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Anyone treating themselves good?
You know I need to ask this from time-to-time.....
Anyone treating themselves good? And, if so, GOOD and name it! I want to hear it.
And, if NOT, are you bashing and beating yourself up over things you cannot control? Do you need a talking to from me????
I'll start with a recent....while trying to chalk some things off my way too long laundry list - I bumped into a friend from the past who also has MS. We never discussed it - all I knew was that he got very sick years ago. Heck we've not seen each other since picking up and dropping off our kids at the same sitter years ago.
My good was just a simple conversation. It was terrific to have that mutual understanding. It put a little light in a dreary day.
So, spill your guts, doing anything for some simple instant gratification? A chat, or haircut even? Or, just beating yourself down. Do tell me ...or else, hahah
-Shell :)
Anyone treating themselves good? And, if so, GOOD and name it! I want to hear it.
And, if NOT, are you bashing and beating yourself up over things you cannot control? Do you need a talking to from me????
I'll start with a recent....while trying to chalk some things off my way too long laundry list - I bumped into a friend from the past who also has MS. We never discussed it - all I knew was that he got very sick years ago. Heck we've not seen each other since picking up and dropping off our kids at the same sitter years ago.
My good was just a simple conversation. It was terrific to have that mutual understanding. It put a little light in a dreary day.
So, spill your guts, doing anything for some simple instant gratification? A chat, or haircut even? Or, just beating yourself down. Do tell me ...or else, hahah
-Shell :)
Best Answer
Oh another is reading and some times posting on this form. I don't know much so mostly just read but connecting here is being good to me too. Perhaps the top good thing I do.
Friday night I decided I was tired of the dark and falling. So I called a friend and we went out and had pizza. Ok so pizza wasn't a great food choice but the time was.
It felt good to sit at a table and in the light too. We talked about how blessed we were. What we might be able to do. Yes we shared concern too, but I think that was good. We also laughed and had fun.
I really didn't need to spend the 20 bucks but it was maybe the best spent money. 3 of us ate and got a chance to feel normal.
Today I have power so I get to take a warm shower, do laundry and clean the frig. I am also boxing up extra pans and such. Boxing up stuff that doesn't fit but is still good and anything else I think might be useful and donating them to peole who lost everything in the storms.
I think that is being good to me. Feels like it anyway. - Raz
It felt good to sit at a table and in the light too. We talked about how blessed we were. What we might be able to do. Yes we shared concern too, but I think that was good. We also laughed and had fun.
I really didn't need to spend the 20 bucks but it was maybe the best spent money. 3 of us ate and got a chance to feel normal.
Today I have power so I get to take a warm shower, do laundry and clean the frig. I am also boxing up extra pans and such. Boxing up stuff that doesn't fit but is still good and anything else I think might be useful and donating them to peole who lost everything in the storms.
I think that is being good to me. Feels like it anyway. - Raz
It was a real treat to see you too, the other day!!! One of your people posted that he read STRESS is a large contributing factor in MS, and I must agree!!!!! It's extremely difficult to avoid, but your idea to get out and do ANYTHING to take your mind off of it, is not only a good idea, but a necessity!
I gotta head out and DO ANYTHING right now!! hahaha I hope everyone has a great day today!! Take sllowe's advice! She's a wonderful person that only wants the best for her friends!!!
I gotta head out and DO ANYTHING right now!! hahaha I hope everyone has a great day today!! Take sllowe's advice! She's a wonderful person that only wants the best for her friends!!!
p.s.
I treated the weeds in my yard very, very bad today. Yanked them out by the roots, raked them over the stones, hahah And, in return my legs are locked up! But, was worth it!
I treated the weeds in my yard very, very bad today. Yanked them out by the roots, raked them over the stones, hahah And, in return my legs are locked up! But, was worth it!
Fence is a small sacrifice for the great day huh, Alex!
Addi - I'll be sure to do one, on and off so we can keep a watch on each other. I know I need it too.
G-girl - I love farmers markets and fleamarkets!
Addi - keep an eye on the spot your in would ya?- and if it gets too hard to get out - please hollar! More than happy to tug and pull you out for some fresh air :)!
Hugs to you all. This was a pleasure.
-Shell
Addi - I'll be sure to do one, on and off so we can keep a watch on each other. I know I need it too.
G-girl - I love farmers markets and fleamarkets!
Addi - keep an eye on the spot your in would ya?- and if it gets too hard to get out - please hollar! More than happy to tug and pull you out for some fresh air :)!
Hugs to you all. This was a pleasure.
