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739935 tn?1232328177

Sick of being sick

Almost 8 yrs ago i was diagnosed with RT eye optic neuritis
Now as of April 2007 i was treated for lyme
A LP showed 3 oligoclonal banding
MRI showed nothing except for a very sm lesion on my lower spine
which Dr's say is not related?
I have all spasticity and extremity tingling weakness loss of sensation
bladder issues and the list goes on....
I have seen every possible dr and yet all i get is more meds i take about 10 pills a day.
What now im still in pain and yet i have no diagnosis??????????
Im frustrated!!!
I have a 3yr and i just can't keep up
thankyou in advance
cara
Im going crazy...well not really
What should i do where should i go for help?
4 Responses
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Avatar universal
A related discussion, when will it go away? was started.
Helpful - 0
147426 tn?1317265632
Do spinal lesions occur with much frequency in the tick-borne illnesses like Lyme and its associates?

Quix
Helpful - 0
669758 tn?1242330751
MEDICAL PROFESSIONAL
I wish it were as simple as my reading your message (which I feel for), but you obviously have a complex history (multiple doctors have seen you).

I suggest going to an MS specialist.

I am not sure how the spinal cord lesion is being explained by your physicians.
Helpful - 0
572651 tn?1530999357
Cara,
While you're waiting for Dr. Kantor to make this house call, I have a quick question - have you had a repeat MRI or was it just one?  I ask because I understand sometimes it takes a while for those pesky lesions to make themselves visible ....

I hope the doctor can give you some clues as to what to do next - you've waited long enough.
Lulu
Helpful - 0

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