Sorry for the length, especially since I'm sure people hate these kind of posts. I don't usually post on message boards (any type, I'm an introvert even on the web!), but I'm desperate at this point and don't know where to go next for help so I'm posting to a couple different sites. I am very worrried at how most of my symptoms have become dramatically worse over the past month. Do the symptoms sound like something such as Myasthenia Gravis or MS? I tried to list the symptoms in the order they started, more or less.
Sciatic Pain right leg - Started Feb '16, mostly less bothersome now. Sometimes I get a similar, but much lesser, pain in the left leg.
Calf Pain right leg - Started in August '16, once sciatic pain was starting to feel better. Intermittent. Feels like a cramp.
Nystagmus - Started in June '16, came on completely out of the blue with vertigo. Seen by my doctor at the time. Plainly evident to the eye by February 17, it was probably visible before that I just never checked it myself or had any other doctors look at it. Since it started I feel like my eyes jump around when I try to focus. It's purely horizontal from what I can tell. I've barely been able to read since it started.
Eye Strain Feeling - Comes and goes since June '16. Eyes just feel really tired and hard to keep open. No correlation with screen time that I can tell.
Vertigo & Dizziness - Started June & July '16. Followed by months of feeling slightly dizzy. Then starting around February it became a constant feeling like my head was bouncing back and forth, usually worsened after driving long distances or using the computer all day.
Nausea / Motion sickness while not moving - Off and on since June 2016 (likely related to nystagmus)
Facial spasms with eye and mouth on right side - Started very sporadically in November 2016, but has now become a daily occurence.
Shortness of Breath - Gradually worse since Summer 16, was very intermittent, now almost constant. I've had good pulse ox's, and I don't feel like it's the lungs itself. It feels more like I can't get the muscles to work right.
Throat tightness - Since Fall 16, somewhat relieved by Baclofen. Before I started the baclofen I was constantly clearing my throat because of the tightness/chocking sensation.
Tightness in Chest - Since summer 16, has slowly gotten worse. I can't laugh or talk loudly because of this.
Tightness in Nose - since summer 16 - constantly feels like i can't breathe through my nose
Difficulty swallowing - Since summer 16. Has mostly felt like very slow motility, where I have to try and force it down my throat slowly or swallow multiple times. Haven't really choked on anything. However, over the past month I've had a couple scary moments where I go to swallow and I can't get my tongue to work for a minute or two.
Exercise Intolerance - Fall 16. After exercise I would suddenly start feeling faint/lightheaded, short of breath, and my chest and shoulder blade would hurt. These symptoms last for days after exercise. Originally happened only after long exercise periods, but has gradually happened with less and less activity. Now I can't even mow half of my yard without feeling miserable afterwards. (I previously had been running 30+ miles a week prior to this symptom, so I'm not out of shape, or at least wasnt when this started)
Weakness in triceps & shoulders - Feb 17, confirmed by neurologist. Fairly minor and was somewhat better a few months later at follow up. However, I have a lot of problems doing things which involve lifing my arms like combing my daughter's hair or trimming bushes around my house.
Worsened Posture - Have had bad posture for a while, but it's gotten considerably worse over last 3+ months. Feels like it's because my neck is weak and has a hard time holding my head up. Neuro gave me trigger point injections in May because she thought tightness was causing the problem, but they provided zero relief.
Twitches/Cramps - All over, started Fall 17, has gotten more often in past couple months. Seem to mostly be on right side. Not bothersome, just figured I'd mention it.
Suddness Faintness feeling - Just this past month, is occuring if I take a deep breath, talk a lot, or sometimes while just standing
Difficulty forming words - Summer 17 - Very slight, but feels my like my mouth is tight and has trouble moving
Abnormal tests; d-dimer, hoffman's sign left hand, romberg's (I sway, not fall), and VNG indicated central
Normal tests/vitals: Head MRI, Chest MRI/CT (done because of d-dimer being high in summer 16), Head and Neck MRA, Stress Test, Echo, ECG
Normal bloodwork: Blood count, electrolytes, liver/kidney, Thyroid, B12, ANA, ESR, CRP
Medicines tried; Lorazepam, valium, xanax, lyrica, cymbalta, flexeril, baclofen.
Baclofen is the only thing that's helped at all. I just recently read this is a key medicine for nystagmus, which might be why it helps a little. It also makes my tight throat feel a little better. None of the anti axiety drugs had any effects on my symptoms.
I also tried vestibular therapy for over 3 months. The doctor and therapists there saw my nystagmus and my issue with saccades and tracking. Unfortunately the therapy didn't help much.
Thank you to anybody who bothers to take the time to read this and offer any thoughts.