-Shell
I went to a Blame Sally concert last night with my sister, her partner, and my daughter. We ate good food, drank good wine, heard great music, walked back to sis's apt. in SF and slept there.
I went to the farmer's market this morning, and I'm relaxing now. At this very moment, I'm happy.
DH and I do some occasional counseling - more for a 3rd set of ears than any communication issues. We communicate quite well. We must for the shrink to say "Get outta here! I don't want to see you again unless things get ugly!" Of course this was all tongue-in-cheek...
I've been good to myself. Sometimes I feel good, sometimes I feel cr@ppy, but I try my best to be good to myself.
I went to the farmer's market this morning, and I'm relaxing now. At this very moment, I'm happy.
DH and I do some occasional counseling - more for a 3rd set of ears than any communication issues. We communicate quite well. We must for the shrink to say "Get outta here! I don't want to see you again unless things get ugly!" Of course this was all tongue-in-cheek...
I've been good to myself. Sometimes I feel good, sometimes I feel cr@ppy, but I try my best to be good to myself.
Gosh, all of these sound wonderful! Even though I am in a rough spot right now, it really does me good to read of the good going on with all of you (even when it brings tears, Mary!).
I think this topic would be a really good one to post every week like the what's going on this week topic we already have. Great idea, Shell!
Hugs,
Addi
Julie a cruise does sound great.
I had a marvelous day at the barn. I have not ridden in over a month. I rode better than I ever had. I guess I stopped trying so hard. I did everything my trainer asked and did it well. It was glorious. She was impressed and it felt good. The great thing about doing something fun is I forget about being sick. The riding does so much for my body. My balance was great to. With my ON I did keep running into the fence at first. LOL.
I hope everyone has a good week end. Eat something cool for me Pedialite stinks.
Alex
I had a marvelous day at the barn. I have not ridden in over a month. I rode better than I ever had. I guess I stopped trying so hard. I did everything my trainer asked and did it well. It was glorious. She was impressed and it felt good. The great thing about doing something fun is I forget about being sick. The riding does so much for my body. My balance was great to. With my ON I did keep running into the fence at first. LOL.
I hope everyone has a good week end. Eat something cool for me Pedialite stinks.
Alex
It's great no-one needs that big talking to! hahah Well, for those who didn't participate is this you? And, if so, go ahead, we'll be gently, lol
Getting back to blessings, girls day out sounds fab, so does de-stressing, and I'm definitely going to look into that couple retreat! Alex - have fun today, and hope your insides cooperate.
Julie, how good it's going to be just searching into these potential vacations! I want to do that too!
Love hearing about all your good. Gives me ideas of things to do. Can we do this again from time-to-time?
(((hugs)))
shell
Getting back to blessings, girls day out sounds fab, so does de-stressing, and I'm definitely going to look into that couple retreat! Alex - have fun today, and hope your insides cooperate.
Julie, how good it's going to be just searching into these potential vacations! I want to do that too!
Love hearing about all your good. Gives me ideas of things to do. Can we do this again from time-to-time?
(((hugs)))
shell
Julie, whether or not you have any health issues in May, I think you should go on a vacation, as long as you can manage it. You deserve it!
Keep in mind the hot weather/heat problem. You don't want to have to be indoors constantly. A cruise would be ideal. There are many leaving from Baltimore to the Caribbean, and to Bermuda, and elsewhere, I presume. That way, no big hassles getting to the ship.
Picture yourself lounging on one of many decks, reading a bodice-ripper novel, sipping something tropical. Then seeing interesting tourist destinations, swimming in aqua water, eating delicious foods, napping whenever, seeing a bit of the ship's nightlife, doing some shopping... Ah, heaven!
ess
Keep in mind the hot weather/heat problem. You don't want to have to be indoors constantly. A cruise would be ideal. There are many leaving from Baltimore to the Caribbean, and to Bermuda, and elsewhere, I presume. That way, no big hassles getting to the ship.
Picture yourself lounging on one of many decks, reading a bodice-ripper novel, sipping something tropical. Then seeing interesting tourist destinations, swimming in aqua water, eating delicious foods, napping whenever, seeing a bit of the ship's nightlife, doing some shopping... Ah, heaven!
ess
Mary, I am truly inspired by your life challenges over the past several months.
Shell asked what are we doing to be good for ourselves? Hmmm...Well, I have a biggie at least for me. This time of year, spring, has been a bad time for me. For the past 7 years during the months of April and May, I hvae either been in the hospital, having surgery, or have come down with something that has made me significantly ill. So I made a deal with myself. IF I can stay healthy, out of a hospital, and no MS flares, then I am going to take myself on a vacation.
