Hello everyone, my name is Suzanne and I'm new here. I literally feel like I'm going CRAZY! I'm not even sure where to start. Lets see, about a month ago I noticed my face was uneven. I took a picture of myself with my cell phone and showed my husband. My left eye was significantly lower than my right as were my eyebrows. I played it off as allergies or something, I wasn't really having any pain so I tried to ignore it. However, the next day it was really bothering me about my eyes being uneven so I sent a message to my friend who is a nurse. She instructed I go to the ER ASAP! Of course I was hesitant and just played it off, but she said it could be a stroke, mini-strokes, etc. and to be better safe than sorry. So, I went and they basically just diagnosed me with Bells Palsy. They said my blood work and CT were fine and to just follow up with my primary doctor.
The next day I went to my PCP and he just basically played it down, said it was just a case of Bells Palsy but he wanted me to have an MRI with dye and some more blood work done for Lyme Disease. Well, I was told everything came back normal but set up an appointment for me to see a Neurologist, but I don't have my appointment for another month!
Here's the bottom line. When I saw my PCP I told him all my symptoms - Numbness, tingling, twitching, pain in left hand between index finger and left finger, pain in right hand and trouble moving my middle finger, migraines, extreme fatigue, floaters in my eyes, dizziness, etc. That was about 4 weeks ago. Since then, I've been having some really WEIRD things happening to me, things that are somewhat hard to explain and really have me worried.
These symptoms have been ongoing for the past few weeks, and a lot of them either alternate or come in spurts! Arm tingling (weird sensation under the skin), head tingling (feels like bugs crawling), face tingling (constant itch type feeling), weird body vibration (as if a cell phone is going off in my pocket or something), blurry vision (difficulty reading street signs when driving), smokey air sensation (as if there is smoke in the room), headaches, migraines, stiff neck and neck pain, ringing in ears, arm, leg and foot aches (like really bad growing pains), burning skin on elbows and surrounding skin which is hot to the touch (usually goes away within an hour), lack of strength in my hands and due to ongoing hand pain unable to grip objects and pick things up, when I'm sleeping I'm woken up by a very strange feeling...almost like my head and face are numb and my hearing goes "off". This comes in pulses like every 30 seconds and last for 2. The EXTREME FATIGUE is terrible. I feel as though I've been tranquilized and then it wears off and I have a lot of energy!!
I know these are A LOT of symptoms and I"m not the type of person that usually keeps track of everything or is in tune with everything going on with my body. However, I started keeping a journal to keep track of my symptoms and the severity and any new symptoms. This is the majority of what I'm dealing with every day!
I know there are a lot of you out there that may have had or are having the same issues I'm having. Perhaps some of you had similar symptoms and it took a while for you to get any kind of diagnosis. Any feedback, guidance, support, information, etc. that anyone may have would be a GREAT HELP to me!! Help me to NOT FEEL SO CRAZY and ALONE!
Thanks a bunch!!!