Followup from - Myoclonic spasms are not symptoms of MS!!!

[aussiepixie]

Back again,  

I haven't really been gone but in the background lurking and catching up with everyone elses posts.   Being new to this diagnostic trail that we all must follow, I don't always have anything to add  to the posts but I surely understand the concern and worry experienced by everyone here.    

I am patiently (well not really patiently) awaiting my upcoming tests.    I have an EEG on Tuesday and then the following week all the auditory and balance tests, inlcuding VEMPS, BERA etc.   After this I will see an ophth/neurologist at the request of my normal ophthalmologist.

Today I saw my GP again for a referral to have L/R carotid dopplers done (at the request of the neuro).  

She showed me the last letter from the neuro which states that on my new MRI (FLAIR one) he sees more foci of high signal in the cerebral hemispheres than on the previous one,  (which was only done six weeks previously).

OK.....   So when I was in his rooms after the FLAIR MRI and he told me that he wished he could say his brain was as good as mine........  what the (blankety blank) was he thinking?

I'm hoping in a few weeks with more information under my belt I can then start looking for a "real" neurologist, one who has better communication skills.   You have to remember that this is the man who posted out my initial abnormal MRI results when I still had about five weeks to wait to see him.

I will be in touch again next week after my EEG.

[supermum_ms]

100% true you need a neurologist with better communication skills but i'm not sure i'd be trading this one in just yet, he at least is looking for more evidence.

LOL it wouldn't be a case of mr neuro not wanting to 'unnecessarily' worry the patient but is perfectly comfortable letting the refering GP in on the possibility of there being something to worry about?

Maybe when he knows for sure whats going on, his communication skills with you will improve though maybe not lol so hard to trust anything he says, when you already know your being told one thing and your GP is being told something else. It will be interesting to see what turns up with your scheduled test and how he communicates those to you.

Cheers.........JJ