I hvaen't been on a vacation in years. My vacation time, and sick leave from work have been used to cover my flares or surgeries or family emergencies. Well, if I can get through May then I'm headed out. I am having so much fun looking through brochures and reading travel section of the newspaper. I am thinking about going to a resort maybe in the Carolina's or even the Caribbean. Maybe a cruise. Never been on one before.
If anyone has any vacation destinations to suggest, send them my way. That is what I am doing to be good to myself.
Julie
Shell asked what are we doing to be good for ourselves? Hmmm...Well, I have a biggie at least for me. This time of year, spring, has been a bad time for me. For the past 7 years during the months of April and May, I hvae either been in the hospital, having surgery, or have come down with something that has made me significantly ill. So I made a deal with myself. IF I can stay healthy, out of a hospital, and no MS flares, then I am going to take myself on a vacation.
I hvaen't been on a vacation in years. My vacation time, and sick leave from work have been used to cover my flares or surgeries or family emergencies. Well, if I can get through May then I'm headed out. I am having so much fun looking through brochures and reading travel section of the newspaper. I am thinking about going to a resort maybe in the Carolina's or even the Caribbean. Maybe a cruise. Never been on one before.
If anyone has any vacation destinations to suggest, send them my way. That is what I am doing to be good to myself.
Julie
Finished two paintings and am working on two more.
Going horse back riding today have not been in weeks.
Yesterday my husband came home from work early and we too Grady and Polly for a walk on the trail.
Training Grady my Service Dog Puppy, we had our first official outing now that he is certified with the State. He did really well. We went to the Grocery store and several other places. Training him is tiring because of the time and patience but it takes me away from this disease.
Went to the Doctor yesterday trying to unravel the mystery of my insides, Why I have been losing a pound a day lately. Did a bunch of tests. Been doing all I can to keep my electrolites in balance which is not easy. I have been downing some disgusting concoctions to keep from having to have IVs. No fun foods for me so I have to have fun other ways than eating.
JSSL we went to the couples retreat. It was the best thing we did. It is on communication skills. They give you a great workbook. I was not prepared for the honesty it brought out in our relationship, but in the long run that is better. It made me realize how hard this thing is for my husband and how much I need to take his needs into consideration.
Alex
Going horse back riding today have not been in weeks.
Yesterday my husband came home from work early and we too Grady and Polly for a walk on the trail.
Training Grady my Service Dog Puppy, we had our first official outing now that he is certified with the State. He did really well. We went to the Grocery store and several other places. Training him is tiring because of the time and patience but it takes me away from this disease.
Went to the Doctor yesterday trying to unravel the mystery of my insides, Why I have been losing a pound a day lately. Did a bunch of tests. Been doing all I can to keep my electrolites in balance which is not easy. I have been downing some disgusting concoctions to keep from having to have IVs. No fun foods for me so I have to have fun other ways than eating.
JSSL we went to the couples retreat. It was the best thing we did. It is on communication skills. They give you a great workbook. I was not prepared for the honesty it brought out in our relationship, but in the long run that is better. It made me realize how hard this thing is for my husband and how much I need to take his needs into consideration.
Alex
Mary, happy walking today. Someone is sending you a break in the rain to have a sunny day so enjoy every step.
As for me- I'm heading to Columbus for an MS talk but taking a friend along and it will be a girl's day out. Food Network fans might recognize the name of Jeni's Ice Cream . . That will definitely be a stop - she has some royal ice creams out in honor of Will and Kate. I can't wait to sample her Stilton Ice Cream. I'm taking one of those styrofoam coolers that my copaxone arrives in and they will provide the dry ice to keep all my pints frozen on the drive home. It's my chance to restock my freezer.
I know all of you are ice cream fans, so check out her flavor... they are all excellent.
http://www.jenisicecreams.com
It doesn't get any gooder than Jeni's.
As for me- I'm heading to Columbus for an MS talk but taking a friend along and it will be a girl's day out. Food Network fans might recognize the name of Jeni's Ice Cream . . That will definitely be a stop - she has some royal ice creams out in honor of Will and Kate. I can't wait to sample her Stilton Ice Cream. I'm taking one of those styrofoam coolers that my copaxone arrives in and they will provide the dry ice to keep all my pints frozen on the drive home. It's my chance to restock my freezer.
I know all of you are ice cream fans, so check out her flavor... they are all excellent.
http://www.jenisicecreams.com
It doesn't get any gooder than Jeni's.
Mary, you have no clue how your post just jolted me out of a deep depression that has been on my back all day.
Thank you for sharing and bringing back to me...my blessings...
I send strength and hope to you during this time...
