Aa
Am I Psychotic??????????????????
I feel soooooooo awful, right now. I'm bawling my head off.
I got a letter from my insurance company, wanting more info on how I'm doing with my 'somatization disorder'.
My first really hard time with my imaginary illness began in march '05. I got steadily weaker, more tired, more stupid and more sensory ****, over a long period of time. It took a year to get to my lowest level. Being only able to walk a block with a cane. Constant pain and tiredness.
I levelled off and then followed a slightly quicker up hill battle to not quite back to normal. Little signs of the last number of months were still there. I was good enough in Nov of '06 to start going to the gym. It took a lot of work, but by March of '07, I was also hitting the pool. I walked wherever I could, whenever I could.
Last summer, things started bothering me again. It has gotten worse, insidiously, not noticeable to anyone else,but me. And those closest to me. I am not as bad as I was last time, yet, but I feel I may be headed that way. I thought my gp was one of those that knew me. Apparently I was wrong.
When I gave him the insurance form, I made a comment about my imaginary illness being worse again. He got fed up. He told me it was somatization disorder. That too many doctors had seen me not to find it if it were ms. I said that lesions might take time to show up, that the ms society guy said so. I tried to tell him about my bilateral trigeminal neuralgia, well, to remind him, and to let him know I knew what it was now. He got annoyed and said if I didn't stop arguing this point with him, he could no longer treat me as a patient. He gave me my form back, said to cool off, that HE needed to cool off. HE was mad at ME for having gone to my neuro for more tests.
He received the clear mri report from the hospital. And he got annoyed that I have an evoked potential coming up. He told me to accept that the doctors knew better than me, that there was no way it was anything BUT somatization disorder.
He told me to hang on to my form and come back and see him when I believed in the diagnosis I got. I asked him what he would do if it were his wife or child. He was angry with me. I said fine leave it as somatization disorder then. He told me to leave it with him, I picked it up and took it with me.
I am so disillusioned with him. He has been my doctor for over twenty years. Doesn't he know what all this is doing to me?
Am I really just a nutjob? Is my boyfriend and all my friends looking at me like that? I don't want to leave the house anymore. I jsut give up.
Erica
My pain syndromes were treated by my neuro, long before I knew they had names. I had no computer and no computer savvy until May of '06. I was treated for what I now know to be bilateral trigeminal neuralgia, bilateral meralgia paresthetica and the old ms hug. The ms hug was the first thing.
Not to mention the pins and needles, stings, lancinating pains in my back and arms. The bobble head and intention tremors when I am over tired. The eye looking through vaseline thing. The eyelid (other eye) being closed, for no apparent reason one day when I woke up, ALL day one day. The cognitive issues were the first things I went looking for answers for. Word recall, attention span, executive decision making. Lots, I'm too angry and hurt right now to remember. Oh, yeah, sshort term memory, LOL. And tripping over my left toes all the time. A bladder which won't hold pee. Legs which buckle under me.
So, my insurance co. sent me to all manner of docs, no one found anything, except they say, somatization disorder. A crock of you know what.
I do not vomit, unless it's cause I'm gagging on liquids, or choking on my own saliva. I have no abdominal pain, except for the neuropathic one. I have no nausea, unless I see a kid pick his nose and eat it. I don't feel bloated, well, not usually, 'cept right now, female time. I don't have diarrhea. No back pain. No pain during urination, no headaches, no shortness of breath, no palpitations, no chest pain, no amnesia, no sexual apathy, no pain during intercourse. My painful menstruation issues, along with excessive menstrual bleeding were taken care of in may of '06, with an ablation and laparoscopy to remove endometriosis.
The only symptoms of somatization disorder I show are, pain in my legs and arms, dizziness, difficulty swallowing (at times), vision changes and muscle weakness. Any of those sound familiar?
I got a letter from my insurance company, wanting more info on how I'm doing with my 'somatization disorder'.
My first really hard time with my imaginary illness began in march '05. I got steadily weaker, more tired, more stupid and more sensory ****, over a long period of time. It took a year to get to my lowest level. Being only able to walk a block with a cane. Constant pain and tiredness.
I levelled off and then followed a slightly quicker up hill battle to not quite back to normal. Little signs of the last number of months were still there. I was good enough in Nov of '06 to start going to the gym. It took a lot of work, but by March of '07, I was also hitting the pool. I walked wherever I could, whenever I could.
Last summer, things started bothering me again. It has gotten worse, insidiously, not noticeable to anyone else,but me. And those closest to me. I am not as bad as I was last time, yet, but I feel I may be headed that way. I thought my gp was one of those that knew me. Apparently I was wrong.
