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Multiple Sclerosis Community
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634733 tn?1316629592

Fainting / Black outs and MS

Hi all, just wondering if anyone else has experienced this. I had several episodes of what I can only describe as black outs about 10 years ago. At the time and pre - MS dx my neuro sent me for an EEG and dx tendency to epilepsy but said that was very common and he would not treat it. Since my MS dx he now thinks maybe it was an unusual presentation of my MS.

Well Saturday night I went out for a meal with my DH and just as we had ordered I remember feeling slightly off, but I had had a very tiring week at work. Next thing I know I am coming round on the floor, but can't get up as I am way to dizzy to even open my eyes. Ambulance job to hospital and nearly 6 hours later I am still too dizzy to open my eyes for more than a few seconds I'm admitted into hospital the whole time in a very cold, clammy sweat.

Numerous tests later - no cause can be found and I am discharged and told to report in to my neuro. Haven't done so yet as I have slept pretty much since I came through the door! Today, unlike yesterday, I am awake more often than asleep but still very shaky unless I am sitting or lying down. Still haven't eaten since Saturday lunch (it's Monday midday here) and don't have any appetite. Head still feels weird and kinda wobbly inside.

Any similar experiences - can MS cause fainting?

Pat x
21 Responses
Avatar universal
Hi Pat,

About 3 years before my diagnosis, I fainted and blacked out... was very stressed, was during December, a stressful month. Last week, again stressed, I was about to faint again but was saved by sitting down, gatorade, and saltines I suppose. I think it's stress-related, but who knows? Just know you are not alone!

- Jenny
634733 tn?1316629592
Thanks Jenny, I was sitting down when this happened and although stressed and tired when I have a 'normal' faint  I usually recover quite quickly say 20mins to and hour. When this happened to you did it last very long? I was unable to get up, open my eyes, etc for over 6 hours afterwards and still have the effects today.
198419 tn?1360245956
Hey you,

Geez, 10 yrs inbetween this. You must of been blown away that it happened again. So glad you didn't get hurt from the fall.

I dont' have the experience, but this is alarming. YOu make the call to neuro yet? I know you say your tired, but Pat, you know you have to right?  

You need to force that grub in you too :( Sorry to be the hen here, but it's important. All sorts of things can happen w/out food and for the MSers, our immune systems are better w/out fluctions (that can happen w/out food, etc.).

Thinking of you, and I don't mean to be a nagging hen :(
(((hugs)))
~shell
739070 tn?1338607002
Hi,

The same thing happened to me about 5 years ago. Hospital ran EEG, CT scans, MRI etc. This was pre-dx. I was placed in the telemetry unit as they thought it might be cardiac induced.  I had some rather severe spikes in BP (210/110 while sound asleep from drugs) so cardiology did a full work-up, echo cardiogram, etc.

The rest of story is how my vertigo presents. You HAVE to keep some fluids down even if you can't eat. SMALL sips is the way to go.

I do hope this passes soon and like shell said, make sure your neuro is aware of this. My general neurologist told me that he thought it was MS related and referred me out to the 1st of my MS neuros.

Now get to drinking lady! Sips of tea,ginger ale is great or something even if it's just water. You certainly don't want to go back to the hospital do you?

Big Hugs from another nagging hen and I hope you feel better soon!

Ren
1253197 tn?1331212710
I have a history of fainting on long distance flights. have never worked out why as I do not mind flying..but my own theory is that it is when oxygen levels dip. This is obviously very different  to your experoience but I always wondered after my dx of MS if it had anything to do with it. My consultant did not think it did..so probably just one of those things.

Sarah

PS Cluck, cluck,,joining the hens so drink up
704043 tn?1298060444
i passed out- wrecked my nice jeep!!      im sure its ms- i have seen -well to many that say they have-    i miss that jeep-
738075 tn?1330579444
Hey, Pat!  Good to see you here.  Sometimes the vagus nerve can be involved, wreaking havoc on vaso vagal tone.