Hugs, Sumana
Thank you for sharing and bringing back to me...my blessings...
I send strength and hope to you during this time...
Hugs, Sumana
I read your story and it made me cry. The good cry. So you gave me a "good" today, too. Thanks!
Your terrific, Mary - you really are! I'm glad you shared it ALL! I see why it's good, and why you gave yourself yesterday. I'm glad to know you did not inherit it, and also grateful to hear of your sisters journey. If you told us before, I didn't remember. Clear baby, clear! Music to my ears.
Don't you fret over what you cannot change and pass to others - can't change it. We get through best we can, as will they.
(((Hugs)))
shell
Don't you fret over what you cannot change and pass to others - can't change it. We get through best we can, as will they.
(((Hugs)))
shell
I gave myself all of yesterday to cry and veg and ball and sleep and breathe big sighs of relief. Here are reasons these were GOOD THINGS for me.
-My sister survived breast cancer in 2006 with help from chemo, surgery, and radiation.
-A mammogram of her remaining breast was CLEAR in August, 2010.
-In January she told me the biopsy of a lump she had discovered was positive for breast cancer.
-At the same time, my brother was in the hospital with a brain stem stroke (or maybe MS).
My stress level was extremely high but I paced myself verrrry carefully and added light yoga and a sharing group to my routine. These GOOD THINGS helped release my pressure cooker emotions. I avoided the MS exacerbation I sensed was only half a step behind me.
-By February Sis had confirmation this cancer is metastatic (stage IV) and aggressive.
-As required by clinical trial TX protocol her blood was tested for BRCA1 and BRCA2 mutations.
-In early March she was told her DNA carries a BReastCAncer1 mutation. (We can recall only one relative who ever had cancer. That is our grandmother and she died of ovarian cancer after raising three sons. Apparently, one is enough and she is the link.)
-By late March a chemo combo started shrinking the tumor that had already invaded half of sis's breast. I’d seen an oncologist myself and a blood sample was submitted to see if I inherited this mutation as well. I wait.
The GOOD THINGS at that time were the hours long phone conversations Sis and I had. Both of us had been too long distracted by kids and commitments and career to do this before. It became a healing and strengthening time for both of us. As March faded into April I realized that despite MS limitations that would never go away, I was feeling better than I had in a very, very long time.
-I check the mail for DNA results every day (the doc said they might be sent to the house).
-Tax due day passes and so do the cold days the dog and my CNS on MS enjoy so much.
-My son is treated in stat-care and by urology for unusual symptoms in man his age.
-I struggle to control anxiety when I think about his problems linked to a + DNA mutation.
-My PCP sees signs of a flare and suggests I should think about calling the neuro for steroid TX. We are both worried that an exacerbation has finally chased me down but we also know it might be a pseudo-exacerbation from increasing heat and emotions. She says it's up to me to decide what to do. I decide to wait two days because I have an appointment with a different specialist.
-Yesterday, I was given my BRCA1 single site results during a follow-up visit to the oncologist. I did NOT inherit the mutation connected to my sister's aggressive type of breast cancer and therefore could NOT have passed it on to my own children.
I will always grieve the reality my sister lives as a result of her inheritance. I pray treatment will allow her to live many years to come. And as we have for decades, we will continue to celebrate the wonderful heritage that has given us a multitude of GOOD.
The GOOD THINGS I did for myself yesterday allowed healing waters of relief to flow over me. I slipped back into the general population cancer risk pool and invited my children and grandchildren to join me.
I'm so grateful I ONLY have MS. I'll WalkMS tomorrow. That's GOOD for us all, right? Then I'll give myself a week-end of GOOD meditation, GOOD relaxation, GOOD socialization and (hopefully) a little not-too-hot GOOD sunshine. By Monday I should have a clearer idea if I'm dealing with a pseudo-exacerbation or a psteroid-exacerbation.
Thanks to anyone who stayed to read all this. I understand many won't. That's OK. Writing this out was the GOOD I gave myself today.
Thanks Shell,
Mary
-My sister survived breast cancer in 2006 with help from chemo, surgery, and radiation.
-A mammogram of her remaining breast was CLEAR in August, 2010.
-In January she told me the biopsy of a lump she had discovered was positive for breast cancer.
-At the same time, my brother was in the hospital with a brain stem stroke (or maybe MS).
My stress level was extremely high but I paced myself verrrry carefully and added light yoga and a sharing group to my routine. These GOOD THINGS helped release my pressure cooker emotions. I avoided the MS exacerbation I sensed was only half a step behind me.
-By February Sis had confirmation this cancer is metastatic (stage IV) and aggressive.
