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1168317 tn?1330262837

Baclofen for spasticity

Hi folks
Hope you are all as well as can be
Sorry I've not been on for a long time but I've been trying to come to terms with my DX of PPMS
I'm in the exceptence stage now after such a roller coaster journey !!
Any way my question is about spasticity with witch I suffer terribly.
I'm on 20mg of baclofen 3 x  daily  and think I'm getting used to that amount now after tiptrating the dose over the last 18 months.
How much more can this be increased before I am at the limit ??
Many thanks
Bairdy x
4 Responses
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1168317 tn?1330262837
Hi Laura
Yea not been on for a while but will try  and stay around this time  and try to help others as you lot have helped me.
Things have been getting worse for me symptom wise  my walking is now very poor over any thing more than 50 yard due to fatigue I use a wheelchair for any distance
It's the spasticity and dystonia that's making things worse too. Thanks for the info regarding the baclofen dose I will speak to my GP
Regards mick x
Helpful - 0
572651 tn?1530999357
Hey there, stranger.  Besides the spasticity I hope things are going better for you.

Baclofen doses vary, but I know they can be upped to around 100mg or so without problems.  I am on 70mg now.....  

stay in touch, Laura
Helpful - 0
1168317 tn?1330262837
Thanks I see him in July but think I'll see my GP before then. I was just wondering what doses others were taking.
Regards bairdy
Helpful - 0
Avatar universal
I'd ask my neuro but willing to bet he will up your dosage.  I had trouble getting used to mine in the beginning but handle it well now.  Or you may have to take it 4 times a day.

But be sure and ask him, he can't keep up with how you are doing if you don't
Helpful - 0
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