Aa
prognosis
Do we know the percentage of people with ms ending up to wheelcair with paralysis?Do everyone have motorproblems?Is there any chance of living into deep old age without serious problems? I don;t know much about this disease and i am afraid...a lot.. Thank you.
Listem to Alex! Live your life. None of us can control the uncontrollable. Do all the healthful things that good medical science tells us to (this does not mean crazy web sites or those with something to sell), and stop worrying. In the final analysis you'll be glad.
ess
ess
Think of an electric cord. First the jacket of the cord gets cut. Then the wire jacketing gets cut and the wires touch sometimes shorting out, finally the cord id cut completely and does not work. That is what happens over time with MS. If the this happens to the nerves in the brain the make other path ways. If it happens in the spinal cord there are fewer pathways. So the same lesion over time can cause damage.
Yes people do end up in wheelchairs taking DMDs. Many of them had MS before DMDs came out. My friends in wheelchairs mostly have had MS a very long time. Since DMDs came along fewer people are ending up in wheelchairs. DMDs do not stop progression is most cases they slow it down. Nothing is perfect but you try to stay as well as you can.
It is easy to worry. I did for the first year. I did not want to put this disease on my family. Three years ago I was diagnosed with late stage ovarian cancer. Half the people diagnosed die every year. I have a subset which does not work with chemo. I have been on chemo for three years. I am now stable. I also have the BRCA mutation which gives me a 90% of triple negative breast cancer which has a short survival time. So I could die from ovarian, die of breast cancer, or end up with progression in MS. I also could beat all three. No one knows.I could make myself crazy thinking about it. I was a basket case in 2009 when I was diagnosed with MS.
The worry is real. I find worry is trying to control what you can't. Once I have realized this I am happy. I enjoy working in my yard and walking my dogs.
Alex
Yes people do end up in wheelchairs taking DMDs. Many of them had MS before DMDs came out. My friends in wheelchairs mostly have had MS a very long time. Since DMDs came along fewer people are ending up in wheelchairs. DMDs do not stop progression is most cases they slow it down. Nothing is perfect but you try to stay as well as you can.
It is easy to worry. I did for the first year. I did not want to put this disease on my family. Three years ago I was diagnosed with late stage ovarian cancer. Half the people diagnosed die every year. I have a subset which does not work with chemo. I have been on chemo for three years. I am now stable. I also have the BRCA mutation which gives me a 90% of triple negative breast cancer which has a short survival time. So I could die from ovarian, die of breast cancer, or end up with progression in MS. I also could beat all three. No one knows.I could make myself crazy thinking about it. I was a basket case in 2009 when I was diagnosed with MS.
The worry is real. I find worry is trying to control what you can't. Once I have realized this I am happy. I enjoy working in my yard and walking my dogs.
Alex
As regarding drugs, i am not sure about the good result they can bring...I hear people while taking medication still having flairs...How do we know that we do not end up in a wheelchair because of interferons and so on (taking into consideration that have not been used for so many years - 20 i think?) and not because someone lead a better life (without stress) or just because his organism fought better tha disease? When i see people on wheelchair at that moment we speak, while taking medication, i can not be convinced about the results of it, therefore my fears can not be limited...
maybe i was wrong saying my friend..maybe because i am so familiar with that...
HVAC, the same lesion can cause a worse damage in the future, or what happened with that then, happened? (if it's getting worse, the reason will be a second lesion with a second symptom)? I wish you are as well as now for the rest of your life.
HVAC, the same lesion can cause a worse damage in the future, or what happened with that then, happened? (if it's getting worse, the reason will be a second lesion with a second symptom)? I wish you are as well as now for the rest of your life.
People are not statistics. With the disease modifying drugs less people are ending up in wheelchairs until their elderly. No to cases of MS are the same it all depends where in the CNS you get damage. Damage to the brain is not so bad because there are many more pathways. Damage to the spine is a different matter with less pathways. Not even your doctor can tell.
When I was first diagnosed I waited for all the bad things to happen that was 2009 and am the same in 2015. I have actually had MS since I was a child and I still walk miles. I no longer worry. I live my life days to day.
Alex
When I was first diagnosed I waited for all the bad things to happen that was 2009 and am the same in 2015. I have actually had MS since I was a child and I still walk miles. I no longer worry. I live my life days to day.
