I suffered a blunt force head injury on the 1st June 2017 resulting in a concussion followed by whiplash on a rollercoaster on the 10th June 2017. Since then, I have continuously experienced a feeling of excessive brain movement accompanied with an intense stabbing pain with any sudden head movement. I have made over 15 visits to a GP, hospital or private consultant accompanied by 4 MRI scans and 1 CT scan but frustratingly none of these tests or consultations have so far provided any worthwhile proximity to a realistic explanation or respite from the symptoms I have suffered continuously for the past 8 months.
Any minor sudden motion or G-force acceleration of the head (bouncing / jolting / reflex twitch) presents an intense stabbing pain in the forward and rebound direction that my brain moves. It feels like there is excessive and delayed movement of the brain out of sync with the skull. After a typical car journey, jog or long walk the repeated "pounding" of my brain can build up to make me feel very disorientated / drunk. Even shaking someone’s hand firmly or gently shaking my head sided to side when saying "no" can transfer excessive jolting motion to my head and give me pain. Most commonly the bouncing pain from driving over road imperfections is transferred to the top of my head and the base of the skull. The sensation from the bouncing motion feels like my brain is "tugging" on the surrounding structures. I could no longer tolerate the firmer suspension in my sports car and have had to change to an SUV with adapted comfort suspension. However this is still not enough and every journey feels like I’m in a boxing match taking repeated beatings to the head – each jarring motion presents a momentary lapse in cognitive awareness.
I also experience a disproportionate amount of pain from minor small bumps to the head, triggering an intense localised migraine at the impact site which can last for weeks. During these times of pain, cognitive functioning and memory becomes more noticeably impaired and I struggle to comprehend typical every day tasks or conversations. These triggered migraines are sustained regardless of position or activity and do not respond to any pain medication. My vulnerability to mental and physical fatigue has also increased. I have been prescribed Naproxen and Cocodamol, along with everything else over the counter, as well as acupuncture and spinal physiotherapy.
I feel like I have exhausted all possible options and am constantly fed nonsense from doctors in the absence of text-book explanations. I have always remained firm in my belief that there is some form of mechanical impairment to the cushioning of the brain and my subsequent research into low intracranial pressure has revealed surprising alignment with the nature, triggers and traumatic history of my symptoms. However my doctors are not willing to consider this as my MRI results have been normal – but this way of life isn’t such. The past 8 months have felt like I have been “surviving” rather than living – operating in auto-pilot mode.
I’m desperate for help and no one seems to take me seriously