Back agaim

[opie74]

Sorry that I have been gone so long.  I have been diagnosed with primary immune deficiency in addition to my MS. I tool 4 months of IVIG then 5 weeks ago I changed to subQ. The dose I am on is the neuro dose (much higher) and not the PI dose. My neuro is treating me for both.

Yesterday I had an EGD with dilation and biopsy because I have had a return of swallowing issues. My gasterointerologist found GAVE disease. It is sometimes called watermelon stomach.  All the research that I can find talks about treatment to stop bleeding from it. As of now I have no bleeding.  I wonder if it is anything else to worry about or if it will stay benign.

[opie74]

I had some loss of feeling and lack of arousal issues a few years ago. I was given solute drop for other relapse spots and it came back better than ever!

[Poppy7402]

As you will know by now, everyone's disease course is very different with MS but there is no reason why you shouldn't get most/all feeling back and have a normal sex life again.

Many people on this site have had almost complete numbness and loss of sensation with relapses, to the point of having to schedule visits to the bathroom, only to have complete return of feeling over time.

Best wishes


Poppy

[SmartandBeautiful]

I wad recently diganosed with MS. Just recently I have had numbness and loss of sensation. I wanted to know if I will ever get any feeling back and have a normal sex life again if anyone could please. Help I would greatly. Appreciate it

[opie74]

I have always had a poor immune system.  The speculation is that the MS treatments have caused it to be even more susceptible to infection. I had to have picc line antibiotics last Fall for 3 months to treat staph orious that had set up in sinus for nearly 9 months. It had become resistant to all but Cubisin and Invanz.  So I guess what this means is that I will finally get some help fighting off the infection before it takes hold.
I am nervous to see what the GAVE disease holds for my future.

[supermum_ms]

Hey nice to see you!

I've been trying to understand what this actually means for you as an adult, and i'm no closer to understanding or finding something informative about primary immune deficiency and MS, so i'm really at a lose to know what to say.....

HUGS!! JJ

  

[opie74]

My children had soccer games today.  Sitting in the shade.dri king water. ..
Still over hot.