thanks lu, it would be great if we had a program for that. I used the ms symptom checker here and took it in to two doctors. One threw it back and said "I can't interpret that", the other spent time with it but incredibly tedius. A program that found trends and interpreted them would be cool
I also think its a great idea though sometimes depending on your neuro's personality type, any list is interpreted in an unfavourable light, well maybe thats just my experience. No matter what i've written down it has never been read, a brief look of annoyance (I always watch their face) and its simply ignored. The only dr that has ever read a list i've written is my GP, he reads, his eyes seem to pop and then he gets serious. With out my list i'm a tad lost trying to remember things, so i'll continue to write my list or take photo's, even if its only for me.
I know its ridiculous in today's age of technology, people google everything no matter how old or young they are, patients are informed and the dr's that dont like that or read more into it than simply what it is, should just accept that the majority of their patients are no longer ignorant! The reality is, some dr's do read more, so when you do write your list, it is better to use your words and not the medical names, unless that medical term has been dx by a dr. For example 'numb' is better than using the medical term 'paresthesia'
I sometimes think the photo's i've taken of my purple feet and engorged veins are graffic and harder to dismiss than the other things i feel but aren't visible, so take photo's and take videos of a muscle in spasm etc it will help document it all.
you're so right, JJ. Some docs are threatened or put off by the patient offering any supporting materials.
@Red - this could be done simply on a piece of paper, and doesn't have to be done on a computer.
The brilliance of this idea to me is keeping it simple.