Maybe increasing my carbamazepine too at night may help, I'll see what my neurologist suggests. I know you should never blame everything on your MS but it is hard sometimes! Keep well everyone
DV I bite my tongue during the day as well. I have no control at all. I am hoping more anti seizure medication will help.
This doesn't occur to me while sleeping but the title of your post got my attention because I've noticed I am frequently biting down on my tongue while awake, when my neuropathic pain is at its worst. Kind of like gritting one's teeth I guess. I'm not actually aware I'm doing it at the time, but I can actually see the impression of my teeth around the edges of my tongue. I notice it every day when I brush my teeth.
Thanks for the replies, really appreciate this. Will see about getting a mouth guard made, good idea, that should protect my tongue. Best wishes Heather
I do this and it is due to myoclonic spasms. I actually have broken two teeth as well as biting me tongue and the inside of my cheek. My dentist made me a bite guard. Normal people have these spasms in sleep starts.
Alex
Hi Heather. I have no diagnosis of MS..... I guess I'm a limbolander
I have had this happen to me on several occasions. Dead asleep and then this lacerating pain in my tongue, under the left side of the tip, awakens me. I did not think that I had bitten the tongue and it certainly was not sore at the time or the next day. Usually when you bite your tongue it leaves a mark or pain of some sort. I guess these symptoms are a little different in that respect.
Weird things certaianly happen.
P