COBOB - balance question

[JemmAus]

Hi Bob,

Further to the discussion on cerebellar lesions and balance (cr*p, this sounds like a business letter!) I was wondering if you know if balance issues that are migraine-related would be similar to MS lesion realted ones?  Unclear question sorry, let me try again:

If one had migraine-associated vertigo, does the vertigo subside/dissipate during sleep the same as it does for MSers with cerebellar lesions?

I have a cerebellar lesion and appalling balance issues when I get out of bed, and have always wondered why I feel fine when I wake up, lying in bed, (and dreading getting up). So do you know if the same mechansism which protects one while asleep takes hold if you have migraine vertigo?

I hoep that makes sense - it's very early morning here, and guess what? I'm dizzy ! LOL

Cheers

Jemm

[essdipity]

Regardless of what you call it (and I've seen many descriptions), I've had several extended periods where I've felt exactly like I was on a rocking boat. By 'extended' I mean up to a year each. Not now, glad to say, because it's bad enough trying to walk on an actual broken ankle.

Add general MS balance issues into the mix and we have a mess. Yesterday I told my PT that I seem to be walking like Chester on Gunsmoke. (Anyone remember?) When my balance gets bad, I'm like a bombed Chester.

ess

[COBOB]

No JJ.  Dizziness is one of those terms people use when they can't differentiate.  I don't have vertigo and I'm not going to pass out. Not light heded, so I'll take Failure of Equilibrioception.  My brain can't seem to figure out where my body is relative to it's environment.

Bob

[supermum_ms]

was it something I said? lol (bump)

[supermum_ms]

I read the site you listed Lulu but it wouldn't stick, i did notice it didn't really mention lesions or MS, and I suppose the listed types just made me confused because i didn't really feel i fit into any of them, almost all included dizzy and i'm not dizzy. The symptoms list though, i could tick a lot of boxes but after reading everything on the site, i'm now confused because i could have 2 different issues! lol

btw Jemm supplied me with this, which I totally understood.......  

http://www.unitedspinal.org/msscene/2009/03/03/cerebellar-ms-a-case-study/

Issue 1: eyes closed balance - whilst standing ( same thing happens if looking 'straight' up, head need not move and its from any position) - i fall backwards within a second or two, physically and mentally i can feel myself falling backwards, like falling in a dream is the best i can explain it. I dont feel dizzy but there is a mental change, an awareness, its quick and the feeling and fall stop as soon as I open my eyes. My knees dont buckle as you'd expect in a faint or near faint, its more a straight fall backwards. If i tilt my head forward and close my eyes i'm out of balance, not falling but I sway as i counter balance the backwards tilt, but i cant do that unless my heads bent forward.

Issue 2a: eyes open - walking balance, it isn't helped by my puppet walking but walking balance is still a seperate issue to the way i walk. I'm constantly scanning for ques of where i am in space, physically through my feet and hands as well as visually. I'm scanning because my sensory system is lying to me and totally unreliable. I dont wear shoes because I have to feel the ground, grass, sand or gravel are sensory nightmares because it squishes under my feet. In my head i know the ground is solid and stable but my reaction is that the floor has suddenly moved or is constantly moving, I step into invisible sink holes. I'm as unstable as a toddler learning to walk! I trip, i wobble, i fall!

Issue 2b: eyes open - standing balance, I should have all the sensory ques telling me i'm vertical, standing up right but they dont work. I can feel the ground through my feet, i can feel the object or person next to me and i can certainly see that visually everything is at the right angle it should be. All the ques are there and still i will start to lean at a weird angel or just topple over like i've been pushed. Most of the time i'm totally unaware i'm moving or falling until i'm caught or i hit the ground, lol which ever comes first. I sometimes, from a sitting position fall off chairs or gulp the toilet. When i conciously change my position in space i have to brace for impact lol i mean brace my stance to maintain balance to try to prevent a fall.

There is no dizzy, or light headedness or vertigo or spin etc. nothing and i do know that feeling but it is notibly absent with what i keep experiencing. If you have any clues on where this fits please let me know.

Cheers........JJ

[COBOB]

While I appreciate the defense and deserve the hand slap, this has nothing to do with dizziness or balance.  Now that the missing items have been correctly cited by Lulu, I suggest we get back to the topic of Dizziness and the specific subtypes and what we experience as part of our disease(s).

Bob

[Sumanadevii]

When you publish something on the internet without a formal copyright, you put it in the public domain.  If you wanted the material protected, it should have been registered for copyright.  It is a simple process.  My husband owns many.