Hello to all I have posted this qustion in the Neuro Forum also but can use any help I can get.
I have been a member of the MS Forum for a few months now but since my DX I came here in hopes to get some answers.
I have had some stroke like symptoms that have lasted since February of this year. It started with the left side of my face and a mild headache at the top/center front of my head at the hairline. All symptoms were typical of Bell's Palsy except I could wrinkle my forehead. I was Dx w/ Bell's Palsy but the Neuro that DX me questioned it about a couple of weeks in. My Right Eye would twitch, I had extreme exhaustion, and I started to have pain in my right forearm (from my elbow to my wrist.) After a month and a half and my Symptoms improving about 85%. I developed a total weakness on the left side of my body. After a week, muscles spasms started and eventually moved from the left side to also affecting the right, in various places. I have nerve pain/ burning. As well as developed migraines that were consistent and on going for about a month on the left side of my head. 6 months from the start and 3 Neuro's, I have been dx with Complex Migraines w/ possible mini stroke. I still get sever muscle spasms throughout my body, Migraines come and go. I have kept a Diary but still have yet to find a trigger as to what is setting them off. I have on many occasions waked with a migraine in the morning. I take Relpax at the start of a migraine if I am able to catch it in time. I am also on Lyrica for the nerve pain. I have had 2 MRI of my Brain w/without contrast, no lesions were found. As well as a MRI of my neck and spine, also came out normal. I have had an LP with low protein levels and an increased ANA but was told it was nothing to be concerned with. So after all blood test an angiogram and EKG, MS was ruled out along with cerebral vasculitious.
With my Dx of Complex migraines at what point should my symptoms go away? I have had issues for over 6 months now. Is there anything else that I can take, or do to help with my recovery? I also questioned whether or not to ask my Neuro about putting me on Topamax to help get the migraines under control. Is this an option for a sufferer of complex migraines? Also since my LP didn't show signs of MS and my MRI's showed no lesions am I safe to say that this is not MS and I will not have it in the future? I have had, at one time or another just about every symptom listed for MS. My brother was Dx with MS 5 years ago and he is a year and 1/2 younger than I.
Please help with any information that you have. I have yet to find much information on Complex Migraines and feel that I need to learn more about them.
Thank you,
Aura