I've never heard of her diagnosis.I'm going to look it up to understand it.I'm glad she is getting some relief.If you click on my name you can do a "friend request".I'd love to stay in touch if you're interested.That way we can just message each other on occasion.Many hugs to you both.
How strange that your daughter had sinus surgery and now has terrible migraines....it sounds similar to my 16 year old son and he has had the same migraine for over 3 months - with numbness in the arms and legs....after many c-scans and MRI's we still don't have an answer. Now he is dealing with severe depression from the pain.
Took her for a second opinion because she was not improving. The child neurologist said she has postural orthostetic tachachardia. (sorry for the spelling) She has had to lay down flat on her back with her feet elevated and we are giving her sodium tablets. Seems to be working. Now that we know what it is, we just have to find the cause. Thanks for remembering us!
If you're on the forum I'm just wondering how your daughter is doing?
Gawd,I am so sorry for both of you.I don't know what DHE is though.I know this is going to sound weird but if there is any way you can get a book on reflexology it will have pictures in it and there are spots on your feet that are directly connected to headaches.You could do it yourself.I got a book and when I can talk my husband or son into it they will massage the areas for me.I guess since shes in the hospital they are doing everything medical.Massage certainly couldn't hurt.It might help relax her at any rate.Please update on here so I know how she's doing.A big hug to you too.
She takes topamax daily, she also has imitrex and migrinol for immediate relief. She has been hospitalized for 8 days now. They have tried DHE for 5 days, magnesium and Riboflavin, they have tried zanaflex and various other meds in combination with tylenol and motrin. The headache is worse than ever. It gets worse when she sits or stands. It is horrible for her.
I've had migraines for 15 years.They have ranged from irritating but manageable to knock me on my butt wanna die kind of migraines.I've had them last a day to 15 days straight.I don't know what doctors think about migraine meds for kids but I take imitrex and for the really bad ones I take fiornal with codeine.After years of suffering and this last year was the worst I decided to try some other things.My husbands gramma has done reflexology for 25 years and I started going to her for treatments.They helped alot because they are so relaxing.I also started getting accupuncture.I think it has done the most good.I use to wake up every morning with a migraine.My upper back hurt and I just wanted to cry.I found a medical doctor who does it because that is the only way my insurance would pay and I'm thrilled with the results.I go every 2 to 3 weeks.I get 8 needles on my upper back and 8 needles on my lower back.Then he hooks them up to some things that send very mild electrical charges into my body.It feels like a very light tapping.I still have to take my meds now and again but I haven't suffered like I was earlier in the year.I can go days without one now whereas before it was on a daily basis.I hope your daughter can find relief because I know that she can't have a quality life while she suffers these headaches.Give her a big hug from another mom.