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611606 tn?1315517767

Hi EveryOne !!!

I hope this finds all of you starting off the Month of Sept. with a good note..

Me ? Not so Great, but what else is new.. ;-(

was scheduled to have a MRI done today while I will be sitting upright (way cool) but had to reschedule it because of Very Bad Bladder Spasms.. The kind like I was having when I first joined out group. The Good News is that it is scheduled for the 10Th, which is next Friday. I'll keep you all posted on how it goes.

I really like my new Neurologist, Dr. Scott he is in Pittsburgh. which is a ways out but so worth the trip. I'll call him tomorrow and ask if he has anything he can suggest for the spasms. I also have a cat scan and x-rays to get done of the kidneys  and bladder.. I wish it would just go to sleep.. LOL

I had such a nice visit with Lulu and her sweet hubby. They are such a Great Pair of People.. OK Lulu, that's enough blushing.. I only speak the truth.

I posted a few photos taken while they were here, so check them out, also a new one Giuseppe. He'll be 6 months on the 12Th. Where is time going???

I want to wish all of our Sept. Birthday People A Super Duper Happy Birthday and hope it will be a wonderful year for all of you.. Seriously, Have a Great Month, enjoy your Birthday cake "Eat, Drink and Be Merry""

I swear I want to be on line more, but Lulu can attest too this crazy, lazy computer I have. It has a mind of it's own...

I love and miss all of you so much, so now I am going to go and try to catch up with what is going on with each of you.

Sending out Love Filled Hugs to all of you Daily, so remember when you see or feel a breeze you just received a hug from me..
{{{{{~!~}}}}} DJ
10 Responses
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1396846 tn?1332459510
We haven't met, I am Paula and I am glad to finally meet you. Lulu talks about you quite often. :)

Paula
Helpful - 0
645390 tn?1338555377
(((((((DJ))))))))),

So nice to hear from you!  I think of you often, and am glad the Lulu has been updating us on you.  Glad your move is behind you, and I do hope they can give you something to help with those darn bladder spams.

Glad you like your new neurologist also.

You are a wonderful women and I am sending you big hugs to you across the state line,

Love,
Michelle
Helpful - 0
1312898 tn?1314568133
Hi DJ,  

I'M SO GLAD TO SEE YOU HERE ONLINE.  WE HAVE HEARD VIA LULU OF YOUR RECENT TRIALS AND DIFFICULTIES.

I'M SORRY TOO THAT YOU AREN'T DOING WELL.  HOPEFULLY YOU WILL GET SOME RELIEF.  

I WAS DIAGNOSED WITH PRIMARY PROGRESSIVE ABOUT A MONTH AGO.  THE QUICK PROGRESSION I AM EXPERIENCING IS FRIGHTENING.  SOMETHING NEW OR WORSENING AT LEAST ONCE A WEEK.

ANYWAY,  WE MISS YOU WHEN YOU ARE GONE!!!

HUGS,      

RED
Helpful - 0
1386048 tn?1281012333
hello,

we have not really "met" yet, but i have been following lulu's posts about you and am delighted to read this one from you!

i do hope the bladder spasms calm down for you--you have such a wonderful, positive attitude it only seems fair that they would!!

breezy here in canada today too...must be all of those hugs you sent out!

here are some coming back your way...

xoxox michelle
Helpful - 0
198419 tn?1360242356
Hi DJ,

I cherish the picture Lu sent me of the two of you! Soooo very special to me. It's right at my fingertips in my phone. I saved it and look at it when I need a smile!

I know you are struggling, but your words here show how much you give to all of us no matter what is slowing you up, whether it's the MS or a slow computer - nothing keeps you out of our lives and that will never change.

Love you much, and it's a pleasure to read your post this a.m.
xoxoxo back to you,
-Shell
Helpful - 0
667078 tn?1316000935
DJ,
  I hope they can help your bladder. You really deserve a break. Your kitty is beautiful. Hang in there.  I have a picture of MoonPie on my photos in a pose only a cat could do.

Alex
Helpful - 0
1253197 tn?1331209110
Hi DJ

How lovely to hear from you and your posts are just filled with compassion and love.

Let's hope that by the tiem of your next scan your bladder spasms have calmed down. Poor you....if it is not one thing it is another and it is the unexpected and the uncertainty which is so hard to cope with.

Lovely breezes outside today here in England so hugs floating about all over the place!!

Love Sarah :) xxx
Helpful - 0
Avatar universal
DJ!

How good to "see" you here.

Lulu has done a great job of keeping us up to date but it is nice when you can check in yourself.

I am sorry about the bladder spasms, I hope they are soon under control.

I'm gonna go have a look at your pictures now.

{{{{{{Mand}}}}}
Helpful - 0
293157 tn?1285873439
Hi DJ, its nice to see you back online even if it's just one quick hello.  I myself haven't been online as much as I'd like.  Sorry to hear you had to pospond your MRI, but you don't have to wait too long

My vision has been  acting up, and I saw  neuro opthomologist and he said it's ON and most likely my second bout of it. But it s been getting better now that the weather is cooler and he doesn't think I need steriods to help unless it got worse again.

so take care friend and let us know how thng go when you have a  chance and feel up to it.

hang in there
wobbly
Helpful - 0
649926 tn?1297657780
DJ,

  Wow I feel honored to be the first to see you post yourself instead of the updates from Lulu (which we love and isn't she a doll)! Now she's blushing again, lol.

I'm so sorry that you had to cancel your appt but at least they are going to make it soon and you don't have to wait eons on the reschedule.

I hope that your crazy computer behaves itself so that you can visit more often and keep us posted on how all of these upcoming tests go and how you are feeling.

It's so good to have you back & thanks for posting the great pictures too!

Hugs
Erin :)
Helpful - 0
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