Mesothelioma Community
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Avatar universal

Benign pelvic mesothelioma

I am 35(f)  and have benign pelvic mesothelioma,  I understand this is a rare condition and would be interested to hear from anybody else that may have this condition.

I have had two laparotomys but the disease has came back roughly four weeks later after both operations.

6 Responses
Avatar universal
I am 49(f) and was diagnosed in 2000 with multicystic benign mesothelioma of the peritoneum. I have had 7 major surgeries related to disease. You are the first person I have encountered with this. I have been searching & researching  for years. Apparently it is very rare. Glad to share any information and or experiences if you'd like.
1865997 tn?1320085018
I'm really sorry to heard about your condition, however You may have a legal claim for it. You can contact ***@**** or ***@**** , am pretty sure they can help you ,as they did with my grandfather. Hope this info will help you out.
Avatar universal
hi. what symptoms do you get with multicystic benign mesothelioma. Im really worried about a relative.
Avatar universal
symptoms vary. usually it's abdominal distention, pain, and extreme discomfort  when pressure applied to abdomen. I've had as many as 20 tumors in abdomen at one time. my pain usually starts in one area where a tumor attaches to my colon. I've had to have it re-sectioned numerous times. also, loss of appetite & nausea are present. the best advice is for your relative to see a doctor and get a ct scan. I hope this helps.
Avatar universal
only just seen your reply...many thanks.
Avatar universal
My son was 4 when he was diagnosed with benign cystic mesothelioma. He had 75 percent of the cists removed but they left the rest. Does anybody  know how this occur and what lies ahead?
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