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1167212 tn?1264182747

My m/c story is not normal

Hi ladies
I have read so many of your posts and most of us (including myself) have so many questions regarding m/c and everyone goes through the process very differently.  My story is certainly not normal so if anyone is going through this and is as confused, frustrated and scared as i was, but cannot find any answers or similar experiences then this one might have something in common with you.

I miscarried 2nd December.  I chose to let nature take it's course and the nurses never mentioned a D&C anyway so I presumed I was to go home and let my body do what it needed to do.  I'd had problems with spotting for weeks, midwife seemed unconcerned when I told her and said that i should get checked out if there was any red blood.  The red blood came and I had an emergency scan.  I would have been appoximately 11 weeks but the scan showed that I was not as many weeks as I thought I was.  There was a sac but no baby inside.  The nurse could not tell me how many weeks I was because the sac was lying lower than normal and was getting ready to break down,.
2 weeks passed and still no m/c.  One day I was driving about and suddenly got the cramps.  I thought "this is it" and quickly got home.  I managed to get my 2 year old out of the car and continue to look after her while I was cramping and bleeding like mad.  I told my husband over the phone, he had had a minor accident at work so returned home early anyway.  By the time he had returned, I had passed half of the placenta and the bleeding slowed down.
A 2nd scan showed that there was still retained products, 10 days later a 3rd scan showed there was still a remaining clot or something clinging to the uterine wall.  A 4th scan 10 days after that showed that my womb was clear, apart from a very tiny area of tissue that nurse said would come away with my next period.
5 or 6 weeks later I did get my period and passed the tiny thing on day 2.
For some reason I was still getting positive tests and couldn't understand why that was happening when i had got my period.  By february I was still getting a faint positive and became worried about retained products.  What if the scan was wrong?  I didn't want to get an infection.  I phoned the EPU and told them my concerns.  They told me it takes a long time to return to normal and to stop testing.
A week later I caved and tested - still faint positive.  I told my GP and then did a pregnancy test which was sent off to a lab and I was to wait for the results.  1 week later I got the result and their test said negative!  I didn't understand why their test said negative and mine positive, but I took their word for it and stopped worrying.
My 2nd period came and went and after it had finished I did a test and finally got my negative test.  No hint of a line what so ever.  So now I was happy that there was no hcg left in my system and my body was back to normal.  I had been taking my temp in the morning to find out if my body had started to ovulate again but it wasn't detected.

A week before my 3rd period was due I suddenly started to get an achy tummy and some bloating.  I thought that was a bit unusual but thought nothing of it.  I got up during the night to go to the toilet and that's a first because I NEVER get up during the night to go to the toilet unless I'm pregnant.  So the next moring I did a test.  It said negative.
During the afternoon I suddenly got a gush and had a heavy bleed for about 3 hours during the afternoon.  I passed a large clot and a smaller one.  They didn't look like products of conception and the whole episode left me feeling quite scared and puzzled.  I phoned NHS direct and they seemed unconcerned and told me to see a GP if it happened again.
5 days later around the time my 3rd period would have been due - I suddenly had a massive loss of blood. It was like a running tap and constant.  Loads and loads of massive clots instantly started to come away and I was really frightened.  I knew that something was not right.  I was loosing too much blood.  It was late on a sunday night - we were almost getting ready to go to bed but instead we were rushing off to A&E.
The blood loss was so bad that I was put on a drip because my blood pressure had dropped.  After the drip had finished my blood pressure was still dropping so I was put on a 2nd drip.  Eventully I started to feel better but I was admitted to the gyno ward.  loads of tests were done at A&E and on the ward but everything came back normal and it wasn't a 2nd miscarriage.
I was allowed home at 3.30am.  I went back to the hospital the next morning to have a scan.  There was still a lot of clots left from the previous day so my womb looked a mess.  The sonographer said that my uterus is measuring larger than normal so that is not normal.
I then went back to the ward and waited 2.5 hours for my doctors appointment.  He listened to everything I explained had happened since december.  He said my uterus could be holding a fibriod but then again I am too young for this diagnoisis but if I have any more problems then I have to go back and have some sort of camera surgery to see whats going on in there.
I passed the clots 3 days later with heavy blod loss.  This instantly terrified me and I thought it was happening all over again so off I went to A&E.  The bleeding did eventually calm down as I got my blood pressure checked then decided not to wait to see a doctor and went home.
I'm on meds for 2 weeks to stop the bleeding.  I had a few twinges the first few days but touch wood that seems to have all calmed down now.  My only concern at the moment is that I've had light bleeding constantly since the heavy blood loss.  It's nothing like a period and shows no signs of fading and stopping so it's a constant light bleed but it doesn't look like normal blood, it's watery red?  like a period we get when on the pill.  Very strange so thats getting me down at the moment because it's been 2 weeks now and it's not stopping.
I don't know what will happen when I finish all the tablets.  I'm scared it will happen again, and if I go and see my GP now, he may not do anything and tell me to wait it out.
I'd like him to refer me for a follow up scan to check everything is normal.  No follow up examinations were mentioned at the hospital.  They are not intersted unless something is actually drastically wrong with me.  But I need to know if my uterus has returned to normal size and everything is clear in there.  
  
