Wanted to add, just got results back from blood works, all normal. I am not totally convinced its FHM, when Im not having a headache I get muscle weakness, twitching & spasms.
Please could someone explain how FHM can be diagnosed however it doesnt explain the other stuff?
Hi there, I have recently been diagnosed as having Hemiplegic Migraine due to suffering with dreadful neurological symptoms for the past 5 years. I am 51 and was originally diagnosed as having had a Brain Stem CVA at my first collapse in 2003. I was rushed to hospital with right sided weakness, severe vertigo, nausea, hearing loss and co-ordination problems, also problems with thought process which rendered it difficult to have a conversation at times. The main bulk of my symptoms lasted months and months, but all my tests ie. MRI's, TOE, nerve conduction studies, blood tests, were all negative. It was thought i had one of the following MS, ME, Peripheral Neuropathy, Lupus etc, but due to ALL my tests over 4 yrs came back negative, it was decided last November 07, on seeing a different Neurologist, he came up with HM. He is not sure whether it's familial or sporadic as both my parents died 12 or more years ago. I am due to see him again in March so hopefully he will be able to discuss the possibility of doing a blood test to see if this is genetic as my 21 yr old son suffers with dreadful migraine as well. I have been doing lots of research and from what i have read, FHM is caused by a genetic mutation, where as SHM can be caused by head trauma or stroke. I am not medically trained in any way, so please dont quote me on this, it is purely what i have read up on. If you just type in http//:www.geneclinics.org in the search bar it should help.
Have the docs check YOUR HEART ! Most patients with this type of migraine have a heart issue.
MVP and small holes in the heart can cause migraines-
talk to your cardiologist as well as your neuro doc
Also get checked for lupus and chronic fatigue sydrome.