my case well. My problem isn't testosterone alone but also thyroid (hypothyroid like cjones) and maybe adrenals. I need to get everything checked in full because my condition is very complex. Both Dr John and Dr M are among the best doctors in the world for treating these kind of problems.
Your own case is also very complex, a possible theroy is that nolvadex caused a E2 surge when stopped. Nolvadex dosen't stop E2 armotization at the liver level but rather acts as a SERM which effects breast tissue, areas of the brain, etc. When you stopped nolvadex a surge in E2 probably happened which triggered a down regulation of LH, TSH and caused a negative feedback loop to occur. Because your piturity is dysfunctional (most likely like my testicles) then you're going to get strange reactions from drugs like this.
man im glad that you guys are hear .im not much of a right er but feel all of you .look at me ive beeen having ed and now after trt i have lost most of my balls this sucks i trying to not to loss my mind . that was the thing that was going to fix the problem .i dont have health care and have been paying $ 240.00 a month for my balls to not be what that have been (rad ).im a good looking guy and was fun thats agreat thing to say .check me out do you want to just hold me im a gerat but i dont act like a man no more .i hate like now i did nt want to talk sad to any of you but i cant say thius to any one so hear i am i did not sleep on my side before the trt it would hurt my balls now things arent any beeeter .will as life has it once a big dog but what am i now lost .i can be with a lot of gerat ladys but ho want this looks right but no drive wow thats hot .lets not ever have sex good plan !!!!! im a road dog with no health care just what i can pay.sorry about the bad writing ive been drinking and am going bed with my self not that i have to but what am i going to do like lets hang out so we can fell wird i cant do this to myself any more .if i have time ill tell you guys the rest fo my story tomorro trying to chill 421 just got to go to bed . thank you all for being here
normally i do not get any erections night time when i am asleep. sometimes (hwever it is very rarely) i get semi erections night times. but last night i slept on a sofa in my living room. and i put my legs up the side of the sofa. because you know my sofa has high sides.so i felt a lot of erections during the night. i remember this also happened again before. that time i slept in the sofa too and because i had no choice i needed to put my legs up of the sofa.
maybe you shoud try to do the same night time when you go to sleep.put your legs up on to something. and see if you get erections during the sleep.
Thyroid is related to body temperature, blood flow etc so I would assume that is why we feel the benefit of being sat down, quite literally
I basically have bad ED along with all the anxiety and horrible **** that goes with living with this. I can't get turned on properly at all and just seem to get 1/2 erections through the day when I train my mind to sexual thoughts as I assume this is of some help to this illness. When I masturbate I have to literally psyche myself up and massage my penis for what seems an eternity to get any kind of erection that just seems to serve the purpose of forcing out an early ejaculation. It is that bad I feel like it is a schedule of how dysfunctional I am day to day
Are any of you taking ED drugs like cialis to aid blood flow and erections? This is longer lasting than viagra and may be of some benefit so we don't avoid situations that can lead to sex completely and even get some morning wood back. The celibacy symptom is certainly no fun
That is true for sensation/feeling down there hence the healthier flaccid appearance of your penis aiding erections. However this won't last and unless you address the thyroid/adrenals hormone issues you won't regain your confidence and quality of life. I find the constipation, hard stools and anxiety a real worry and know my body is letting me know that I am not right. These problems can give you muscular atrophy in the prostate area, slow everything down and mess up your brain chemistry leading to severe depression. Not to mention all the other types of illness hormone deficiencies can mimic, that is obviously very bad for your mental health and health anxiety may even be a symptom on a long ridiculous list
I would highly recommend you watch this. It is an interview on Australian television with the author of "Running On Empty" that is a book on hypothyroidism and thyroid conditions. This woman speaks from personal experience and speaks of being totally dysfunctional due to this
Guys thanks so much for the support and kind words. It is definitely a hard thing to deal with, but as most things do...time heals. I am a little better now than I was...at least stable.
Megazoid, I though Marianco was Dr Crisler. If not, who is Dr Crisler on the Meso boards? Also, I had actually preferred to see Marianco after reading his posts there.
The strange thing about me crashing is that the Nolva run actually seemed to work. While I was on it, I felt fine except getting extreme headaches. After I suddenly quit was when I crashed quickly. On a side note, while in the behavioral hospital for the two weeks,
the psychiatrist tending me agreed to test my T, E2, FSH, LH. The
results post Nolva were:
So, it doesn't seem that there was a LH drop in fact there was an increase. The pre Nolva numbers were:
Just don't understand why stopping the 50mg/day liquid Nolva did what it did with those numbers two weeks after stopping.
i have another strange symptom. when i masturbate i loose my testicles sensation. it is like i dont have testicles. it feels like really relaxed and nothing in there.
does it happen to you as well?
just wanted to say whats up.still working on this .feeling a little better.i,ve been trying to stop smoking (fUN) and started work out agin .still off of the trt.HAY I FOUND A SITE THEAT SEEMS TO BE GOOD TALK WITH SOME OF THESE PROBELMS ITS HESLTH BOARDS.MEGAZOID I HAVE ANSWERS THAT YOU ASKED FOR WHEN IS YOUR NEXT SET OF ???????.my peinis is not as hard .the head does not seem to swell up and bellow the head is more nearrow.it dos go soft when im erect has to have continuse stimulating .it's shrunk up the most when im active are if something is hurting me or im scard. 2)not sure on ? but when im pooing and after pooing do seem to get some what of a erection mostlee at the base .end is still thin feels irratated after pooing. 3)i can still get erection with alot of stimulating .some times in my sleepto but not fully hard i can force blood in to my pieins when erect cant maintain a erection very offten with out consitient stimulation. warm enviroment does no seem to help.
4)just in head and bellow the head i do have poor sensation and reduced erect size.no dry skin.5)egg timer?i think i know what you are talking about.im thicker at the base and thiner at the tip.6) dont know why i have hypogonadism was'nt tested for anything execpt t lh and fsh. not sure if i have a throid problem.im ether hot or cold.shin is good .for sure not happy you can see why.7)did not notice testis pulling tight or feeling less full or soft till i started androgel thay did hang down most of the time if i was cold thaty pull up.since i've quit using the androgel thay seem to hang down .i feel like if i was kicked in the balls it would not hurt like it would have before and i did have pain i n my left testisicl for about 3 years .but after starting the androgel and a cleanse for yeast the pain has gone.8) my scrotom does seem thiner and less seinstive 9) very little libido. i did feel that way sometime back.when i started to have problems.10)pieins does not fell lose at base.11)i have been experincing atropey of the testis.this is what is starting to reely freak me out.12)havent used vigar in a long time but when i was using it i was taking a lot of supplements too.but did try levia and ciulas and did not seem to help alot.i hope that i ansrewd your ?? if you have any ?? about my anwsers just ask .i thank you for all of the info you have put here its lead me to some help. 421 keep working on the puzzale.did you go to the U.S.i know alot more about this problem and still learning .got to get back to life .sitting around being sad and getting fat not going to fix it. it sucks that the frist froum is gone thare was a lot fo good info on it . problem
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