100% true you need a neurologist with better communication skills but i'm not sure i'd be trading this one in just yet, he at least is looking for more evidence.
LOL it wouldn't be a case of mr neuro not wanting to 'unnecessarily' worry the patient but is perfectly comfortable letting the refering GP in on the possibility of there being something to worry about?
Maybe when he knows for sure whats going on, his communication skills with you will improve though maybe not lol so hard to trust anything he says, when you already know your being told one thing and your GP is being told something else. It will be interesting to see what turns up with your scheduled test and how he communicates those to you.
None of the neurologists I have been to were great communicators. Most of them said things I just shook my head at. I think they kinda of think out loud. At least he is doing the standard tests.
I totally understand your frustration. You have a right to be.
By the way, myoclonic seizures (a form of epilepsy), myoclonic startle reflex and myoclonic "jerks" arising from the sensorimotor cortex are all associated with MS. I'm kind of getting tired of my morning "jerking." Most of my t-shirts have coffee stains on the front of them. The dogs clean most of the coffee off the floors. I also need a new work laptop, since between 7:00-9:30 AM, the jerking in my hands and arms hammers the crap out of the poor laptop keyboard.
My last Neuro (who I am not returning to) informed me that some of my symptoms "sound like" Periodic Limb Movement which she informed me "isn't related to MS" and it seemed to stump her that I get them day/night. What made me laugh is that when I went home and read about it, PLM, is nocturnal myoclonus.
Neuros in general for me have been poor communicaters. THere have been a number of times when I believe they were talking about a different patient, getting us confused. I have myoclonic jerks in the day but not very many, seem to come and go. My last sleep test continues to show 117 limb movements per hour despite cpap intervention.
I think it is part of MS.
I don't know if mycologic jerks are part of mas or not but I know I Hqve them.
It's actually annoying and embarrassing.
But...since i have been taking neurontin, they Hqve subsided a great deal.