Aa
A
A
A
Close
Multiple Sclerosis Community
9.17k Members
645800 tn?1466864555

Constipation, and other stuff

Man I didn't really know what to use for this topic. It has a lot to do with what has been happening to me lately and my trip to the VA hospital today. But after asking Quix privately about this she suggested I post so that this topic could be discussed. This could turn out to be somewhat long, but I hope that it is not too long for all to read.

So I spent 7 hours today at the VA today mostly dealing with a constipation issue, but also a short visit with my friend Dave who is still in the hospital after abdominal surgery on the 14th.  While they supposedly have fixed the problem with his intestine, he still is not doing too well and still has not gotten any accurate indication of when he will get to come home.  Just shortly before I got to his room he had another vomiting episode and the nurses were in the process of cleaning him up. I kind of suspect that they will be going back inside of him again to try and find out what is going on.

Anyway as I mentioned earlier I have not had a normal BM since the 13th of August. During this period when I have gone it has been mostly clear liquid and gas that has come out of me...NO solid or even semi-solid material at all. After explaining all of this to Quix in a PM she told me that it was constipation even though I don't feel constipated as we don't alway feel this due to the neurological damage in out bodies.

At the VA the use the ER as a walk-in clinic as there is no way to get to see your PCP within any time less than 2 months. So I tell the receptionist that I have not had a BM since the 13th and I am then seen by a tech to have my vitals checked. My BP was 186/98, o2 was 99%, and temp my normal 96.5. The tech didn't tell me my pulse rate.

Next I am seen by a nurse and he has me stand up to take my vitals ( probably because the BP was high) and it was then 165/96, pulse 54, and o2 95%. I then tell him what is going one and I am classified as non-emergency and told to wait in the waiting area. As I am waiting I wonder about why my 02 level dropped to 95% while standing.

After 5 1/2 hours they finally take me back to an exam room to be seen by a doctor. When the doctor comes in about 20 minutes later the first thing he says is "I understand you are having trouble with diarrhea. " Here I though that all nurses knew the difference between constipation and diarrhea.

After I straighten out the doctor on what is going on, that I have Neuro problems and IBS. He tells me he is no GI expert but will try some experiments to try and get things working right again. So I am to use Metamucil ( 1 tsp each day) and if things are still not working right in 1 - 2 weeks I should come back. He also gave me an Rx to help control the spasms in my IT for the IBS and put in a referral to a GI doctor to have them get me working correctly or at least better down there. I have been talking with my regular doctors for over a year about the problems I have been having with no referral from any of them.  So that least that is one good thing that may come from this. When I picked up the Rx for the IBS med the first thing I noticed is that one of the side effect can be constipation. So I will hold off taking it for at least a few days to see if the Metamucil works.

Speaking of IBS, as it was 6PM by the time I left the VA I stopped for dinner in Nashville. Every time I eat up there not only do I have to use the men's room at the restaurant before I head home, I also have to stop twice on the way home due to the IBS. I did my normal routine stops on the way home but was not able to go. Not sure if this means the constipation is getting worse or the IBS was not active for some reason this time.

I'm not sure what Quix wanted us to discuss on this topic but I think it probably has to do with:

What the signs of constipation are when you can't feel being constipated.
How to treat it before you end up having to see a doctor


Dennis


31 Responses
1394601 tn?1328035908
I have been numb so long, I do not know the signs.  I just keep a schedule for bm's.  If I miss a day, the next day I begin with 6 ounces of prune juice.  If that doesn't work, I add another six at lunch.  I keep adding until I am able to go.  I have never had more than three glasses at 6 ounces.  I drink plenty of other fluid with the prune juice.

Maybe this will help.
560501 tn?1383616340

   Ironic you posted this at just the right time....Good advice Quix!
I was never so happy to have finally had a BM yesterday that I was doing the Happy Dance!  sounds crazy I know but we never really appreciate the little things in health that we DO have....Such as regular Bowels!

   I went like many many days w/out one.   I finally took the Old moms remedy of Phillips Milk Of Magnesia.......i went w/ in 4 -5 hours but it was not solid and I knew I still needed to go. So then I went and got stool softner, lots of water, and then BAM!
It worked....Thank You God! I said to myself. But I was starting to think that perhaps I had a blockage or cancer or something....you know how your mind starts wondering...Lol

     I wish you luck. And make sure you drink lots of water w/ that fiber...if not, it could possibly do the oposite and take longer to go :(   No fun there.

Take Care,
~Tonya
1045086 tn?1332130022
OK Dennis, I'm gonna tell you my experience in hopes in can help.  I have IBS too.  I think lots of MSers do and that it has to do with the ANS influence.  

Once upon a time when I was on home IV antibiotic therapy and pain meds (they stop up the gut in a minute) following hand surgery, I got so constipated that NOTHING was forthcoming for two weeks.  At that point the term goes from constipation to obstipation (obstinant bowel, I guess).