When I gave him the insurance form, I made a comment about my imaginary illness being worse again. He got fed up. He told me it was somatization disorder. That too many doctors had seen me not to find it if it were ms. I said that lesions might take time to show up, that the ms society guy said so. I tried to tell him about my bilateral trigeminal neuralgia, well, to remind him, and to let him know I knew what it was now. He got annoyed and said if I didn't stop arguing this point with him, he could no longer treat me as a patient. He gave me my form back, said to cool off, that HE needed to cool off. HE was mad at ME for having gone to my neuro for more tests.
He received the clear mri report from the hospital. And he got annoyed that I have an evoked potential coming up. He told me to accept that the doctors knew better than me, that there was no way it was anything BUT somatization disorder.
He told me to hang on to my form and come back and see him when I believed in the diagnosis I got. I asked him what he would do if it were his wife or child. He was angry with me. I said fine leave it as somatization disorder then. He told me to leave it with him, I picked it up and took it with me.
I am so disillusioned with him. He has been my doctor for over twenty years. Doesn't he know what all this is doing to me?
Am I really just a nutjob? Is my boyfriend and all my friends looking at me like that? I don't want to leave the house anymore. I jsut give up.
Erica
My pain syndromes were treated by my neuro, long before I knew they had names. I had no computer and no computer savvy until May of '06. I was treated for what I now know to be bilateral trigeminal neuralgia, bilateral meralgia paresthetica and the old ms hug. The ms hug was the first thing.
Not to mention the pins and needles, stings, lancinating pains in my back and arms. The bobble head and intention tremors when I am over tired. The eye looking through vaseline thing. The eyelid (other eye) being closed, for no apparent reason one day when I woke up, ALL day one day. The cognitive issues were the first things I went looking for answers for. Word recall, attention span, executive decision making. Lots, I'm too angry and hurt right now to remember. Oh, yeah, sshort term memory, LOL. And tripping over my left toes all the time. A bladder which won't hold pee. Legs which buckle under me.
So, my insurance co. sent me to all manner of docs, no one found anything, except they say, somatization disorder. A crock of you know what.
I do not vomit, unless it's cause I'm gagging on liquids, or choking on my own saliva. I have no abdominal pain, except for the neuropathic one. I have no nausea, unless I see a kid pick his nose and eat it. I don't feel bloated, well, not usually, 'cept right now, female time. I don't have diarrhea. No back pain. No pain during urination, no headaches, no shortness of breath, no palpitations, no chest pain, no amnesia, no sexual apathy, no pain during intercourse. My painful menstruation issues, along with excessive menstrual bleeding were taken care of in may of '06, with an ablation and laparoscopy to remove endometriosis.
The only symptoms of somatization disorder I show are, pain in my legs and arms, dizziness, difficulty swallowing (at times), vision changes and muscle weakness. Any of those sound familiar?
Hang in there! If you're nuts, we're ALL nuts. And I, personally, think we're all wonderfully sane! :)
When I went for my LP last week, my husband was VERY irritated with the neuro. I had a good first appointment and like the guy, for the most part. But he didn't want to take the time to talk to my husband about some of the therapies and treatments he's been researching and that really p*ssed him off. On the drive home he said "I'd just like to ask him, 'if this was your brain, or your wife's brain, would you be interested then?'" We all know what the answer is to that question and you were VERY smart and gutsy to ask your doctor something similar. Frankly, I fear that my husband might do the same (though with significantly less tact!) at my next appointment.
WHICH, by the way, is in over a month. When the neuro said "make a follow-up for 6 weeks," my husband was genuinely shocked. I don't think either one of us realized what a lack of urgency everyone would have...and compared to what you've all been through, I've been through nothing! Luckily, the wait didn't bother me because I already have an appointment with an MS specialist at an MS clinic in 2 weeks so my follow-up with my current neuro became less important. To me, at this point he's just a guy who can send me for the tests I need.
The way your doctor treated you is NOT acceptable. What you're dealing with is very real and for him to disregard it is grossly unfair. You deserve better and I hope you get the type of treatment and care that you deserve.
Take care,
Birdie
When I went for my LP last week, my husband was VERY irritated with the neuro. I had a good first appointment and like the guy, for the most part. But he didn't want to take the time to talk to my husband about some of the therapies and treatments he's been researching and that really p*ssed him off. On the drive home he said "I'd just like to ask him, 'if this was your brain, or your wife's brain, would you be interested then?'" We all know what the answer is to that question and you were VERY smart and gutsy to ask your doctor something similar. Frankly, I fear that my husband might do the same (though with significantly less tact!) at my next appointment.
WHICH, by the way, is in over a month. When the neuro said "make a follow-up for 6 weeks," my husband was genuinely shocked. I don't think either one of us realized what a lack of urgency everyone would have...and compared to what you've all been through, I've been through nothing! Luckily, the wait didn't bother me because I already have an appointment with an MS specialist at an MS clinic in 2 weeks so my follow-up with my current neuro became less important. To me, at this point he's just a guy who can send me for the tests I need.
