Frequently feeling unwell

[zoefromsussex]

I may have asked this before (apologies if so!) but do many of you experience a general feeling of just feeling 'unwell'? Nothing specific just a feeling of no energy, aching, heaviness & that kind of thing? I've got my yearly neuro appointment in early November and am going to discuss this with him and see if he can give me something for the exhaustion. The ms nurse always says to pace myself and/or rest but its not always realistic to do so! Is the feeling of being unwell normal? I used to describe it as feeling like I was coming down with flu or something but without a fever or the sniffles. It's just miserable! I've noticed it always hits me hard after exercising so I'm starting to think it is fatigue perhaps. I have also noticed my concentration isn't as good these days and I often get a sort of 'fuzzy head'...as if I've had a couple of glasses of wine in the daytime (I haven't though!)

[zoefromsussex]

Thanks for your replies. I think it's definitely fatigue then. I might try a food diary just to see if anything in particular is a trigger.
Kelly...Lol I had to mention the eggs! People always tell me how good fish & eggs etc are and I have to constantly remind them that I'm a vegetarian!
I think maybe I overdo carbs (I love bread, pasta, rice, potatoes) I should probably reduce those but I imagine the fatigue is mostly to do with overdoing things. I have a 7 year old, a 2 year old and a messy husband to run around after! ;-)

[Corriel]

Hi Zoe, I get that feeling a lot too. I chalk it up to the fatigue and am waiting to get some meds.

I am currently seeing a naturopath and in addition to the dietary changes you have with being a vegetarian she also wants me to cut out what, gluten, soy, sugar and peanuts.

I am trying to do this slowly but am enjoying wheat free oatmeal and quinoa but I am not a fan of gluten free bread. Ick!  She told me these changes will give me more energy and reduce inflammation.

I am also seeingan ocupational therapist who is providing me with energy saving tips.

I hope you are feeling better soon and good luck at your appointment with your neuro.

Corrie

[SarahL2491]

yeah, I feel that way a lot of the time........especially if I've overdone it in a day, provigil has stopped working for me, so am just dealing with it.

[anon07072023]

I'd like to click 'like' on your statement - "I'm a vegetarian who doesn't eat eggs..."   :-)

You can also try eating foods high in serotonin, dopamine, and tryptophan.  If you eat cereal, try to buy ones fortified with B12 - even though your labs are normal.

[zoefromsussex]

I think Provigil is available here so I was planning to ask about that.
Laura, which foods did you cut out? I'm a vegetarian who doesn't eat eggs & I don't like much dairy. I considered cutting out wheat & gluten but it would pretty much only leave fruit & veg which would leave me lacking! I did try supplements (multi vit, vit D3, calcium, B12 & oils) but I'm terrible for remembering pills so didn't keep it up. I might try that again though and perhaps a food diary. I get issues with my skin too and my ophthalmologist iis convinced I have a thyroid problem despite neg blood tests so think I might have something else going on besides ms. Mind you, I was told I was anaemic & low on B12 at one point but when they were doing blood tests during my diagnosis they said everything was 'plum normal' with my blood so who knows! I really just wanted to check if it's 'normal' to feel generally unwell with ms. Thanks for replying.

[anon07072023]

I have this feeling every day of general malaise.  However, I have much more than MS going on, so I always attribute it to all of my medical conditions. Of course, MS fatigue doesn't help. Maybe you can try Amantadine for the fatigue. I'm not for sure what they have available in the UK.

[dogmum]

Hi Zoe,

I get this feeling sometimes.  I used to get it all the time until I started taking drastic measures to overhaul my diet completely cutting out some foods that were actually triggers for me. Best change I've ever made.  It didn't help any of my other symptoms nearly as much as the feeling of dragging around in a fog.  Still get foggy-minded, mind you... just not as often and not usually as bad.  Sorry you're feeling down and I hope you find what works for you to help with this symptom.  

Laura