Alex
Thank you all for your answers. My fear has become my best friend, unfortunately. 3 years after my first experience of L'hermitte and I am fine with no problems...I don't know what it is..Doctors do not tell moe...
I don't want to lose my abilities, sooner that I have imagined...
I don't want to lose my abilities, sooner that I have imagined...
COMMUNITY LEADER
Hi and welcome back,
I'm honestly reluctant to answer your questions, because of the possibility that it wouldn't be very helpful to you, the knowledge should reassure and reduce your anxiety but if it only gives you additionally food to feed the fears you already have, you would be better off in the long run, focusing on getting help for your anxiety so you can find out if its MS!
From what i understand of your situation, a couple of years ago you experienced L'hermittes and the MRI showed a 1cm spinal cord lesion...........you said back in march 2013 that you no longer experienced L'hermittes and haven't mentioned experiencing any other sx's. If your fears of MS have stopped you from further testing since 2012, it's actually entirely possible MS is not in your future....
Q:Do we know the percentage of people with ms ending up to wheelcair with paralysis?
A:Before disease modifying drugs (DMD's) and the understanding of MS, MSers unfortunately often ended up in wheelchairs BUT most people diagnosed with MS today and are taking a DMD, are expected and do live wheelchair free lives.
Q:Do everyone have motorproblems?
A:I'm not really sure what you mean but MS is unique to the individual and what happens to one MSer will not be experienced exactly the same as another. Not every sx is experienced by all, mobility issues are common but that doesn't mean it absolutely will happen to every individual.
Q: Is there any chance of living into deep old age without serious problems?
A: Absolutely, it's expected for MSers today to live fairly normal lives but there are no guarantees with MS, some are disabled with hardly any lesions and others have a bucket load and you wouldn't even know they have MS.
I know quite a few MSers who have multiple spinal cord lesions and have been dx for well over a decade and they are still not permanently in a wheelchair.............don't let your fears be what cripples your future!
Hugs........JJ
I'm honestly reluctant to answer your questions, because of the possibility that it wouldn't be very helpful to you, the knowledge should reassure and reduce your anxiety but if it only gives you additionally food to feed the fears you already have, you would be better off in the long run, focusing on getting help for your anxiety so you can find out if its MS!
From what i understand of your situation, a couple of years ago you experienced L'hermittes and the MRI showed a 1cm spinal cord lesion...........you said back in march 2013 that you no longer experienced L'hermittes and haven't mentioned experiencing any other sx's. If your fears of MS have stopped you from further testing since 2012, it's actually entirely possible MS is not in your future....
Q:Do we know the percentage of people with ms ending up to wheelcair with paralysis?
A:Before disease modifying drugs (DMD's) and the understanding of MS, MSers unfortunately often ended up in wheelchairs BUT most people diagnosed with MS today and are taking a DMD, are expected and do live wheelchair free lives.
Q:Do everyone have motorproblems?
A:I'm not really sure what you mean but MS is unique to the individual and what happens to one MSer will not be experienced exactly the same as another. Not every sx is experienced by all, mobility issues are common but that doesn't mean it absolutely will happen to every individual.
Q: Is there any chance of living into deep old age without serious problems?
A: Absolutely, it's expected for MSers today to live fairly normal lives but there are no guarantees with MS, some are disabled with hardly any lesions and others have a bucket load and you wouldn't even know they have MS.
I know quite a few MSers who have multiple spinal cord lesions and have been dx for well over a decade and they are still not permanently in a wheelchair.............don't let your fears be what cripples your future!
Hugs........JJ
Don't get too freaked out. I have spinal lesions and my ability to walk varies from day to day. At first I needed a cane, but right now I'm fine. If my disease progresses further, I might need a cane in twenty years.
Most people with MS stay in the limited mobility category - has trouble going long distances, and need a cane during a flare.
Some people with MS never have problems walking - their issues are cognitive and in the white matter of the brain, rather than in the spinal cord. If I had a choice, I would rather have spinal lesions and no cognitive problems, but unfortunately I have both.
Most people with MS stay in the limited mobility category - has trouble going long distances, and need a cane during a flare.
Some people with MS never have problems walking - their issues are cognitive and in the white matter of the brain, rather than in the spinal cord. If I had a choice, I would rather have spinal lesions and no cognitive problems, but unfortunately I have both.
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