The way your doctor treated you is NOT acceptable. What you're dealing with is very real and for him to disregard it is grossly unfair. You deserve better and I hope you get the type of treatment and care that you deserve.
Take care,
Birdie
Hi Honey...so sorry for taking so long to respond but I was so angry with your gp I was ready to get on a plane and come down and pop him one for ya!
You and I both know that Somatization isn't even in question here...the abilities of your gp to deal with you speaking behind his back to your neurologist is just the sign you need to take a deep breath and MOVE ON!!
Take the long weekend to relax and think about it ok? Then on Monday or Tuesday you need to think about a place that is not completely out of range...Kingston, Belleville? I don't know how far these places are...I just went to google earth and looked at what was closest but of course it doesn't give me mileage.
You may have to put yourself out and possibly (no probably) put out your boyfriend but I truly believe that you need a new gp because this guy has gone way over the edge in speaking to you like that and it is apparent to me that he is like a child having a temper tantrum when he doesn't get his own way or when he is trying to do his homework and can't find the answer! He is being very unprofessional and childish and I would seriously question his mental capacity right now!
There may be someone in your town that would be interested in helping you not only find a new doctor but help you get to a new doctor! What about the ladies that you meet with to walk with on a regular basis. Would you be able to sit down with them and explain that your gp has given up in trying to discover a diagnosis for you and while you are still under the care of your neurologist you are in desperate need of a gp! I am sure that they will either be able to help you themselves or they may be able to find someone that can!
You have spoken about this group of women with such compassion, I am sure that they are compassionate about you as well honey! Even if you just pick out the one you are closest to and explain the situation to her...it's a start honey!
We will now allow you to roll over and give up because of this assinine gp of yours...you need a new dr. and you know you are going to have to get up off the backside again and be pro-active! We will back you up as you know but you have to make the first move ok?
I hope to hear from you over the weekend but please think about this ok? We are thinking of you and care more than you know Erica!
Lots and lots and lots of Hugs,
Loves ya
Rena
You and I both know that Somatization isn't even in question here...the abilities of your gp to deal with you speaking behind his back to your neurologist is just the sign you need to take a deep breath and MOVE ON!!
Take the long weekend to relax and think about it ok? Then on Monday or Tuesday you need to think about a place that is not completely out of range...Kingston, Belleville? I don't know how far these places are...I just went to google earth and looked at what was closest but of course it doesn't give me mileage.
You may have to put yourself out and possibly (no probably) put out your boyfriend but I truly believe that you need a new gp because this guy has gone way over the edge in speaking to you like that and it is apparent to me that he is like a child having a temper tantrum when he doesn't get his own way or when he is trying to do his homework and can't find the answer! He is being very unprofessional and childish and I would seriously question his mental capacity right now!
There may be someone in your town that would be interested in helping you not only find a new doctor but help you get to a new doctor! What about the ladies that you meet with to walk with on a regular basis. Would you be able to sit down with them and explain that your gp has given up in trying to discover a diagnosis for you and while you are still under the care of your neurologist you are in desperate need of a gp! I am sure that they will either be able to help you themselves or they may be able to find someone that can!
You have spoken about this group of women with such compassion, I am sure that they are compassionate about you as well honey! Even if you just pick out the one you are closest to and explain the situation to her...it's a start honey!
We will now allow you to roll over and give up because of this assinine gp of yours...you need a new dr. and you know you are going to have to get up off the backside again and be pro-active! We will back you up as you know but you have to make the first move ok?
I hope to hear from you over the weekend but please think about this ok? We are thinking of you and care more than you know Erica!
Lots and lots and lots of Hugs,
Loves ya
Rena
And one more thing--when you do back to see him for a cold and he's reviewing your medicines, just explain, "Oh, that's for MS," or "that's for the lupus. . . " Maybe he'll be less likely to put such a bogus diagnosis on to someone else who's depending on him.
I'm going to eat now and cool off myself.
Take care, Sweetie.
Deb
I'm going to eat now and cool off myself.
Take care, Sweetie.
Deb
Your post really has me upset! First, I really don't think there's such a problem as somatization disorder. Even if there is, the likely of it is very, very small. I think that there is always an underlying problem to the pain. And the tremors? I couldn't give myself the tremors even if I tried (I tried it out today to see). If there was a very remote chance that this syndrome existed and you have it, your doctor should never label you with such. Putting the label on you nearly shuts the door to any other possible conclusions. Has he ever considered the possibility that he could be wrong?
Sweetie, you'll never get anywhere with this doctor. He's going to dig his heels in deeper and deeper and the door is closed even tighter into trying to figure out what the real problem is. It may not be MS, it may be another problem. But anything with neurological symptoms should be taken very seriously.
Please find someone else--even it means traveling a few miles. I travel two hours to see my neuro--it's the only doctor I trust. And you know what, I'd start with a clean slate--don't mention anything about the other doctor or the somatization thingy.