When I was miserable, in pain, nauseated and unable to take in anything but an occasional cracker and sips of water, I too ended up in the emergency room.  Like you, I found that the personal there do not consider this anything to be overly concerned about.  I may have even provided their topic of entertainment for the evening.  

But when they didn't solve the problem on the first visit they had to deal with my return trip (the thing their own instructions say to do if your symptoms continue).  They ended up admitting me that time.  The experience almost made #1 on my list of worst and saddest medical encounters.  The MS diagnostic journey tops it only because it took longer to find the doctor with a solution.

Without making this tale longer than necessary, I'll tell you the solution.  Once an abdominal x-ray has determined that true constipation/obstipation is the problem, a doctor needs to order a container of the bowel prep liquid used by patients in preparation to have a colonoscopy.  Take the jug home, fill with water and drink a cup of it every 15 minutes until you start to go.  You can stop drinking at that point and discard the remainder of the jug's contents but DO NOT stray far from the toilet for a while.

Once you have this relief you can work to establish a routine that keeps your bowel eliminations regular.  I think that varies from person to person.  For me, the best thing is an ounce of ground flax seed in 3-4 ounces of yogurt every day and a stool softener taken twice a day.  

It took me close to four years of trial and error to find my personal successful combination!  It's always preferable to avoid laxatives as a first line solution.  Regular use of them can cause problems but softeners and regulators (like the Metamucil) are fine if they work well for you.

These days if I stick to my usual diet and med routine I'm pretty regular.  But I watch myself carefully and if it's been 3 or 4 days since I've gone, out comes MOM (Tonya's recent friend).  I find that with IBS, just when you are doing really well over a long period of time, if you aren't careful you will realize too late that it has been too long.  

Sure hope this helps someone because it's a tale I hate to tell.
Mary
1396846 tn?1332463110
I really never thought I had a problem with constipation. I had my gallbladder out in 2004 and ever since then I have loose or runny stools. Everytime I eat I go, so needless to say, when I go to a public affair I tend not to eat and if I do I make sure it is something very small as for fear of having to run to the bathroom.

I went to my PCP a while back because my stomach was so bloated I looked like I was pregnant, I am a big girl but this was crazy. He did some poking and proding and tapping. Told me that he thinks I am backed up. I asked how that was possible since all I do is go and he said he isn't sure.

I go get the xrays and sure enough I am backed up. Then I listened in on the Teleconfrence about bladder/blowel issues and I finally understood how this was happening.

The doc mentioned that all the watery loose stools is what is getting around the edges of the constipation and that is what leads to bowel incontinence. My fear of loosing control of my bowels has been in my head for many years. Which I have a couple of times, but nothing I want to talk about. lol

Taking metemucil or citrucil (spelling) on a daily basis has started helping me, now I have a normal bowel movement every morning, but I still have the urgency to go everytime I eat so I am guessing it will take a bit longer or there is something else going on.

Anyway I hope that you find a soulution for your constipation, this is a good topic that most of us wouldn't want to bring up but it is out there and needs to be addressed so thank you Dennis.

Paula
645800 tn?1466864555
Thank you all for your comments. What Mary was describing is what Quix was telling me through PM. She referred to it as "incomplete blockage" with a stool that is hard as a rock or industrial strength constipation.

While the ER doctor didn't do an X-ray to his credit he did go look up information about IBS and what I was going through in order to come up with his treatment plan. So I do think he was concerned about me and what is going on. Luckily I can still eat and drink without pain ( just have to run to the bathroom about after eating even though there are still no solids coming out). Although I still haven't gone after my nice dinner last night in Nashville.

When the ER doctor was explaining things to me he pretty much was telling me what Mary had just posted about having to come up with a balance of treatment to control the IBS while not getting things too solid to cause constipation. He told me that it will be up to the GI doctor to come up with this balance for me. But I should also say that I think I should have been given something stronger as Mary said. But hopefully I went to the ER before the pain started so maybe the Metamucil will work for me this time.

Dennis
1045086 tn?1332130022
I too think you need something stronger initially Dennis.  For an OTC treatment, you can try Miralax.  It's the same medicine in the bowel prep stuff but without the electrolytes the Rx has.  Mix it in some Gatorade if you like that stuff.  

You can get Miralax in a much less expensive generic form.  Ask the pharmacist at any drug store or Lulu always knows the name (glycol something).  The metamucil is a bulking agent and a REGULATOR used for both diarrhea and constipation, not actually a laxative.  I don't see it being enough.  It may build up lots of gas though!

Another option is the Milk of Magnesia (any brand) as long as you don't have any kidney disease.  It takes several hours to work but doesn't usually cause much cramping.  You can take a single dose and repeat it in 12 hours if you get no results, take a double dose once, or mix it in some warmed prune juice (yum/yuck).  

You need to get to a good clean starting place to find regularity, IMO anyway.