5 Responses
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Avatar universal
Hi hun, well my AF is not classed as an actual AF (confused .. I am) because I'm only spotting and not "flowing".  Anyway 7 days and I'm still spotting bright red so I'm taking it as a weird AF.  Saw Doc on Tues and she said it was probably my body just getting back to normal slowly.  So I haven't started birth control afterall, after saying I would I had a major panic about time running out etc etc, lol.

I've got to go back in 4 weeks and if a proper AF hasn't shown then further investigations - urgh!

We'll get through this eventually, just hope it doesn't take too long!
Helpful - 0
1167212 tn?1264182747
Thankyou for answering me again bernie.
Everyones experience of this terrible thing is so different.  Sorry to see what a terrible time you have had too.  Having the extra problems out of the blue is just as bad as the actual m/c trauma.  I don't blame you for choosing birth control.  I am terrified of going through this again.  I saw a lady doctor yesterday and she was really understanding and very helpful.  I'm on meds again and being monited for 2 cycles.  Blood test in 1 month.  I have no idea when I will ovulate again or when my body will ever be normal again but trying to look on the bright side.  
Helpful - 0
Avatar universal
It all seem so unfair doesn't it, not only do you have to deal with the loss of a baby but to then have all these problems as well :(  I had a D&C at 12 weeks, the baby had stopped growing at 7wks 3 days although my uterus was measuring larger.  A week after I developed a womb infection and it's taken 8 weeks for my period to arrive (today, urgh).

I also live in the West Mids (Well Warwickshire).  

I've read so many different experiences that it seems that there is no "normal" following a miscarriage.  I've decided to go back on birth control as I'm now undecided as to whether I want to go through all of this again, I am lucky though in that I do have children already.

Let me know how you get on next week - pm me if you wish.

Helpful - 0
1167212 tn?1264182747
Thankyou.  A D&C wasn't mentioned until my 3rd scan.  Most of the RPOC had passed by that time and I only had a small area left.  Nurse said that she would give me 10 more days and hopefully it should pass on it's own.  By my 4th scan the RPOC had passed and there was only a tiny clot left so she discharged me.  The tiny clot thing came away with my next period as she had predicted so I thought that was the end of it all.
I had 2 normal periods before I started to get problems again, so I was very shocked that something so terrible had happened to me.  What bothers me the most is the sonographer said that my womb is larger than normal at the moment and it should have shrunk back down by now because it's been 3 months since m/c.  I don't know if it did shrink back down but then suddenly started to grow again causing the problems?  so confusing.  I'm going to wait until I've finished my medication and ask to see a GP next week who will hopefully refer me for a follow up scan.  This will have given my uterus enough time to shrink back down hopefully.
Helpful - 0
Avatar universal
Hi, it sounds like you haven't been managed very well at all, to be left so long inbetween each trauma is disgraceful.  First off you should have been offered a D&C from the beginning.  The fact that they were still seeing products in your uterus after the m/c should have meant a D&C at that stage to clean out your womb.  I find it very odd that you have not been given a D&C.  If I were you I would start making a lot of noise and insist on some proper investigations asap, no woman should have to be going through this over such a long period of time.
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