Suffering with chronic migraines, light/sound sensitivity after MVD surgery

[Tamara1313]

Hi All, Besides having horrible migraine pain, lights and sound are extremely painful. My neurologist has me on Topamax, Effexor, and Toradol self-injections (when pain levels exceed 8-9). Has anyone had any success with any other treatment? medications? I am willing to try anything....sigh..... thanks in advance.

[charleyjones]

Try doing a search on spontaneous CSF leaks to see if your symptoms match, sounds like they do. There is a lot of information on imaging to treatment. Check out the CSF leaks on Cedars Sinai in LA