Have u been diagnosed with migraines? Sounds as if u need to try a few prescription migraine medications. I take Maxalt Mlt for my most severe headaches.
First has anyone ever checked you for food allergies or intolerances gluten(wheat, barley, rye) and dairy are huge migraine triggers. (some other triggers can include nitrates/nitrites-- processed meat, high fructose corn syrup, caffeine, soy, nuts, and sulfates/sulfites) You might want to keep a food diary if you have done so in the past. Also if you have anything w/artificial sweetener this could cause all your symptoms. (I cannot even have a 1/2 piece of sugarless gum.) By the way there is artificial sweetener in Maxalt. Third have you had a MRI? Also has anyone ever considered the possibility of endometriosis or if you are taking it-- birth control? I know my endo is back when my migraines get worse.
I hope this helps,
In addition to what achillies wrote here are a couple of more thoughts to consider:
1) Have you had a good thorough blood test panel so that your thyroid and other organs could be evaluated? While there are many good Doctors in Family Medicine, it would be good to find one that is certified in that area such as endocrinologist or a Doctor that thoroughly believes in blood screenings. My familiy doctor is one who thoroughly believes in these tests and actually is the testing medical director for his group practice.
2) Have you ever suffered any type of head concussion or head injury?
3) Do you spend time in the sun? I notice you are from Arizona and I recall seeing quite a few individuals from there and Florida who have sun induced headaches - this is no joke for some people.
Thank you all for your posts. I'm writing this while I sit in the ER for my 3rd time in 3 weeks, hooked up to my "migraine cocktail" of diluaded, zofran, toradol, & decadron. I don't even know what the last 2 are, but I'm finally headache free, at least for awhile. It always comes back several hours after this IV.
To answer your questions, I have had a CT of my head with contrast, but no MRI. Should i request this? Its so difficult here in the hospital to get any explanation from the doctors, they just give me drugs and rush me out of here.
They have drawn blood, my paperwork shows a "CBC with Diff" and apparently that was normal. I will ask for the thyroid & organ check- thank you for the suggestion.
I have no head injury, but I do take Loestrin (birth control pill). As far as sun exposure, I do not try to get sun, but I drive around making deliveries for work, so I am in and out of my car all day. It's hard to tell if I get heat headaches, because I have them everyday.
Thanks for the food allergy suggestion. I have never been tested. How do I have that done.
I appreciate your help so much. I'm sure many of you can relate, but I am
at my wits end and so frustrated with the never ending pain.
First you can get your gluten antibodies tested-- blood test for Celiacs. (But even if it comes up negative that does not mean that you can have gluten.) The golden standard is an upper endoscopy by and gastroenterologist. If even that comes back negative after than you can try a gluten free diet and see how you feel.
To check for food allergies your best bet is an allergist immunologist. Some test the blood while others do a skin test.
When you get your thyroid tested be sure to that includes testing free T3 and thyroid anitbodies.
A MRI gives a more detail picture of the brain than CT scan so that is something you might want to consider.
As far as birth control that can be a huge migraine trigger. I must avoid all birth control.
I hope this helps,
Hi. So sorry to hear of all your problems... I could have written your post!
I was wondering if you have ever heard of Hemicrania continua? It is a very rare, unilateral (one sided) headache that varies in intensity. It can cause pain in the eye, watering, a feeling of grit or sand in the eye, stuffy nose, runny nose, pain in the head, face, upper neck that can be a dull pain that is interspersed with sharp, stabbing pains in the face. Numbness, slurring, etc can also be present. It does not respond to narcotic medication or triptans. It is usually diagnosed after 3 months of pain, at least. It responds very well to Indomethacin, an anti-inflammatory medication that is usually prescribed for gout or severe arthritis. My understanding is that the inflammation causes pressure on a vascular nerve, which triggers the pain and other symptoms. Very few neuros are familiar with this disorder and you need to find a neuro that specializes in head pain, usually at a teaching hospital. In average, it takes 6 different drs before it is diagnosed, with an average time before diagnosis of 3 years.
