Multiple Sclerosis Community
9.22k Members
476834 tn?1228398709


Hi All,

I've been diagnosed with ms.  Having a hard time dealing.  Havent been on much.

any prayers or advise welcome

Hugs and Prayers to all
21 Responses
632011 tn?1234347109
Welcome to "our" forum.--You'll find out there are TONS of knowledgable people on here and very loving people.--WE WILL ALL HELP YOU THROUGH THIS HARD TIME!!~~i AM SO SORRY FOR YOUR dX.~~~What symptoms were you having or whatnot that lead your Dr to the MS road?----And did you have all the "cute" tests (MRI's, Lp, Evoked tests or whatever)?---You'll see on here, we're all curiuos little George's. hehe------And are you on anything now as far as meds are concerned?-----What you will NEED FROM THIS DAY FORWARD IS AN EXCELLENT SUPPORT SYSTEM!! People and or places that can help you through the New Horizons.---As Ms does so many things to your body--it helps to either know what (might) happen to you as you go along and 2nd it helps to be able to voice all your feelings.---The Good--The Bad--The Ugly.---Again, as I said, we're here for you.!-------I was Dx'd after all the cute tests, and consistantly see how each day is different with MS.--1 day your "Ok", then the next might be a bad day.---Ya just learn to roll with the punches.----As for meds, I take quite a variety now and within a week will discuss with my Neuro about "options" as far as some of the other meds out there to ease the "things" that go on in my body.---I wish they had a magic pill/shot for the fatigue, but hey, that would be like the 8th wonder of the world! hehe.-----Well, again, I'm sorry for the "news", but we are all on this forum for a reason--- to be there for each other--and to share.----So, if ya can, let us know how your doing.
393986 tn?1303825975
Hi Sweetie, it is good to hear from you, you have been away for so long.  I'm sorry that the dx turned out to be MS.  What is your Dr doing from here?  You were in limbo for quite awhile and I know the answer or dx once its given can be very unsettling but find a little relief that you have an answer.  We will always be here for you, I'm sending you many cyber hugs and kisses, my Dear Friend.  I am thinking of you...

Love Ya Ray,

Avatar universal
I was wondering about you just a few days ago.  I spend more time "lurking" on the forum these days, as it is more active than I am :) . . . it is difficult for me to keep up with everyone.  

I have also "officially" been diagnosed and am in the process of starting a DMD.  I'm also completing some cognitive testing this morning.  

What's next for you??  DMD??  More testing??

Sending up a prayer . . . right now!!


May God reveal  . . .
when we should push ourselves and when we should rest . . .
when we should be calm and when we should speak up . . .  
when we need to seek help and when we need to cope.  May our laughter replace our tears, and may our faith replace our fears.    Amen

198419 tn?1360242356
Hey Girl,

Well, this has been coming.  I think you knew it.  It's ok, honey.  Going to be ok.

So, what "gave." I remember the last Dr you visited was not so good.  Update us if you can on how this came about.  Many will be encouraged by your journey.

Hang in there.  Talk to you soon,
627818 tn?1271777026
This is a great community for support so come back often! The Health Pages at the upper right of this page are a great resource for you as well. If DMDs have been suggested, don't hesitate to get on one! They aren't a cure, but can help slow the progression as I understand it.

It is always hard to deal with something this life changing, even if your symptoms aren't very severe. Expect to go through some grief - it is normal and you may find yourself angry or in denial (that's where I lived for oh, 20 years or more!) or any number of emotions.

Keep us in the loop - we are all pulling for you!

Avatar universal
Hi Ray,

Oh, honey, I'm sorry it is MS, but glad you finally have your dx.  I have thought of you often and was hoping things had improved and that's why you haven't been here.

My heart goes out to you, and I'm sending you ((((((((hugs))))))))))) to help get you through this initial shock.

At least you know now, and can start on treatment and slow this down.  It has to be a tough thing, and when and if I ever get a dx I'm sure I will not know how to take it either.  