Just my $0.02
Avatar universal
Yes I have syncope episodes and have ms. I am also diagnosed with autonomic dysfunction which my neurologist feels is secondary to my ms. He says lesions can be in area that affects those functions. I also have very labile bp. When I faint it bottoms out but can be very high and I am bp Meds for it.
My electrophysilogist put me on betablocker and I am to drink lots of.fluids and not to.stand over 7 min. Hope u feel better. It's a horrible feeling.
Beema
1 Comments
I was diagnosed with MS about 15 years ago and have progressed into secondary progressive MS. In the last 5 months, I’ve fainted or nearly fainted. The first time I was in the shower. Another time I was just standing talking to someone. The other times I’ve been sitting in my recliner. It’s really frightening! I actually feel myself getting colder inside in like segments. First arms, legs and a total weakness. I also have narcolepsy, so I’m always sleepy. I also have been diagnosed with sleep apnea. The last time I saw my neurologist, he said that the sleep apnea could very well be caused by my MS according to where  some of my lesions are located on my brain. I was somewhat surprised and relieved to see how common it is to faint with MS.                  motherapple
634733 tn?1316629592
Sorry my response has been slow but remember I am across the pond asleep when you are awake!

Yes Slowe and Ren you can be hens as much as you like and join my DH who is pouring water down my throat none stop. He clucks enough for both of us thank goodness. I will try to eat something today but my tummy just doesn't want it!

I did wonder about vertigo too as the dizziness was so bad I could not open my eyes for several hours and even now standing for more than a couple of minutes to go to the bathroom and back makes me whoosy. But as I can still do that I had ruled out vertigo? What do you think Ren? you are an expert in this one :)

I think they have already decided that the ANS is involved in my MS as I have had so many other sx related to this.

Hey Guitar-Grrrl great to see you too, don't know enough about the vagus nerve but will defo research when I feel well enough.

Strange thing is that I have been so very very tired since it happened so much so that when they tried to move me to get me on a chair and out to the ambulance I just wanted them to let me sleep!! This made me wander if it was a relapse or a bug - how can I tell - I have no other sx pointing to a bug either?

I slept almost 24 hours when I was discharged and have spent most of my time cat napping ever since.

Beema36 that is also something I must look at standing for me has always been an issue - and I had just done 3 days of teaching a Masters level class for 4 hour stretches and thought I was being clever trying  to move between sitting on a desk and standing so the class would not notice I was having trouble. Coul dthat have brought it on?

Love to all of you for being so caring.

Pat x
1394601 tn?1328035908
I found that fainting was related to the heat.  It seems like the heat begins in my legs traveling up my body to my face.  The first two times I was out and taken by ambulance to our local hospital,.  They would stick an IV in me and run blood tests for sugar, etc.  Nothing was ever found.  Today when that feeling comes to me, I ice the back of my neck and begin drinking great quantities of water.  Problem was solved for me.
1218873 tn?1300094816
I have a tendency to pass out when it's really hot! (several times this has happened in queues at Disney we don't get really weather over here) I have always thought it was dehydration. I have a strange feeling creep up me and my hearing goes weird, my legs start to crumble under me- then Black it all happens in about 10seconds . I know the signs now as soon as the hearing goes sit down and get my head between my knee and cold water on the back of my neck no matter where I am.

But in the last 12 months it has happened twice with no explanation of heat or dehydration.

It doesn't take me long to get over it and I have never meantioned it to a dr.
Now you have me thinking!
739070 tn?1338607002
Dear Pat,

I am so sorry you are plagued by this! I certainly know how you feel with 3 1/2 months of vertigo last year. I did sleep almost non-stop. I also could make it to the bathroom some days before the spinning hit again.

If it's been decided that you have an ANS issue then I would think, most likely, it stems from that. If so, keeping hydrated will help with that.

My vertigo marathon lasted 3 months+ and called a relapse by 2 neuros and 2 ENTs and one neuro-otologist.The final dx of the ailment was labeled CNS origin vertigo.  NO treatment really. They checked my long list of meds and said none of them should cause these symptoms.

I don't know if my information is useful, but do know  I will be keeping you in thoughts and only sending good thoughts and vibes across the pond.

Hugs,
Ren
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