You sound like a really dear heart that wants to give someone else the benefit of doubt, but he's no longer able to safely give you the care that you deserve. In fact, I think he's causing more harm. Go to this doctor for colds, maybe, but I would no longer trust him for anything more serious than that.
Deb
Sweetie, you'll never get anywhere with this doctor. He's going to dig his heels in deeper and deeper and the door is closed even tighter into trying to figure out what the real problem is. It may not be MS, it may be another problem. But anything with neurological symptoms should be taken very seriously.
Please find someone else--even it means traveling a few miles. I travel two hours to see my neuro--it's the only doctor I trust. And you know what, I'd start with a clean slate--don't mention anything about the other doctor or the somatization thingy.
You sound like a really dear heart that wants to give someone else the benefit of doubt, but he's no longer able to safely give you the care that you deserve. In fact, I think he's causing more harm. Go to this doctor for colds, maybe, but I would no longer trust him for anything more serious than that.
Deb
My blood pressure is at an all time high after reading this he is nuts.
since when do they treat somatization with lryica???
Many may know I am going to school for counsleing mental illness, social work and am not an expert but All of my teachers say that with all of there work in the field (they still work with mentally ill) they have NEVER seen a true case of somatization and this is a city of over 100,000!!!!!
I could vent for ever luckily for you my typing is not working with my brain!
I also was said to be nuts years ago being sick and no one can figure it out, and will test next week it may happen again.
I did like others not trust myself and got tested I am not crazy, depressed due to pain and life changes yes not crazy. That made me feel better although I don't think I should have to be tested to see if I have a mental illness when I can't speak, or walk but whatever!!! and now that I am going to school for this good to have that experiance and seeing a counsler that can help with all the doctor **** is good too.
But if you are crazy then so are we! Please get a better doctor and report this one, you gave birth to that beautiful baby he just was there you give him far too much credit and unearned respect!!
your heart is so kind, but don't waste it on him.
So sorry your doctor is an az#
many hugs
Mary
since when do they treat somatization with lryica???
Many may know I am going to school for counsleing mental illness, social work and am not an expert but All of my teachers say that with all of there work in the field (they still work with mentally ill) they have NEVER seen a true case of somatization and this is a city of over 100,000!!!!!
I could vent for ever luckily for you my typing is not working with my brain!
I also was said to be nuts years ago being sick and no one can figure it out, and will test next week it may happen again.
I did like others not trust myself and got tested I am not crazy, depressed due to pain and life changes yes not crazy. That made me feel better although I don't think I should have to be tested to see if I have a mental illness when I can't speak, or walk but whatever!!! and now that I am going to school for this good to have that experiance and seeing a counsler that can help with all the doctor **** is good too.
But if you are crazy then so are we! Please get a better doctor and report this one, you gave birth to that beautiful baby he just was there you give him far too much credit and unearned respect!!
your heart is so kind, but don't waste it on him.
So sorry your doctor is an az#
many hugs
Mary
YOU ARE NOT NUTS!!!!
First of all, you NEED to find a need PCP.
Secondly, he should not be offended that you are trying to find answers. It’s your health, your life, and your body no one knows it better than you! His EGO is getting in the way of your health!!!!!!!!!!!!!!
It constantly baffles me how a doctor can look at a patient who was once active, energetic, and healthy, and decide the problem is all psychological.
SO many of us know what you are going through, but you keep looking for a resolve. It’s frustrating and ridiculously arduous, but keep looking because there are doctors who put their egos aside and will help you.
Is there anyone who can accompany you to the doctor’s appointments? Someone who can give support and input?
Your emotionally exhausted, and understandably so. It’s not easy to pick yourself up start trudging back up that hill, but that’s where the answers are…and you WILL find them.
Keep trying!
Wanna
First of all, you NEED to find a need PCP.
Secondly, he should not be offended that you are trying to find answers. It’s your health, your life, and your body no one knows it better than you! His EGO is getting in the way of your health!!!!!!!!!!!!!!
It constantly baffles me how a doctor can look at a patient who was once active, energetic, and healthy, and decide the problem is all psychological.
SO many of us know what you are going through, but you keep looking for a resolve. It’s frustrating and ridiculously arduous, but keep looking because there are doctors who put their egos aside and will help you.
Is there anyone who can accompany you to the doctor’s appointments? Someone who can give support and input?
Your emotionally exhausted, and understandably so. It’s not easy to pick yourself up start trudging back up that hill, but that’s where the answers are…and you WILL find them.
Keep trying!
Wanna
dear ericca,
i am reall y sorry you havvvve been going throught this.
I had been wherre you are, and remeebr well. Even to my uncertainy that since these doctors are experts. 'they' must know???
well , I should never let themm get to me, but i waas human an did.
