Am I Crazy

[FrustratedorCrazy]

Last January I had headaches, dizziness and fatigue which led into dragging my right foot.  After tests MRI (negative) and being put on an anxiety medication and antivert made the symptoms worse...I stopped taking the meds and the symptoms slowly went away...except for a chronic headache.  About 2 1/2 weeks ago...the headache got worse with eye pain and dizziness....a few days later the foot started again, foot cramping, toe curling in and dragging my foot...  I have an MRI scheduled for next week, but the neurologist told me it was just to ease my mind...and am I stressed?...Is this all in my head?  The Neurologist seems to think nothing is wrong, could it be something else...I am so frustrated and I am beginning to think I am crazy.

[Moosegal9935]

I went through the same thing, first thing she said when I came into office is what makes you think you have MS, I proceeded to show her my symptoms and tell her what was going on, she. Basically laughed and said oh maybe your just hyperventilating and proceeded to show me a site with symptoms which most of them are not related to me, and she said it could be aniexty basically thought all of my symptoms were in my head, I had to convince her to give me my MRI and she was like will you feel better if the results are negative, and when I was in the office she was doing the little pin test and arm and feet test, she said here's the good news I don't think you have ms WTF!! How can you know without a MRI test symptoms work different in everyone she was pissing me off, I will not be seeing her for my follow up after the MRI, I called my doctor and had her put me a new referral in for a doctor not some ditzy ms specialist nurse WTF!! I was sitting at my computer one day seeing double in right eye and I told her I covered my left eye to see which eye was going double she was like oh maybe it's just stress are you kidding my. Brushed off anything I told her. Thank god my husband was with me he has been witnessing everything that is going on. After my MRI I'm going to request the follow up with a doctor there. If that doesn't work out I'm taking my MRI test and blood work and going to see a top specialist unbelievable. I freaking passout in June and in front of my mom and neighbor and guess what both of my legs went numb and I couldnt walk I had to be damn near carried to the car to go to er, the proper test wasn't done in that er as well said uti and exhaustion. I found the best neurologist in my state I'm going to see him if things dont workout with the new neurologist doctor I'm requesting. I told her I take aspirin once a day for pain but I meant to say excedrin she was like oh my husband calls everything an aspirin while laughing but of course he is not a doctor WTF!! I told well i do know the difference omg just made me feel stupid I complained about her Saturday and forward my concerns over to my doctor she sent a referral for a new dr for my follow up after my MRI. This is why people are getting sicker with this diease because of idiot specialist and drs like this.

[Irene5353]

Run, do not stop, and get another neurologist.  We should all run from the neurologists who patronize us and just call our disease stress!  

The anxiety that comes from such a sudden life change is NORMAL.  It does not mean that you do not have a neurological disease.  

Fire doctors who do not explain clearly why things are the way they are and just put every question from a female patient under the STRESS UMBRELLA!  

It is time to weed these bad doctors out!  BTW I know of what I speak!

[LilMinnie]

I'm glad I went ahead and got a copy of my MRI report because I would almost bet a thousand dollars that Dr. Dufus' letter, if I ever get it, will say everything is normal. I beg to differ, but even one lesion isn't normal. No, it isn't enough for any sort of diagnosis, yet it is something that doesn't belong there, and it is in a location where lesions are found in MS. I am not saying I have MS, and I hope I don't. Yet I, like you, know something is wrong.

So yes, get your copies and see for yourself! It is a shame we have to fight so hard to be taken seriously and have to check things for ourselves, but I guess that's just how it is.

Best of luck and keep us posted.

Hugs,
Minnie

[FrustratedorCrazy]

I received a quick call from my PCP.  The MRI was negative of the brain and lumbar.  Not sure why they did not do the spine?  But I did have a blood test that showed inflammation.  She wants me to follow up with the neurologist.  So here we go again.... the quest for an answer is a marathon.  I need to get copies of my blood and MRI results and take control.

[LilMinnie]

I so understand! Dr. Dufus hasn't sent my letter yet, but I went and got a copy of my MRI report. While it is not enough for any sort of diagnosis I'm sure, a lesion was found deep in my right frontal lobe, seen in several sequences. He is totally dismissing me, yet I know something isn't right, MS or not.

I believe Dr. Dufus thinks I am making things up, too. I have been taking my supplements and vitamins and exercising as I can, which right now unfortunately isn't much.

Just know that I and others know how you feel. This is not just in your head.

Hang in there!

Hugs backatcha,
Minnie :)

[FrustratedorCrazy]

Thanks Minnie for the encouragement.  My symptoms are resolving like they did last time.  My MRI results are in, but only the doctor can relay them to me.  The waiting is so hard.  If there is nothing there...I guess I will just have to wait and see if it happens again.  I feel like they think I am making this sh## up.  I am so thankful that I can walk again...never take things for granted.

Hugs,

Still frustrated...and maybe crazy

[LilMinnie]

Hi, I just wanted to say that I can relate. After having weakness on my right side, a few falls (a couple on the stairs), fatigue, and sensory symptoms, I was finally pushed by my daughter to report what is going on.

Well, I ended up with Dr. Dufus ;) He wasn't interested in my (one page) symptom timeline, and my new patient appointment with him, and he is an MS specialist) only lasted about ten minutes.

I did have my MRIs with and without contrast last week. I found out yesterday that he dictated a letter with my results that is being mailed to me. Yup, no follow up or anything. Needless to say, I will be taking my records and going elsewhere.

We know our bodies and I believe, MS or not, that something other than anxiety or depression is causing our symptoms.

I wish you luck. I know no one wants MS, but we do want to be taken seriously and get the treatment we need.

Hugs,
Minnie

[FrustratedorCrazy]

thank you, I do have a brain and spinal MRI scheduled for wednesday.  The nurse told me to keep fighting, she had to for her ailment and she works at the hospital.  The doctors wouldn't listen to her either.  I am hoping for a diagnosis, I hope it is not MS, but it has got to be something.

[myrudy]

I would stongly suggest you seek another opinon from another Neurologist. Dragging of the foot is not normal and sounds like neurologic in nature, along with your symptoms of cramping toes, and eye pain. There are other tests that can be done if the Dr feel is is necessary to get a final diagnosis. Have you seen an Eye Specialist? If you have PAIN in the eyes, you should,. It could be something simple or serious. Hard to say. Dizzines, along with headache is something that can be very annoying,  I would consider getting a second opinion and talking to a DR who will listen. If your symtoms persist or get worse, is should be of concern. Have you had any Spinal MRI's?  That would be something to consider with your leg and foot dragging. You back is make up of many nerves and if something is wrong in the spine, it will show up in the L-Spine and T-Spine.  That is a start.