-As required by clinical trial TX protocol her blood was tested for BRCA1 and BRCA2 mutations.
-In early March she was told her DNA carries a BReastCAncer1 mutation. (We can recall only one relative who ever had cancer. That is our grandmother and she died of ovarian cancer after raising three sons. Apparently, one is enough and she is the link.)
-By late March a chemo combo started shrinking the tumor that had already invaded half of sis's breast. I’d seen an oncologist myself and a blood sample was submitted to see if I inherited this mutation as well. I wait.
The GOOD THINGS at that time were the hours long phone conversations Sis and I had. Both of us had been too long distracted by kids and commitments and career to do this before. It became a healing and strengthening time for both of us. As March faded into April I realized that despite MS limitations that would never go away, I was feeling better than I had in a very, very long time.
-I check the mail for DNA results every day (the doc said they might be sent to the house).
-Tax due day passes and so do the cold days the dog and my CNS on MS enjoy so much.
-My son is treated in stat-care and by urology for unusual symptoms in man his age.
-I struggle to control anxiety when I think about his problems linked to a + DNA mutation.
-My PCP sees signs of a flare and suggests I should think about calling the neuro for steroid TX. We are both worried that an exacerbation has finally chased me down but we also know it might be a pseudo-exacerbation from increasing heat and emotions. She says it's up to me to decide what to do. I decide to wait two days because I have an appointment with a different specialist.
-Yesterday, I was given my BRCA1 single site results during a follow-up visit to the oncologist. I did NOT inherit the mutation connected to my sister's aggressive type of breast cancer and therefore could NOT have passed it on to my own children.
I will always grieve the reality my sister lives as a result of her inheritance. I pray treatment will allow her to live many years to come. And as we have for decades, we will continue to celebrate the wonderful heritage that has given us a multitude of GOOD.
The GOOD THINGS I did for myself yesterday allowed healing waters of relief to flow over me. I slipped back into the general population cancer risk pool and invited my children and grandchildren to join me.
I'm so grateful I ONLY have MS. I'll WalkMS tomorrow. That's GOOD for us all, right? Then I'll give myself a week-end of GOOD meditation, GOOD relaxation, GOOD socialization and (hopefully) a little not-too-hot GOOD sunshine. By Monday I should have a clearer idea if I'm dealing with a pseudo-exacerbation or a psteroid-exacerbation.
Thanks to anyone who stayed to read all this. I understand many won't. That's OK. Writing this out was the GOOD I gave myself today.
Thanks Shell,
Mary
OOh, couples retreat! The spa, and a Barby-Q and laughing w/cares on hold! Now that's what I'm talking about! Way to do it right Lilbit, JSS and MissL!
I wanna hear more!
I wanna hear more!
Having a BBQ with my honey and hanging out this weekend. Relaxing, laughing, and putting the worlds cares on hold for a little bit.
Thanks for the reminder to enjoy life!
Thanks for the reminder to enjoy life!
Good Morning!
I make it a point to treat myself good! I went out to dinner last night.....Got my hair done on Tuesday and a pedi & facial last Friday. I find that pampering myself helps me to feel "Good" even when I don't feel "Good!"
I love me regardless of the fatigue, constant stabbing pains, electrical socks throughtout my ENTIRE body, facial numbness, facial pain, and all the other persistent annoyances.....
I'm looking forward to a full day at the spa real soon :)
I make it a point to treat myself good! I went out to dinner last night.....Got my hair done on Tuesday and a pedi & facial last Friday. I find that pampering myself helps me to feel "Good" even when I don't feel "Good!"
I love me regardless of the fatigue, constant stabbing pains, electrical socks throughtout my ENTIRE body, facial numbness, facial pain, and all the other persistent annoyances.....
I'm looking forward to a full day at the spa real soon :)
Good Morning!
My DH and I are heading out of town for the evening and leaving the kids with our parents...LONG OVERDUE! I would say this belongs in the GOOD column.
We are also attending a couples seminar put on by NMSS while we are there, has anyone attended this? Thoughts?
I hope everyone has a great weekend and is doing something GOOD for themselves ;)
My DH and I are heading out of town for the evening and leaving the kids with our parents...LONG OVERDUE! I would say this belongs in the GOOD column.
We are also attending a couples seminar put on by NMSS while we are there, has anyone attended this? Thoughts?
I hope everyone has a great weekend and is doing something GOOD for themselves ;)
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It said to make sure, to set aside some time, for a stress release, a hobby, a book, etc.
I think, you "hit the nail, with the hammer", doing something "Good", would definitely fit, as a great stress release.
-- Socrates2k1