I NEVER WNAT TO TO THINK I THINK YOU HAVE SOTAMOZTION DISORDER, I CAN NOT SAY WHAT YOU HAVE OR DO NOT HAVE.
The mental disorders are extremely complex.
When the third neeuro i say (topp and highly reguarded in their field) said I must have conversion disorder, and they never refered me to a psych. So i took it to myself and saw on.
Hold on to your exam with their findings. Remind youurself when you are doubting.
Anyway, I linked up with a CD (conversion disorder group) very wonderful small group.
I learned something s from them. the pain and suffering they daily expeeireince, is just as real as the neurology disorders attacking nerves.
They are treated with manyy or hte same drugs neurology use.
While their ddisease is " in their h ehads, it is no less real as 'orgnic' than neuro disease.
(so IMHO it is 'organic ' too, allthough not recognised as such)
It comes to them completely unconcious, out of their control. And not because they read something prior.
I in no way want you to think, i think you haave this, just to try to educattte and clearfiy a little.
I belive your phsycian was very much out of line!
I doo not know Canadian so much, and wondered whhy you have to take insurance papers to him...hum.
His deminer to you was way out o fline. It was unprofessionnnal of him.
Do you want to continue being his patient?
IFso, I am sure you can. MAy take energy.
I rememebr trying to not let them know how educate d i had made myself for fear they thought I was 'bringing it on to myself''.
But enoguh to let them know I was in control of my health care, and i understand.
Erica, listen to your soul.
Until YOU are sure you have the cooorrect dx's , DON:T give up...don;t givve in.
as tough as it is.
When you kneed a break (time off for good behavoir i call it) from doocs , then do it.
I wish you well,keep faith, amo
p.s. i forget the percentage, but MANY people with sotamaztion disorders (i.e. CD) are intime have finding for neurology re-diagnosis
i am reall y sorry you havvvve been going throught this.
I had been wherre you are, and remeebr well. Even to my uncertainy that since these doctors are experts. 'they' must know???
well , I should never let themm get to me, but i waas human an did.
I NEVER WNAT TO TO THINK I THINK YOU HAVE SOTAMOZTION DISORDER, I CAN NOT SAY WHAT YOU HAVE OR DO NOT HAVE.
The mental disorders are extremely complex.
When the third neeuro i say (topp and highly reguarded in their field) said I must have conversion disorder, and they never refered me to a psych. So i took it to myself and saw on.
Hold on to your exam with their findings. Remind youurself when you are doubting.
Anyway, I linked up with a CD (conversion disorder group) very wonderful small group.
I learned something s from them. the pain and suffering they daily expeeireince, is just as real as the neurology disorders attacking nerves.
They are treated with manyy or hte same drugs neurology use.
While their ddisease is " in their h ehads, it is no less real as 'orgnic' than neuro disease.
(so IMHO it is 'organic ' too, allthough not recognised as such)
It comes to them completely unconcious, out of their control. And not because they read something prior.
I in no way want you to think, i think you haave this, just to try to educattte and clearfiy a little.
I belive your phsycian was very much out of line!
I doo not know Canadian so much, and wondered whhy you have to take insurance papers to him...hum.
His deminer to you was way out o fline. It was unprofessionnnal of him.
Do you want to continue being his patient?
IFso, I am sure you can. MAy take energy.
I rememebr trying to not let them know how educate d i had made myself for fear they thought I was 'bringing it on to myself''.
But enoguh to let them know I was in control of my health care, and i understand.
Erica, listen to your soul.
Until YOU are sure you have the cooorrect dx's , DON:T give up...don;t givve in.
as tough as it is.
When you kneed a break (time off for good behavoir i call it) from doocs , then do it.
I wish you well,keep faith, amo
p.s. i forget the percentage, but MANY people with sotamaztion disorders (i.e. CD) are intime have finding for neurology re-diagnosis
WOW, I think T-Lynn nailed this one! Why else would the guy get so hostile?? This isn't money out of his pocket--it is your RIGHT to ask for and receive medical care! Start asking people you trust for GP doctor recommendations.
You didn't deserve that treatment, he was way out of line- PERIOD!
Hang in there,
Stacey
You didn't deserve that treatment, he was way out of line- PERIOD!
Hang in there,
Stacey
ZILLA, HAS IT RIGHT " OH THIS HONKS ME OFF "
SWEETIE, YOUR NOT A NUT JOB ,NOR PSYCHOTIC, YOU KEEP LISTENING TO YOUR BODY.
THAT 20 YEAR OLD GP (GIANT PAIN) IN YOUR HINEY NEEDS TO GO. EVIDENTLY AFTER 20 YEARS OF BEING YOUR GP,HE HAS LOST HIS KNOWLEDGE,KNOW HOW AND COMPASSION TO LISTEN TO A LONG TIME PATIENT ,THAT HAS ENTRUSTED HER HEALTH TO HIM.
