Migraines and Headaches Community
6.75k Members
Avatar universal

migraine/stroke need help :(

I am 21 years old female who has been in a lot of pain in the last year so anyone that has time to read this complex story... please.. it would be greatly appreciated...
i have been diagnosed with basilar migraine/ asthma/ "blank stare" seizures/ and anxiety
heres how my migraines go ... i go blind see spots light show all that.. cant see the 10 mins later...  My left thumb goes completely numb along my with my entire arm the left side of my face then the left side of my tongue then I cant speak and I lose my balance and I am completely confused.
Then the headache, awful of course.. throwing up ..have to sleep it off... the next day i am fine other then freaking out of course cuz it is scary and my nerves are still a little bit jumpy i guess. and i am told to go to hospital but this last time i wasnt home so i went the hospital next day... found out ..i had a stroke but it was not from this specific time. the mri i had said i had a silent stroke. but i have no risk factor other then i have migraines! so i had the tee ekg all those tests. had a large pfo.. this happened last feb ..... had that closed last may.
today - jan 2012! havent gotten rid of a migraine that i have had since feb of last year....  11 doc i have seen .. i have tried soooo many medications nothing has worked for me so far. i have tried nerve blockers botox..  i know about the pace maker with the electrodes but they are not allowed in my state yet and i do not want to be on the trial and maybe get on the "real" side. migraines are serious as everyone here knows. any suggestions?!!!??? like non medication things i could try. i am not that stressed other then being in bed all the time not being able to do a whole lot. i sleep a lot and i go to the hospital to get different meds tried on me. so anything please is a big help :) thanks.
(right now my meds are verapamil topamax effexor aspirin nortripilyne  and none are working for the migraine part)
17 Responses
Avatar universal
Hi Mary. I just stumbled upon your post. I am sorry to hear you are going through such a horrible time. I can relate! I get headaches almost daily, migraines about 4x/wk. Anyhow, I am not an expert, but some people find relief from Triptan medications, like Imitrex. Have you ever tried triptans? Also, you got me worried when you said you had stroke. Can that show up on an EKG or did you just get an MRI. I was wondering cause I have been getting lots of chest pains/heart palpitations plus migraines, went to ER couple wks ago, they ran and EKG and said my "everything was fine and it's just anxiety". ugh. Anyhow, if you want natural remedies I have heard herbs Butterbur and Feverfew help some people w/migraines. I hope you can find a specialist who can help you.
Avatar universal
since i have basilar migraines i have adverse reactions to triptans and imitrex so i cant take them. i have had a migraine since last feb and cant get rid of it its horrible :(.  it showed up on an MRI that i had in my right cerebellum.  
do you have a PFO????? thats a hole in your heart. some well most people with migraines have them. never heard of butterbur or feverfew. what are they? i found one guy who is really good. just found him a little to late ya know.
im sorry about your headaches they sound awful too!!
Avatar universal
Oh, I had a horrible reaction to triptans so I can't take them either. Gosh, I can't imagine having a migraine for a YEAR! I get them for a few days straight and that is enough. No, I do not have a PFO, never heard of that. Interesting. Supposedly everything is ok w/my heart (according to ER docs). Feverfew and butterbur are herbs. You can buy them online, but check w/your dr. first about interactions w/meds. I am happy you found a good dr! Keep us posted. Hope a treatment works for you. I am still searching for mine....
Avatar universal
thank you! im sorry you havent found a treatment that has worked for you either. what are you currently on? what kind of migraines do you have? im glad everything is ok with your heart!
next time i see my doc i will ask him about those herbs.
do you have anything else besides migraines? i also have anxiety that goes with it...
Avatar universal
Yeah, it's been hell. I am not sure what kind of migraines I have but I do not have the aura w/them. I pretty much only take a bunch of ibuprofen and tylenol (650 mg). I can't tolerate most meds cause of severe side effects. Icepack on forehead and/or back of head helps, too. I live in my sunglasses and stay in bed a lot unfortunately. Sometimes I take Butalbital which helps little bit but has caffeine and makes my anxiety worse. Xanax helps some,so that may be an indicator that stress/anxiety could be causing my migraines. Yes, I have anxiety too. UGH. Plus panic attacks and I am prone to depression. I also have a bunch of other things wrong w/me, like a bulging disc in my neck. That is the latest theory of why so many migraines. I am not completely sold on that. I think there are a variety of triggers: STRESS, allergies/weather, neck issues.
Avatar universal
I am no expert other than having a problem with headaches since I was three, chronic migraines for as long as I can remember. I call my migraines; "My dragon" since they seem to have the same attributes, come at will, mean and breath fire. I've been on so many medications that any new neurologist has a had time believing it until they get my records (which I now keep with me).  My advice is to make a list of possible triggers so you can learn to avoid them. I would ask for an MRI of your brain, I get one every 6 to 8 years just to see if they have an answer as to why I suffer this way. Seeking help or just someone to listen helps ALOT. I started my own blog about it. Anyway, the only thing that ever helped me was preventative, I took some ayurvedic stuff from India and it knocked out my migraines for over a year. Now, I still had my daily headache, and I would get the prodome signaling a migraine was coming but it didn't. 4 months after I was off they came back and so hard I thought I was dying. I'm sick of them. I tried to get the same stuff but I was told it's not available in the US yet, so I'm hopping. In the mean time it's back to cold wash cloths, imitrex then anti-nausea medication (which causes headache). PS...I have bulging discs too and earlier this year had a major low back surgery and then a tumor removed, which they said could not have caused the migraines. Of course not, I still have them.
Have an Answer?
Top Neurology Answerers
620923 tn?1452919248
Allentown, PA
1780921 tn?1499305393
Queen Creek, AZ
1756321 tn?1547098925
Queensland, Australia
Avatar universal
Trinity , TX
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease