Aa
Dizzy when things are moving..??
another question for everyone, I am having a difficult time when I'm in a car as a passenger and watching the cars going by...also when it's dark outside, and the headlights coming from the other direction really hurt my eyes. I have to close my eyes alot when I'm in a car. The moving of things make me nauseated and a dizzy feeling. It's getting to a point that when I watch TV and there is movement on there...such as car chases or roller coasters etc...it effects me and I have a difficult time watching TV now...I can't figure this one out..and I'm sure the Dr will think I'm losing it. Do things like this effect other people?
Tomorrow I'm going to see my eye doctor for a complete test, my blurry/double vision has gotten worst and my eyes hurt when I wake up and they see any light. etc etc...should I tell the eye Dr about this motion thing? Or just my PC..?? or both...thanks for any info again...dont know what I would do without you guys..
andie
Tomorrow I'm going to see my eye doctor for a complete test, my blurry/double vision has gotten worst and my eyes hurt when I wake up and they see any light. etc etc...should I tell the eye Dr about this motion thing? Or just my PC..?? or both...thanks for any info again...dont know what I would do without you guys..
andie
I CAN RELATE TO WHAT YOU ARE DESCIBING.I WAS IN WATCHING MY DAUGHTER PLAY HER WII GAME SYSTEM AND THAT WAS IT.TO MUCH FOR ME.
I SEEN A NEURO-ENT A YEAR AND HALF AGO FOR VERTIGO,I WASN'T SPINNING MY SURROUNDINGS WERE.NOT ONLY DO I HAVE SENSORINEURAL HEARING LOSS,BUT THE VNG PICK UP LESSIONS IN THE LEFT SIDE OF THE BRAIN STEM AND THE LEFT CEREBELUM.
I ALSO HAVE A FORM OF NYSTAGMUS CALLED INO.
I ALSO HAVE DEVELOPED RECENTLY WHAT THEY CALL VISUAL OVER COMPENSATION,WHEN REACHING FOR SOMETHING I OVER SHOOT IT.I REALLY HAVE TO BE CAREFULL DRIVING NOW,CAUSE I OVER COMPENSATE.I'VE ONLY REARENDED MY SONS CAR A FEW TIMES WHEN PARKING MY TRUCK.
REALLY TALK TO YOUR DRS ABOUT IT,IT COULD BE VESTIBULAR OR NEUROLOGICAL OR A COMBINATION OF BOTH.
T-LYNN
I SEEN A NEURO-ENT A YEAR AND HALF AGO FOR VERTIGO,I WASN'T SPINNING MY SURROUNDINGS WERE.NOT ONLY DO I HAVE SENSORINEURAL HEARING LOSS,BUT THE VNG PICK UP LESSIONS IN THE LEFT SIDE OF THE BRAIN STEM AND THE LEFT CEREBELUM.
I ALSO HAVE A FORM OF NYSTAGMUS CALLED INO.
I ALSO HAVE DEVELOPED RECENTLY WHAT THEY CALL VISUAL OVER COMPENSATION,WHEN REACHING FOR SOMETHING I OVER SHOOT IT.I REALLY HAVE TO BE CAREFULL DRIVING NOW,CAUSE I OVER COMPENSATE.I'VE ONLY REARENDED MY SONS CAR A FEW TIMES WHEN PARKING MY TRUCK.
REALLY TALK TO YOUR DRS ABOUT IT,IT COULD BE VESTIBULAR OR NEUROLOGICAL OR A COMBINATION OF BOTH.
T-LYNN
I'm sorry, I really don't know...it was a few years ago. I should really ask my Dr and find out...maybe I should get retested as well??
You said you were tested.
Was it a VNG or an ENG that determined your dizziness is neurological?
Was it a VNG or an ENG that determined your dizziness is neurological?
I have gone to two ENT a few years ago and had all the tests I think...water in the ears, hearing tests, watching lights in the wall...etc...both times they said it's not my inner ears and most likely Neurological...
but the Neuro can't figure it out...my MRI does have at least one small lesion in the corpus collosum..what ever that means....and some in the white matter...guess I'll wait for the C spine MRI...thanks for the info..
andie
but the Neuro can't figure it out...my MRI does have at least one small lesion in the corpus collosum..what ever that means....and some in the white matter...guess I'll wait for the C spine MRI...thanks for the info..
andie
The folks who deal with balance and vertigo are movement specialists. (WeMove.org is a great site.) thought I would have to see one because of my ongoing rocking and swaying feeling, but the neuro seemed satisfied that that was MS doing its thing. The whole thing was severe for a good 5 months, then very slowly sort of dispersed, slow enough that I wasn't really aware of its leaving. I'm sure glad it's gone.
Different medical types describe vertigo differently, and distinguish between YOU moving, your surroundings moving, and so on. I don't know how important that all is. "Dizzy" isn't really a medical term. It's just important to find out whether the problem is related to the ears, or whether it's more a brain thing. I think mine correlated with a lesion in the cerebellum.
ess
Different medical types describe vertigo differently, and distinguish between YOU moving, your surroundings moving, and so on. I don't know how important that all is. "Dizzy" isn't really a medical term. It's just important to find out whether the problem is related to the ears, or whether it's more a brain thing. I think mine correlated with a lesion in the cerebellum.
ess
No...it's been a couple of years since I've seen the ENTs and both said it's Neurological? But, the neurologist can't figure it out? Going for a C Spine MRI in a couple of weeks?
they asked me when I was tested if I was spinning or the room was spinning...or what was happening...so I guess, it can mean different things? They didn't tell me and of course I didn't ask?
I have learnt now to ask for answers..a few years ago, I just went and hoped they would find answers...
take care
andie
they asked me when I was tested if I was spinning or the room was spinning...or what was happening...so I guess, it can mean different things? They didn't tell me and of course I didn't ask?
I have learnt now to ask for answers..a few years ago, I just went and hoped they would find answers...
take care
andie
Apparently there are specialists who deal solely with balance/dizziness/vertigo issues. Did your ENT suggest seeing a "dizzy doc"?
Wanna
Wanna
So if there is dizzy when the room is moving, what is dizzy when I feel as if I am moving instead?
Haven't had it since the Event of 12/24 that started my MS journey....but I have had it before and dread it knocking at the door again.
Suzanne
Haven't had it since the Event of 12/24 that started my MS journey....but I have had it before and dread it knocking at the door again.
Suzanne
Thanks for the info...I still have this "Vertigo" that feels like the room is moving back and forth quickly....not spinning...two ENT said it's not my ears..
I will try to remember to tell my doctor about the tracking movement..I wrote it down, I seem to forget alot of things.
I will ask about a Dizzy clinic as well...thanks again
andie
I will try to remember to tell my doctor about the tracking movement..I wrote it down, I seem to forget alot of things.
I will ask about a Dizzy clinic as well...thanks again
andie
I'm sorry you're going through this.
I've had similar Sx too. Have you asked your neuro about vestibular physical therapy? I went through it (my ENT ordered mine) and it has REALLY helped.
One of the tracking exercises I do is to look a letter of text on a wall about 5' away. While staring at the letter, I move my head back-and-forth horizontally (can do it vertically as well depending on your problem) until the text starts to get blurry and I feel uncomfortable. I continue it for 5 minutes. I still do this exercise occasionally when I'm feeling a bit out of sorts.
I've had similar Sx too. Have you asked your neuro about vestibular physical therapy? I went through it (my ENT ordered mine) and it has REALLY helped.
One of the tracking exercises I do is to look a letter of text on a wall about 5' away. While staring at the letter, I move my head back-and-forth horizontally (can do it vertically as well depending on your problem) until the text starts to get blurry and I feel uncomfortable. I continue it for 5 minutes. I still do this exercise occasionally when I'm feeling a bit out of sorts.
The sensation you describe is something like my own experience.
Action on a big screen TV is impossible to watch…as well as going to a theatre. Last weekend my husband and I went out to a movie (21…thought it would be tame enough) and whenever there were scenes that pan up or down or around I’d have to shut my eyes or I felt like I was going to fall out of my seat.
An ENT called my problem “disequilibrium” and said it is not in my ears. He said it is neurological or from autoimmune disease. (I do not have MS, but he said the neuro might have missed something that another specialist would see.)
The ENT had be describe my vertigo without using the word “dizzy.” He said spinning vertigo is different from other vertigo sensations. I don’t spin. I feel like I am on a raft, bobbing up and down in the waves.
Have you found an answer since you originally posted this?
Wanna
Action on a big screen TV is impossible to watch…as well as going to a theatre. Last weekend my husband and I went out to a movie (21…thought it would be tame enough) and whenever there were scenes that pan up or down or around I’d have to shut my eyes or I felt like I was going to fall out of my seat.
An ENT called my problem “disequilibrium” and said it is not in my ears. He said it is neurological or from autoimmune disease. (I do not have MS, but he said the neuro might have missed something that another specialist would see.)
The ENT had be describe my vertigo without using the word “dizzy.” He said spinning vertigo is different from other vertigo sensations. I don’t spin. I feel like I am on a raft, bobbing up and down in the waves.
Have you found an answer since you originally posted this?
Wanna
What you're describing can be a symptom of something that is often called "visual vestibular mismatch". (Although it has a number of other names attached to it as well.)
Neurologists will often defer to neuro-otologists or oto-neurologists for exploring this symptom through specialized testing in dizziness clinics.
This whole field is very under-researched, and there are very places around that do the specialized testing.
Visual vestibular mismatch is not really a diagnoses per say, but rather a symptom of a vestibular problem. People with MS may have it, but it also seems to be idopathic in many cases.
Neurologists will often defer to neuro-otologists or oto-neurologists for exploring this symptom through specialized testing in dizziness clinics.
This whole field is very under-researched, and there are very places around that do the specialized testing.
Visual vestibular mismatch is not really a diagnoses per say, but rather a symptom of a vestibular problem. People with MS may have it, but it also seems to be idopathic in many cases.
Boy, what you describe REALLY rings a bell with me and what I experience from time to time and I AM diagnosed with MS. It is definitely brain stimulation overload. I have the same experience. Doesn't happen all the time, but often enough to where it's a troublesome symptom.
Heather
Heather
thank everyone... I will let all my Dr know about this.. I'll keep you informed on what they say...thanks again
andie
andie
hi andie,
sorry you feel like this, It can be so difficult,
when someones oahtways are not working correct, it can be sooo overwheling
and challenging getting through simpllee daily things.
hang in there, it will either pass, or you will adapt, amo
p.s. yes as suzanne and jen say, make sur eyou bring it eveyr doctor attention, let themm determine if it corrotlaes to their expertice
sorry you feel like this, It can be so difficult,
when someones oahtways are not working correct, it can be sooo overwheling
and challenging getting through simpllee daily things.
hang in there, it will either pass, or you will adapt, amo
p.s. yes as suzanne and jen say, make sur eyou bring it eveyr doctor attention, let themm determine if it corrotlaes to their expertice
You are not alone when it comes to motion on tv, I am the same way. It's a sensory overload!
Motion in the car is also bad for me. I do better as a driver, okay as a front seat passenger, just awful as a back seat passenger. When I was a kid and we'd drive to my grandparents' place (70 miles away), I'd eventually fall asleep, even if it were in the morning. I guess my system just shut down somehow.
Yes, tell the dr.(both drs.) everything, it can only help? What helps me somewhat is prescription sunglasses. My dh gets his sunglasses at the dollar store, since he loses a dozen pair a year, lol. For what I've paid for mine, I sure as heck better not ever lose them!
Suzanne
Motion in the car is also bad for me. I do better as a driver, okay as a front seat passenger, just awful as a back seat passenger. When I was a kid and we'd drive to my grandparents' place (70 miles away), I'd eventually fall asleep, even if it were in the morning. I guess my system just shut down somehow.
Yes, tell the dr.(both drs.) everything, it can only help? What helps me somewhat is prescription sunglasses. My dh gets his sunglasses at the dollar store, since he loses a dozen pair a year, lol. For what I've paid for mine, I sure as heck better not ever lose them!
Suzanne
Tell everybody!
Ever since last year, I've had a problem tracking moving objects, especially in my peripheral vision. Sometimes I just won't bother looking at something, because it's too much work for my brain to track, and if I try, I'll feel dizzy and out of sorts.
Ever since last year, I've had a problem tracking moving objects, especially in my peripheral vision. Sometimes I just won't bother looking at something, because it's too much work for my brain to track, and if I try, I'll feel dizzy and out of sorts.
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