FROM MY POINT,THIS GP NEEDS TO MOVE ON,WHEN A PATIENT PRESENTS WITH SYMPTOMS,GETS BETTER,PRESENTS WITH SYMPTOMS AND SO FORTH IT SHOULD RING A BELL IN HIS TINY LITTLE PEA BRAIN.
YOUR GP IS JUST MAD BECAUSE YOU WENT AROUND HIM,YOU STOOD UP FOR YOURSELF,YOU ASK FOR FURTHER TESTING(WHICH YOU SHOULD HAVE) AND HE'S MAD.
HE TELLS THE INSURANCE COMPANY THAT ITS SOMATIZIATION AND IF THE EVOKED POTENTIALS REVEAL SOMETHING ELSE,HE LOOKS LIKE THE PROFESSIONAL BABOON.
KEEP LISTENING TO YOUR BODY,WE ARE ALL HERE FOR YOU.
T-LYNN
SWEETIE, YOUR NOT A NUT JOB ,NOR PSYCHOTIC, YOU KEEP LISTENING TO YOUR BODY.
THAT 20 YEAR OLD GP (GIANT PAIN) IN YOUR HINEY NEEDS TO GO. EVIDENTLY AFTER 20 YEARS OF BEING YOUR GP,HE HAS LOST HIS KNOWLEDGE,KNOW HOW AND COMPASSION TO LISTEN TO A LONG TIME PATIENT ,THAT HAS ENTRUSTED HER HEALTH TO HIM.
FROM MY POINT,THIS GP NEEDS TO MOVE ON,WHEN A PATIENT PRESENTS WITH SYMPTOMS,GETS BETTER,PRESENTS WITH SYMPTOMS AND SO FORTH IT SHOULD RING A BELL IN HIS TINY LITTLE PEA BRAIN.
YOUR GP IS JUST MAD BECAUSE YOU WENT AROUND HIM,YOU STOOD UP FOR YOURSELF,YOU ASK FOR FURTHER TESTING(WHICH YOU SHOULD HAVE) AND HE'S MAD.
HE TELLS THE INSURANCE COMPANY THAT ITS SOMATIZIATION AND IF THE EVOKED POTENTIALS REVEAL SOMETHING ELSE,HE LOOKS LIKE THE PROFESSIONAL BABOON.
KEEP LISTENING TO YOUR BODY,WE ARE ALL HERE FOR YOU.
T-LYNN
I am so sorry you are going through this. What an a** is this guy.
I know words aren't enough, but know that so many of us feel your pain, having had the 'pleasure' of being called psychotic ourselves because we suspected we had this confounding disease and had the nerve (pun intended) to say so.
Hang in there!
I know words aren't enough, but know that so many of us feel your pain, having had the 'pleasure' of being called psychotic ourselves because we suspected we had this confounding disease and had the nerve (pun intended) to say so.
Hang in there!
Please don't let that doctor bring you down. They are human and they don't know everything, no matter what they may think.
If it was in your head don't you think that you would only feel bad when it would benefit you. That is what I tell the ones who don't believe me. I let them know that if I had control over when I was going to feel bad that it would never inconvenience me.
Hold on and try to stay strong. you have everyones support here.
Good luck
Angel
If it was in your head don't you think that you would only feel bad when it would benefit you. That is what I tell the ones who don't believe me. I let them know that if I had control over when I was going to feel bad that it would never inconvenience me.
Hold on and try to stay strong. you have everyones support here.
Good luck
Angel
You are all so kind to defend me, like that. When you don't even know me. I just wish I could trust my doctor to trust me.
I wonder if he may have to leave it as that, as nothing is showing up, and the insurance company has decided that's what I have.
No, 'cause then he wouldn't be mad for me getting unecessary tests done.
Sigh, I should just stop trying to get my head around it, and just realize I cannot change his opinion. I should be happy the neuro listened. Maybe I will still bring up this stuff with him. AFTER the evoked potentials.
I can't possibly have made my brain think up symptoms I didn't know existed until two years after I had them, can I?
Thank you, all. I am a quick recovery artist. :) By tomorrow I'll feel much better. I do already. My boyfriend is behaving like normal, joking and laughing with me. That helps. He DID tell me not to mention this ms stuff to my gp again. Leave it for the neurologist. HE believes in me. YOU people seem to, as well. :) THAT helps me to believe in myself.
Thank you, all
Erica
I wonder if he may have to leave it as that, as nothing is showing up, and the insurance company has decided that's what I have.
No, 'cause then he wouldn't be mad for me getting unecessary tests done.
Sigh, I should just stop trying to get my head around it, and just realize I cannot change his opinion. I should be happy the neuro listened. Maybe I will still bring up this stuff with him. AFTER the evoked potentials.
I can't possibly have made my brain think up symptoms I didn't know existed until two years after I had them, can I?