You have been through so much on your road to this dx, I'm sure you knew all along what was coming, but when it finally arrived I'm sure it was kind of surreal.

We are all here for you, and there have been others here who have gotten there dx recently so you are in great company.  Talk to us Ray, it will help.

You are always in my thoughts and prayers.

Love & Hugs,
Avatar universal
i'm sorry that iss what it is.. I'm     glad youuu fell up to posting today to let us know.   Once you have settle in the        fact of your name now you can call it, and trust inn some way you will be 'ok' with it.
I have thought of you alot . keep the faith Ray!
hang tough, a mo
486038 tn?1300063367
wow Ray, i'm glad/sad for you. I know you were searching for an answer and now you found one.
big hugs!!! and many prayers are going up for you.

here is my prayer for you

Footprints in the Sand- Poem

One night a man had a dream. He dreamed
he was walking along the beach with the LORD.

Across the sky flashed scenes from his life.
For each scene he noticed two sets of
footprints in the sand: one belonging
to him, and the other to the LORD.

When the last scene of his life flashed before him,
he looked back at the footprints in the sand.

He noticed that many times along the path of
his life there was only one set of footprints.

He also noticed that it happened at the very
lowest and saddest times in his life.

This really bothered him and he
questioned the LORD about it:

"LORD, you said that once I decided to follow
you, you'd walk with me all the way.
But I have noticed that during the most
troublesome times in my life,
there is only one set of footprints.
I don't understand why when
I needed you most you would leave me."

The LORD replied:

"My son, my precious child,
I love you and I would never leave you.
During your times of trial and suffering,
when you see only one set of footprints,
it was then that I carried you."
-author unknown

335728 tn?1331414412
Hey girl...so sorry to hear that you have a diagnosis of MS but I am happy for you that your quest to find a diagnosis for your symptoms is over and now you can get on with finding what will work for you to slow down this nasty disease.  I hope that you have a good neuro that will be keeping a close eye on you and I am sure that you will start to feel more accepting once you are on a DMD and realize how much they can help slow this nasty disease.  Please keep us updated as to how you are dealing with this and what the next step will be for you...you have been a part of this forum for a long time and I believe that one of the best things you can do to bring yourself to a point of acceptance is to share your experiences to help others who are going through what you have already dealt with.  Please know we are here for you and want to help!

Lots of Hugs,

293157 tn?1285873439
Hi there, we missed you around here and I wondered how you were.  Well, you have got some answers... that's a good thing... now you can start some treatment and finallly see if you can get some relief.  I know it hard when you get a Dx...well, I don't really know because I don't have a Dx... but I can imagine.

Hang in there and read up on MS more, now that you do have a Dx and you can learn more on how to deal with this.  There are alot of friends here that will help with questions.  Your not alone honey.....

when you feel up to it..let us in Limboland know how you finally got your Dx... I remember you were having a difficult time with Dr...so much like alot of us here.  

take care my prayers are with you...
Avatar universal
How have you done today?  Please keep us posted.
338416 tn?1420045702
Hey, Ray!

Sorry to hear about your diagnosis, but not surprised, you know whatimean...  

Well, you know we're here for you!  This is a good place to be.  
378497 tn?1232143585
Hi, Ray--

Sorry about your dx and your struggle. Come here, let everyone help and support. You've already discovered how great everyone here is, so when you're ready...come and stay.

572651 tn?1530999357
Hi Ray,
It is strange isn't it that even though you thought it was MS, hearing it finalized makes it so, for lack of a better word, final.  I am so sorry this is the dx that came to you.  And be forewarned that just as you think you have accepted this new normal for you, there will be something else come along and make you incredibly sad/mad/depressed again. It is all part of the cycle of coming to terms.  

You've made many good friends here who will help you day or night as you face this monster.  If it continues to be too much, please ask for a referral for professional help to work through this.  

