I am going to start the second round of DMD's in a month (tried Tecfidera but could not handle the side effects), i was wondering if anyone is on Gilenya? If you are can you please tell me if you feel different, aka more energy?
I ask as I was only diagnosed last year and my last MRI shows at least two sets of lesions between May 15 and January 16. I have only had the one 'attack' but I have noticed considerable loss of energy. If I think about it my energy has probably been going down for two years but now that I know there is something that I can put it to I am no longer writing it off as not enough sleep or lack of caffeine!!
I may also be slightly hyper-vigilant but it honestly doesn't feel like I am just tired, it feels like something bigger, and I have had my first bout of real fatigue and that was awful!!
Anyway I will stop now (I could write a novel if I let myself :))
Thanks for reading, I hope everyone is feeling well.