Thank you, all. I am a quick recovery artist. :) By tomorrow I'll feel much better. I do already. My boyfriend is behaving like normal, joking and laughing with me. That helps. He DID tell me not to mention this ms stuff to my gp again. Leave it for the neurologist. HE believes in me. YOU people seem to, as well. :) THAT helps me to believe in myself.
Thank you, all
Erica
Sweetheart, Friend...I only have two words that are valid for this situation..
FIRE HIM!!!!!!!!!!!!!!!!!!!!!
FIRE HIM!!!!!!!!!!!!!!!!!!!!!
Please find another doc.
you can even call the ms society and ask were the nearest ms specilest is.
know that your not a nut job, your just feeling hopeless and I think we have all been there at one time or another... hang in there and keep pushing for answers....
hugs
april
you can even call the ms society and ask were the nearest ms specilest is.
know that your not a nut job, your just feeling hopeless and I think we have all been there at one time or another... hang in there and keep pushing for answers....
hugs
april
You are stealing my lines. I do not mind. .)
the smilely only has one eye cause only one of mine work really.
the smilely only has one eye cause only one of mine work really.
Oh my Goodness, does it never stop....Please don't feel that all these things that you are going through are "only in your mind", I went through the same situation not too long ago. It wasn't my GP, but other specialists...Neuro, Rheum, Internists..(for my insurance purposes)...
so I ended up going to see a Psyciatrist whom after speaking with her for an hour and telling her what I'm feeling, all the test and results for how long etc...She told me it's not in my head and wrote a letter for my Dr and all to see, if questioned again.
I know it's a horrible time for you and you must hang in there and not take this abuse from your Doctor (even if you have had him for 20 yrs), I would suggest you try to find another Dr...and talk to one... I hate to hear you this upset, but I understand.
You are not alone with this situation, I'm sure alot of us were told the same thing, But...it's not very professional for your so called Dr to treat any patient like that....
even if he really feels that you have a Somatization disorder he has no right to treat anyone like that. How unprofessional is that???? That disorder is a real disorder and nothing to just rub off...and he should know better. I'm not saying that is what you have...you know your own body and how you have been feeling for many years.
I know mine and I'm still not Dxs...but I know that something is wrong with me...as you know something is wrong with you...so hang in there and tomorrow will be a clearer day to think things through...we are here for you..
andie
so I ended up going to see a Psyciatrist whom after speaking with her for an hour and telling her what I'm feeling, all the test and results for how long etc...She told me it's not in my head and wrote a letter for my Dr and all to see, if questioned again.
I know it's a horrible time for you and you must hang in there and not take this abuse from your Doctor (even if you have had him for 20 yrs), I would suggest you try to find another Dr...and talk to one... I hate to hear you this upset, but I understand.
You are not alone with this situation, I'm sure alot of us were told the same thing, But...it's not very professional for your so called Dr to treat any patient like that....
even if he really feels that you have a Somatization disorder he has no right to treat anyone like that. How unprofessional is that???? That disorder is a real disorder and nothing to just rub off...and he should know better. I'm not saying that is what you have...you know your own body and how you have been feeling for many years.
I know mine and I'm still not Dxs...but I know that something is wrong with me...as you know something is wrong with you...so hang in there and tomorrow will be a clearer day to think things through...we are here for you..
andie
Because
Answers
Should
Treat
And
Really
Determine, the rest of your life. Honey, you dont have a somatization disorder, fire that piece of **** of a Dr and find a nice hunky one. It never hurts! Hang in there Hon, we are here for you.
Love to Ya Girl,
Ada
Answers
Should
Treat
And
Really
Determine, the rest of your life. Honey, you dont have a somatization disorder, fire that piece of **** of a Dr and find a nice hunky one. It never hurts! Hang in there Hon, we are here for you.
Love to Ya Girl,
Ada
You really have me riled! This really is unprofessional of him who is to provide YOU a service! You are the one suffering, not him! My go* why did he go into the profession to begin with? My guess is that it wasn't to help others. For money, maybe? Maybe it's for some weird power trip.
I like what Michael had said to Rena--it stuck with me:
B.*.S.T.*.R.D.S.
Deb
I like what Michael had said to Rena--it stuck with me:
B.*.S.T.*.R.D.S.
Deb
After 20 years of "loyal service" (NOT)....time to reconsider and get a new doctor. I know you live in a small town, but surely there is someone else who will take this step by step and see it for what it is, sincerely, seriously, maturely, professionally!
And what does your bf say, is he able to go with you to this dr. and give him the straight business, if you know what I mean? (Then again, I'd be so angry I wouldn't even go back again, ever.)
I know we women are supposed to do it all ourselves these days, but for some reason, having a man there can only help. I am more than happy when my dh comes with me to an appt., if for nothing else than an objective point of view, and someone to run things by. When I think I have every stone unturned and all angles figured out, he comes up with a new one. And I am grateful!!