Please don't be a stranger - everyone is here for you.

Avatar universal
I have been wondering how you were doing. I'm so sad for you, but you knew something was very wrong.  You are very strong, and I know that after a period of adjustment, you will be ready to fight this monster. I will be praying that now that you have your dx, you can get to work with your doctors to fight this. May the Holy Spirit heal your body and soul.

Blessings, Maggie
285045 tn?1253641328
So nice to hear from you!!!  
I too have been away from the forum for a while.
I check in when I can.
I am so sorry for the Dx.  But I am so glad you finally have a name for it and can get proper treatment.  
Know that you are in my thoughts.
611606 tn?1315517767
Hi, I am know as ShadowsSister, I have had MS since at least 1983, and was diagnosed Jan. 29Th at 3:15 PM. When I was first told I had MS I was shocked and scared, I have never had a remission, "they" call  it Chronic Progressive MS, at least that's was the name back then. I don't know what your symptoms are, Ms is different for everyone, we all share a lot in common, but in one way or another it's always different. If you want to you can check out my journals to learn a little more about my journey living with this crazy making thing called MS.
I am fairly new to our group, but I can tell you this, Our Group is The Best Support Group bar none. I hope you will allow us to be there for you. Here you will possibly find some answers, I can say with certainty there is never any judgements or rejection, just kindness, love and understanding. We also like to laugh and try to find a bright spot when it seems the whole world is a dark-hole.
So hang with us, and allow us to support you. I have found it helps just knowing I am not a lone .
Ray, I hope I get a chance to get to know you as time goes by.
I am sending you Hugs on the winds and will keep you in my prayers{{{{~!~}}}(These are my hugs)
611606 tn?1315517767
After Reading some of our groups responses, I think you already know how GREAT this group is. I know hearing you have MS, is not something you can prepare yourself to hear, at least that's how it's been for me.But than I only had to deal with the unknown for about three weeks, once they started doing test. For me, it's been never knowing what was going to happen next.
Please hang in there, Know that you aren't alone, unless you choose to be, even than I'll be checking in with you..
147426 tn?1317265632
Hey, Kiddo, I see you got the answer you and the rest of us were expecting.  Even being sure it is coming doesn't always make it any easier.  It's time you came back and talked and poured your heart out.  You have the answer to all the c rap you were going through.

When did the diagnosis come in?  Who made it?  Are they planning to use a DMD?  Didn't a neurol from the hospital you were working at last summer suspect this?  Was he involved in the diagnosis?

You know all the questions I want to ask.  In what way are you having trouble dealing with it?  Depression?  Worry and anxiety?

Are you working?

Talk to us, hon.

Momma Quix
195469 tn?1388322888
Hi sweetheart.  You and I corresponded through PM alot, when all this started.  Remember?  We both knew at that time you were looking at an eventual diagnosis of MS.  That doesn't make it any easier for you to finally hear those words, "You have MS," does it?

Ray it's like a greiving process, from what I found.  This is the denial, the anger, the desparation...all the stages of grief, then comes acceptance.  That may be the hardest step of all.  We grief for the changes that this diagnosis brings.  I think we all have to go through it.  

On one hand we are happy that we finally have a diagnosis, then reality hits hard.  Our happiness over diagnosis, quickly turns to tears and disbelief.  I have a feeling that may be some of what you are feeling.  You feel isolated, even though you that literally thousands of people are going through the exact same thing.  The isolation is stilll there.

This is why it's so important for you to know rejoin the Forum and give those feelings a "voice."  If you don't express them and get them out in the open to discuss them, you are going to feel like you are exploding with emotions.  So please Ray, know that we are all here for you.  More than willing to listen and help you through this time of "grief."

We send our many prayers and all of our love and understanding.  Go through this WITH us.  Please don't try to do this alone.

I send all my love,
195469 tn?1388322888
Gosh please forgive all the typos...Brain farts!
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