Hi Mary. I just stumbled upon your post. I am sorry to hear you are going through such a horrible time. I can relate! I get headaches almost daily, migraines about 4x/wk. Anyhow, I am not an expert, but some people find relief from Triptan medications, like Imitrex. Have you ever tried triptans? Also, you got me worried when you said you had stroke. Can that show up on an EKG or did you just get an MRI. I was wondering cause I have been getting lots of chest pains/heart palpitations plus migraines, went to ER couple wks ago, they ran and EKG and said my "everything was fine and it's just anxiety". ugh. Anyhow, if you want natural remedies I have heard herbs Butterbur and Feverfew help some people w/migraines. I hope you can find a specialist who can help you.
since i have basilar migraines i have adverse reactions to triptans and imitrex so i cant take them. i have had a migraine since last feb and cant get rid of it its horrible :(. it showed up on an MRI that i had in my right cerebellum.
do you have a PFO????? thats a hole in your heart. some well most people with migraines have them. never heard of butterbur or feverfew. what are they? i found one guy who is really good. just found him a little to late ya know.
im sorry about your headaches they sound awful too!!
Oh, I had a horrible reaction to triptans so I can't take them either. Gosh, I can't imagine having a migraine for a YEAR! I get them for a few days straight and that is enough. No, I do not have a PFO, never heard of that. Interesting. Supposedly everything is ok w/my heart (according to ER docs). Feverfew and butterbur are herbs. You can buy them online, but check w/your dr. first about interactions w/meds. I am happy you found a good dr! Keep us posted. Hope a treatment works for you. I am still searching for mine....
thank you! im sorry you havent found a treatment that has worked for you either. what are you currently on? what kind of migraines do you have? im glad everything is ok with your heart!
next time i see my doc i will ask him about those herbs.
do you have anything else besides migraines? i also have anxiety that goes with it...
Yeah, it's been hell. I am not sure what kind of migraines I have but I do not have the aura w/them. I pretty much only take a bunch of ibuprofen and tylenol (650 mg). I can't tolerate most meds cause of severe side effects. Icepack on forehead and/or back of head helps, too. I live in my sunglasses and stay in bed a lot unfortunately. Sometimes I take Butalbital which helps little bit but has caffeine and makes my anxiety worse. Xanax helps some,so that may be an indicator that stress/anxiety could be causing my migraines. Yes, I have anxiety too. UGH. Plus panic attacks and I am prone to depression. I also have a bunch of other things wrong w/me, like a bulging disc in my neck. That is the latest theory of why so many migraines. I am not completely sold on that. I think there are a variety of triggers: STRESS, allergies/weather, neck issues.
I am no expert other than having a problem with headaches since I was three, chronic migraines for as long as I can remember. I call my migraines; "My dragon" since they seem to have the same attributes, come at will, mean and breath fire. I've been on so many medications that any new neurologist has a had time believing it until they get my records (which I now keep with me). My advice is to make a list of possible triggers so you can learn to avoid them. I would ask for an MRI of your brain, I get one every 6 to 8 years just to see if they have an answer as to why I suffer this way. Seeking help or just someone to listen helps ALOT. I started my own blog about it. Anyway, the only thing that ever helped me was preventative, I took some ayurvedic stuff from India and it knocked out my migraines for over a year. Now, I still had my daily headache, and I would get the prodome signaling a migraine was coming but it didn't. 4 months after I was off they came back and so hard I thought I was dying. I'm sick of them. I tried to get the same stuff but I was told it's not available in the US yet, so I'm hopping. In the mean time it's back to cold wash cloths, imitrex then anti-nausea medication (which causes headache). PS...I have bulging discs too and earlier this year had a major low back surgery and then a tumor removed, which they said could not have caused the migraines. Of course not, I still have them.