Ask the MS guy for a recommendation!
Take care! Vent, then ACT.
Suzanne
And what does your bf say, is he able to go with you to this dr. and give him the straight business, if you know what I mean? (Then again, I'd be so angry I wouldn't even go back again, ever.)
I know we women are supposed to do it all ourselves these days, but for some reason, having a man there can only help. I am more than happy when my dh comes with me to an appt., if for nothing else than an objective point of view, and someone to run things by. When I think I have every stone unturned and all angles figured out, he comes up with a new one. And I am grateful!!
Ask the MS guy for a recommendation!
Take care! Vent, then ACT.
Suzanne
Thanks for the thoughts. I think he's just fed up with me fighting this somatization disorder diagnosis. As I've seen a large number of specialists who haven't found any physiological reason for my symptoms. I have far too many, and over far too long a time, not to have lesions, apparently. He wants me to let it go. Accept somatization. Don't demand tests I don't require.
We live in a small town. There is a shortage of doctors here. Other than this issue, we have not fought over anything. I have respected him for twenty years. He brought my daughter into the world. THAT is the hardest part. That the man who has treated me for SOOOOOO long, and who used to think I was pretty smart, could really and truly believe that I could have somehow convinced my brain to make my body think it was sick, for whatever reason.
The only thing which makes me cling to the ms stuff is that I DIDN'T know there were things which I was complaining of. I was told neuropathic pain, they treated it as such. Why would my gp have taken me off the gabapentin I was on for neuropathic pain when I needed to high a dose and switch me to lyrica. Why would I need lyrica for a somatization disorder?
I just don't get it.
Thanks guys
Erica
We live in a small town. There is a shortage of doctors here. Other than this issue, we have not fought over anything. I have respected him for twenty years. He brought my daughter into the world. THAT is the hardest part. That the man who has treated me for SOOOOOO long, and who used to think I was pretty smart, could really and truly believe that I could have somehow convinced my brain to make my body think it was sick, for whatever reason.
The only thing which makes me cling to the ms stuff is that I DIDN'T know there were things which I was complaining of. I was told neuropathic pain, they treated it as such. Why would my gp have taken me off the gabapentin I was on for neuropathic pain when I needed to high a dose and switch me to lyrica. Why would I need lyrica for a somatization disorder?
I just don't get it.
Thanks guys
Erica
OH PLEASE DON'T CRY, IT IS NOT YOU AT ALL.
I AGREE WITH ZILLA ABOUT YOUR DOCTOR.
I AM SORRY THIS S---T IS HAPPENING YOU.
I WENT MANY YRS WITHOUT NOING AND THEN BAM!
DRS FINALLY BELEAVED ME.
I WISH I CAN GIVE YOU A BIG HUG.
I WILL BIG HUG TO YOU ERICA.
YOUR FRIEND KITT
I AGREE WITH ZILLA ABOUT YOUR DOCTOR.
I AM SORRY THIS S---T IS HAPPENING YOU.
I WENT MANY YRS WITHOUT NOING AND THEN BAM!
DRS FINALLY BELEAVED ME.
I WISH I CAN GIVE YOU A BIG HUG.
I WILL BIG HUG TO YOU ERICA.
YOUR FRIEND KITT
If you are psychotic then you have a lot of company here. This doctor has outlived his usefulness to you, no matter what. It is totally unprofessional for him to take it personally that you are getting other consultations. He has absolutely no right to get angry. His emotions don't come into the equation at all. He is entitled not to treat you anymore if he doesn't like your actions or words, but that's as far as it goes. It's not your job to salve his pathetic ego, for heaven's sake. So send him packing and find someone who respects the professional relationships we are entitled to from our doctors.
ess
ess
I'm so honked off, as T-Lynn would say!
WT* as someone else who's very colorful around here would say (but I can't bring myself to)!
This guy obviously can't control himself. You are NOT psychotic, NOR do I believe you have somatization disorder. I don't think your doctor even knows what that IS.
Calm down. It's not you, it's him. He's lazy and stupid. And cruel.
I'm just hurting for you. Stop crying. He's so not worth your tears. (Boy, how many times have THOSE words come out of my mouth?) But I mean it. Cheer up, girl.
Many others will chime in.
Hang in there,
Zilla*
WT* as someone else who's very colorful around here would say (but I can't bring myself to)!
This guy obviously can't control himself. You are NOT psychotic, NOR do I believe you have somatization disorder. I don't think your doctor even knows what that IS.
Calm down. It's not you, it's him. He's lazy and stupid. And cruel.
I'm just hurting for you. Stop crying. He's so not worth your tears. (Boy, how many times have THOSE words come out of my mouth?) But I mean it. Cheer up, girl.
Many others will chime in.
Hang in there,
Zilla*
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