I am 45, have had migraines with aura since puberty. I have never been able to take any type of birth control med because of the head pain that
follows. I had a significant increase in migraines as I reached my 40's. After a complete hysterectomy 3 years ago, I developed this condition. I was diagnosed about three weeks ago, after my first hemiplegic migraine. I was started on the Indomethacin and had a complete pain free week for the first time in three years!! However, the pain has returned to some degree (iI was warned of this happening while the correct dosage was obtained to keep me pain free) and am now on 25 mgs 5x/day. I will probably increase to 200-225mgs/ day before I am done. Just to let you know, I have done the topamax, imitrex, neurontin, nortriptyline, epidural, botox, etc route and NONE have worked like the Indometacin. It can be very hard on your stomach, but if you do it slowly and be sure to take with food, as well as a prescriprion antacid, it can be done.
I hope this isn't too long, just wanted to let you know what I, as a fellow sufferer, have found out through all of my research and personal experiences.
I wish you well in your journey to be pain free. Let me know if I can help.
You can also do the "Elimination diet". Remember, the food for one can be the poison for other. This diet suggests eliminating Soy, dairy, eggs, corn, gluten, yeast, for at least 3.5 weeks and then incorporate one by one, monitor and observe yourself, but to get a better understanding of this diet, see a nutritionist
This will explain better The Elimination diet:
An elimination diet involves removing specific foods from your diet that may be causing allergy symptoms. Common allergenic foods include soy, dairy, eggs, fish, shellfish, caffeine, wheat and nuts.
Elimination diets typically involve removing suspected foods for a period of time (from two weeks to a few months) and observing if the symptoms improve. If the symptoms resolve, the foods are reintroduced back into the diet one at a time to see whether the symptoms reappear. Keeping a food diary is suggested to record any adverse reactions after eating the eliminated foods.
True food allergies can affect the immune system and cause immediate symptoms such as hives, rashes, puffy eyes, vomiting and even anaphylaxis. However, many people suffer from food intolerance, and symptoms can sometimes be delayed – even up to 2 days after eating the suspected food. Food intolerance symptoms include indigestion, heartburn, nausea, cramps, headaches, fatigue, etc.
1. “Elimination Diet and Food Challenge Test for Allergies .” WebMD.com. 2 December 2011.
2. “About Food Allergy .” FoodAllergy.org. 2 December 2011.
Hi,did you ever finally figure out what's wrong b/c I'm going through the exact same thing but I was in the ER for a week straight everyday not even the cocktail helped until finally a doc called neurology and gave me another cocktail with magnesium that helped.but now they're back! Ct scans were normal.i have chronic sinusitis but specialist told me it shouldn't cause this much pain????
This answer is to the original post even though it was posted 3 years ago.
Yes, you have migraine. With high probability. For you they have turned more or less chronic. I get a little bit upset when I hear about all the tests you had to take, because to me it feels like they were mostly unnecessary. This has nothing to do with your sinuses. The migraine causes you to think that it is sinusitis. It is ok that you believe this, but a skilled doctor should see the difference. You have all the symptoms of migraine, almost.
You need to see a specialist who can help you and get you out of this viscous cycle, otherwise you will spend every weekend in the ER. Try to read up on this condition as much as you can also, if you have the strength. Or maybe you can get a loved one to study for you?
Best of luck and take care!
When I was in my late 20s I had the very same type of headache. It was absolutely debilitating. I was finally diagnosed with chronic paraximal hemocrania. Tried all types of meds that dulled the pain somewhat but made me extremely loopy. I ended up going to a chiropractor that practiced the “Palmer” method. He adjusted me probably 6 or 8 times in only a few days. I have been Without those excruciating headaches for 31 years now!! Find a chiropractor that practices that method. The school that taught this method was in the San Jose, Ca. Area.