I'm a 39 yr old Male.I have been suffering from this for about 20yrs, it started with twitching in my eye, legs & arms. All but the eye have slowed over the yrs in frequency, but I've had other symptoms over the yrs - prickly, numb feelings in legs, strange pains in my hands and forearms, pins and needles in my hands and feet... There have been other strange sensations too.
4 months ago I had an attack of some kind, it lasted for about 5 weeks, I had vertigo, dizziness and nausea.A heavy feeling in my legs and I noticed my left eye is blurry. My balance was off and I felt like I was wobling while I walked.
It went away by and large, but 6 weeks later I got this terrible squeezing feeling in my ribs, back and throat, it lasted for 2 weeks. I came across articles about the MS hug. When I looked at the symptoms of MS, i ticked almost all the boxes, so i went to see a neuro. The brain mri was clear, the doc only saw the report, but not the images and is relying on the radiographers report to dx. (I am not happy with this)
I have symptoms daily, my hands and forearms get sharp pains that come and go, If I grip something tight it hurts, if I do nothing it still hurts, my eye twitches non-stop and I get beating twitches in my arms, legs and occasionally my cheeks and lips. My legs feel stiff and crampy often and i have been unusually fatigued over the last year.I also get lightning-like shock pains in my arms and torso occasionally (they r scary!)
From my symptoms, if it's MS at all,it seems that there would more likely be sclerosis on my spinal cord than the brain. My neuro only wanted a brain mri. Now that its clear he has basically washed his hands of me, saying if its clear then the dx isnt likely to be MS.
My Vit D test cam back as extremely low, so I have been supplementing - I know there's a connection between low Vit D and MS.
My problem is that I am suffering in silence, i know that these symptoms r real, and I fear that if its MS, I have most likely had it for many years. Is it possible that I have progressed to a new level of the disease and could a clear brain mri be a false negative? I dont feel like my neuro is taking me seriously at all :(
Any advice? Should I insist on a spinal mri or blood tests or even a spinal tap?
Apologies for the long winded story, but honestly I have had so many symptoms over the years that I have learnt to cope with them. It is a daily struggle, and I am still in limbo.