Hey gang! I've been hiding in the background here lately, debating, accepting. My last neuro visit ( about 2 months ago) really busted my chops. I now feel as if I have wasted the last year of my life with this guy. Perhaps he is correct, and my Vitamin D deficiency is the underlying culprit to all my problems, I just don't know anymore. He told me everything from, it's probably your weight that is causing your problem, to it's just carpal tunnel.
I decided to accept that perhaps he was right. 3 weeks after I left his office, with my new script of Vit D in hand, I actually started to feel a little better. On top of that I started physical therapy, which was helping a bit. But that's when hell visited my front door.
It took going to my family doctor, who checked me for a UTI, to going to my Urologist who said it was spasticity of the bladder, and then finally the emergency room, that didn't have a clue as to what was wrong with me.
Ends up, it is spasticity, now in my whole abdomen. A completely new problem, on top of the spasticity that already exists in my arms, legs, and face. I thought I knew what pain was before this. I tell you right now, I was wrong. To have your guts feeling like they are ripping apart from the inside, and there is nothing you can do about it to ease the pain, is quite a sensation. Now to eat or drink without pain is a challenge, as my throat and stomach start to seize ever time. To feel where the food actually is in your intestines as it moves from point A to point B. And lets not forget about the sides or the diaphragm, the chest, I mean everything in the abdomen.
I am now on 2 medications to help me pee. Flomax and Sanctura. I started a new med for the spasticity as well, Zanaflex. Between the sanctura and the zanaflex, I have been pretty dang tired. I feel myself slowly spiraling down that hole I lived in for 4 years, depression. I am fighting it oh so much. I really do not want to go back there ever again.
I just don't know what to do or where to turn for help anymore. I know I have something wrong with me, seems that I'm the only one that knows it. My work is suffering so much, they don't see anything wrong with me, and are only going on what I tell them. I feel worthless as a man to my wife. I am really at this point, putting up a good front for my 6yr old daughter, I want her to have a normal happy childhood, and not live under the stress of having a sick parent.
Ok, I won't go on and on, so to tie this up, I may have some sort of a new lead. It seems that my lactic acid levels are elevated, and have been on multiple blood draws. Perhaps there is something there that can be read into.
I apologize for two things, one, for lurking around in the background, and not at least saying hey every now and again
Two, for making you sit there and read through all of this. I know it's a bit all over the place, I just have so much going on in life that it's hard to pinpoint on one thing. And here I go, still typing, still not ending this post, Lol ;-) .
Ok, good day to you all, thanks for listening to me blather on and on.