Hi all, I am new to the community. I am making my way through your post and replies. I did not even know there is support groups and communities for something like this, til I came across it the other day. My Migraines are changing and I am trying to find answers. My family doctor is at a loss and judt suggested last week, that I go see a neurologist. I always get so nervous about seeing new doctors. My family doctor is convienced I have an autoimmune disorder, but she is just not sure what. She believes my Migraines are just reflecting a more serious issue. I can not help but agree with her. My body is telling me something is seriously wrong, but I am not educated enough to be of any help.
My Migraines seem to be changing in many ways. Yeasterday, I suddenly got very sick to my stomach and dizzy for about 2 hours. Thought I was going to hurl everywhere, for no obvious reason. Then I got a sudden headach and then within 10 minutes, I got slammed with a powerful Migraine. This has never happened to me before. Then, for the bast two months, my sinus cavities have felt so hallow. Like air is shooting straight to my brain. Then my ears will start to hurt, burn, and itch. Then the pain moves into the skin on my face, then into my teeth and jaw. Its gotten so bad, I can not put any pressure on my teeth to eat and had to eat from a straw for a few days. I have also had a few Migraines were my vision would suddenly shift back and forth and everything has a pretty hue or whitish glow around everything. Like those old black and white movies, but much bigger and brighter.
Five or six years ago, my doctor gave me a sample of Relpax. It was the first med to ever help with my Migraines. I was so greatful. Nothing is perfect, but this was such a relief. Now my doct has put me on Fiorinal/COD. I had never heard of it til she perscribed it. It does not seem to be helping at all, but it is effecting my mood. If I take it, then I am not as snappy or mean when I am in so much pain and if I take two, then I can eventually sleep. I once could not sleep for over 42 hours, because my pain level was bad. These meds are better then my previous. I finally had to confess to the doctor that I was abussing over the counter meds. I was taking twice as much Excederine, Ibprophine, and Tylenol. It was to the point, that I thought I had given my self ulcers and the stomach pain was as great as the Migrains. Luckly no real damage, but I was scared of the medical bills pilling up. In the end, they pilled up anyway, so lesson learned.
Lately, being on the computer is bothering me big time. My vision will blurr and its like the screen is moving and jumping. I have given up on ever having a normal life, but I am fighting not to get worse. Not sure if I have any real questions, just open to any insight. Thanks!