198419 tn?1360242356

DMD Users: Past & Present - Copaxone, Rebif, Avonex, Betaseron, Tysabri, (other)

Hi all,

Would like to have a quick "go-to" thread of our DMD users similiar to our dx and undx'd threads. Please post here: name, dx'd and DMD (include past, multiple, present).
I'll start:

DX'd:  2007
DMD: Rebif (current)
122 Responses
645390 tn?1338555377

DX'd:  April 10, 2009
DMD: Copaxone
1230912 tn?1273492770

Dx'd: March 4th, 2010
DMD: Extavia (Betaseron)
1045086 tn?1332126422
twopack / Mary
DX'd:  October 27, 2009
DMD: Copaxone
Avatar universal
dx 1/08
dmd  copax 2 mos, allergic, since then Avonex
211940 tn?1267881266

Socrates (Stan)
DX'd: December 22nd, 2009
DMD: Rebif (began January 14th, 2010) - current
Avatar universal
Dx: 1994
DMD: Betaseron
Avatar universal
DX'D   1986
DMD    Avonex
Avatar universal
Dx'd   2007
DMD  Betaseron - 1 year
         Copaxone - current
1126418 tn?1326165992

DX'd: February 15th, 2010

DMD: Copaxone (haven't started it yet tho)
338416 tn?1420045702
Dx'd: August 2007
DMD: Copaxone - I was on it for a year and a half, then my insurance changed and now I can't afford it. :-(
429700 tn?1308007823
Dx'd:  February 2008
DMD:  Copaxone
1040373 tn?1273687488
Diagnosed 9/14/09
DMD Copaxone
1128488 tn?1265053382
dx'd   November 1994
Dmd's  Copaxone, Avonex, Tysabri, HyCy,
738075 tn?1330575844
Guitar_grrrl: dx 5/09. DMD Rebif 4 mos. Allergic!  Currently on Tysabri.
1149087 tn?1415316549
dxd February 2010

tried Avonex (1x 1/2 dose, depressive side effects)
now on Rebif (44 microgram, ongoing)
634733 tn?1316625992
Dxd possible 2004

Dxd probable 2008

Dxd definite 2009

DMD - none - but that's the UK NHS
755322 tn?1330269114
Dxd Jan/Feb 09
Copaxone (allergic)
IVIG (current)
233622 tn?1279334905
Dx'd Feb 2008
Avonex for one year.  Lots of side effects and just could not do the IM anymore PAINFUL for me.

Betaseron for 6 months.  Sub-Q Much smaller needle no pain and fewer side effects for me.
But site reactions were pretty rough.

Lee Ann
1221035 tn?1301000508
Diagnosed: Jan 20,2010
Low Dose Naltrexone
294425 tn?1288528395
Diagnosed: Feb. 2008
DMD:  Rebif from April 2008 - Sept. 2008
          Tysabri since Oct. 2008 (just had #18!)
Avatar universal
Dxd:   01/2009             by VA as "unspecified demyelinating disease of cns"
          09/14/2009 rrms by non-va neuro
          10/27/2009 rrms by non-va neuro

DMD: copaxone via VA Feb 2010
1105540 tn?1279187117
Dxd: 08/08

DMD: Capaxone 6 months bad site reaction

DMD: Tysabri as of 12/3/10 not started it yet but its on its way (UK NHS)
1181494 tn?1264381915
Dxd:11/09 DMD: Copaxone daily and IVIg every other week for 3 days
739070 tn?1338603402
Dx'd : 4/13/09
DMD: Copaxone
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