Headaches for 4 yrs.

[lanmar4551]

My daughter has non-stop headaches to the point where she basically is either bedridden and housebound much of time. Her ears also leak fluid. Any help would be GREATLY appreciated. She also has Tuberous Sclorisis!

[Dr Santos]

Hi,
How is your daughter? Tuberous sclerosis is a rare genetic disease that causes benign tumors to grow in the brain and on other vital organs affecting the central nervous system. There are different types of this condition and her headache may be related to this.  If her ear is leaking fluid, an infection may be present and antibiotic management may be indicated, you may need to have this evaluated further.
The prognosis for individuals with tuberous sclerosis depends on the severity of symptoms. That is why constant follow-up with her doctors is highly recommended. Take care and best regards.

[lanmar4551]

CAT scans, MRI's you name it and she has had it done.

[shanmomof3]

has she had an mri done?