Botox for DSD???

[cuttersmom]

I went to Mayo Clinic in AZ this week and the neuro there confirmed my dx of MS. Because of my bladder issues, he referred me to the urologist.  During my consult with the urologist, although he wants to do another Urodynamic Study with video this time, as potential treatment options, he mentioned the Interstim (which I'm kind of hoping for) along with botox.  I know I saw in a post that at least one person has used this treatment and I'm just curious about it.

Any help???

[Lulu54]

Welcome to this side of the mountain where the grass is not necessarily greener! :-)

I wrote about the interstim a while back after my urologist proposed we try the temporary one to see if it woudl help my bladder.  I discussed it with my neuro and we have put that thought on hold for now - if you have the interstim you will have no more MRI's because of the implant. Just starting on the Copaxone it is important to track its progress in slowing your MS.   PLUS the success rate of this interstim for MS patients is not that great according to my neuro.  He said the urologists love it and have great success with other bladders but he doesn't recommend it for our disease.  Please think this recommendation over thoroughly before agreeing to do it.  

I've read about Botox and hear some good reports about it helping but the treatment has to be repeated every 9-12 months if I remember  correctly.  It might be worth considering as an option.

Again, welcome to the club.  I'm sorry you're here with MS.
Lulu

In the meantime did they give you information on self-catherization?  there are several of us here who control our bladder that way, and most of us are doing ok with it.  

[fortywhat2]

Hi,
I don't have any info... sorry!  How are you with your Dx?  Good Luck
Debbie
~live as if your dreams came true~

[cuttersmom]

Thanks Doni.  I certainly hoped the dx was wrong, but was not expecting it to be.  I'm OK with it, and as I've said before, I feel VERY lucky that the only issues I have at this point are bladder (bowel & sex to some extent :)..), but obviously I could be MUCH worse off as others here are!

I received my Copaxone last week, and the nurse will be coming next week to go over the shots.  I'm thinking about doing them free-hand rather than using the autoject.  I've read some posts where people felt there was less injection site reaction doing it that way.  Anyone have any thoughts on that???

[doni54]

Hi,

Well, you were expecting a confirmation and you got it.  How do you feel about all this?  I'm glad you have your dx now and can move forward with your treatment.

Good luck with the urologist and hope things go well and you can get this taken care of.

I don't know anything about the botox, but I'm sure others who do will answer your question.

Take care of yourself,
doni