Mary
645800 tn?1466864555
Thanks for the info. I have already taken the Metamucil this morning ( gaged it down mixed with tea ).  Not sure if I should wait until tomorrow to try something else or not.

I've never had any Gatorade so don't know if I would like it or not. Does it come in flavors to pick from?

I suppose if I get desperate I could make some of my grandmothers stewed prunes using ground cinnamon. It is a super laxative. Only problem there is I have never been able to find pitted prunes around here other than those chopped up into small pieces. For some reason the stewed prunes is  a mild laxative to help regulate a person if you use cinnamon sticks, but with ground cinnamon it is a very strong laxative.

Dennis
Avatar universal
I definitely know this problem. It's frustrating. My Dr suggested using miralax and then when I had a good bm he said to use it at least once to twice weekly to keep me on track. He says u need to test what's right for your system. It does work. I also eat bran cereal daily and think that makes a difference.
I make the.mistake if thinking I don't need to.follow this regiment and am back to square one. I hope it helps u.
338416 tn?1420049302
Chopped up pitted prunes?  Bleah!  

Well, I've had both problems, and I think it has specifically to do with lack of motility.  The longer stuff stays in your large intestine, the more water gets sucked out of it - and that leads to the proverbial concrete block.  It's horrible.  

This seems to happen to me without warning.  I'll be fine, and then WHAM! I'll have this out of the blue.  Even worse, I'll get the urge, sit down, and nothing's happening.  I guess it's muscle weakness or something.

Everybody else has had great ideas for supplements to take.  The only  thing I would recommend is to make sure you drink plenty of water.
1260255 tn?1288658164
Oh, boy, potty talk!  Just kidding, because this is not really funny. Do I ever miss the days when I would finish my cup of coffee, visit the reading room (pardon my wording)  and take a good dump.

Dennis, I’m glad that you brought this topic into the open. It’s become enough of a problem for me that I was researching it about a month ago.

For me, my gi sx started about 1 ½ years after other sx started, but were very intermittent. For a while there, I thought it was IBS, but after talking to my sister who does have IBS, I realized that was not the case. Foods don’t trigger it, and for the most part, I still am a morning person.

In the last year, things have gotten progressively worse. I make multiple trips to the bathroom in the morning, each lasting at least 10 minutes, to evacuate my bowels. It is painful and I have a lot of cramping. I have to be careful not to strain, because I don't want hemorrhoids on top of everything else. Sometimes it can take me more than 90 minutes to get to the point where I feel safe to leave the house, making me late for work. Stool consistency ranges from slightly hard to diarrhea. I have also had days without any movement at all, as many as three days in a row. I’ve found myself bloating more often now and I am thin as a rail, so it is very noticeable to me.

What I found when I was looking into this is that in people with CNS problems or spinal nerve problems, the muscles in the gi tract don’t work properly to push the waste out of the body. Other factors cited were that people in these groups also may not be getting enough exercise or have a poor diet. With constipation, the consensus is that if more than three days pass without passing (LOL), it needs to be addressed, but they don’t say how. Reading the posts here, many of you have gone longer than that and have been summarily dismissed by the ER.  If fecal matter sits in the gi tract for too long, it tends to dry out even more and just makes the problem worse.

In the old days, we would have just taken cod liver oil.

My sister recommended a gummy type chewable fiber supplement that works well for her, but I can’t remember the name. I’ll have to check with her on it. Fiber is important, as is drinking lots of water. That still doesn’t address the muscle function, which might be the main contributing factor.

Hopefully, someone will post here with some good advice on what to do if you go for more than 3 days without a BM.

I may be wrong on this one, but I seem to recall that in years gone by in England, it was considered polite to ask "Have you moved your bowels today?" as a sign of concern over someone's good health.

Audrey
1312898 tn?1314571733
Hi Dennis,

I'm so sorry to hear that you have this problem and haven' gone in so long.  I don't have any idea what this feels like becuase I have the opposite problem.  I have IBS too but the opposite.  

When I was young 20's-30's I used to have a BM everyday at the same time.  My mother told me I was "blessed".  But not anymore.

I'm, with Mary on this one, I know you have taken the Metamucil and are waiting, I'm wondering if doing the prep for a colonoscopy would do the trick.  You do a product called Fleet first in the evening.  THen the next day you drink this yucky stuff fairly quickly. I think it's like a gallon of liquid.  Then everything eventually comes out but it's painful and it seems to go on forever.  

I'm sorry that you are all plugged up, that has to feel bad.


Red
338416 tn?1420049302
Hah...  I have a buddy who had to get a colonoscopy - he says he just uploaded movies to his iPhone and stayed in the bathroom.
Have an Answer?
Top Neurology Answerers
987762 tn?1331031553
Australia
5265383 tn?1483811956
ON
1756321 tn?1547098925
Queensland, Australia
1780921 tn?1499305393
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease